This episode of The Transplant Strong Podcast is a transplant podcast sharing real transplant stories from organ transplant survivors, donors, and advocates.In this episode, I’m joined by special guest Eliza, who shares her heart transplant story and her journey through the transplant system from childhood into adulthood.Eliza talks about how she first discovered she would need a heart transplant, her experiences living in hospital, and the challenges of transitioning from children’s care to adult transplant services. We discuss how life after transplant compares to life before, and how transplantation has shaped her future.We also talk about the incredible work Eliza is doing within the transplant community, including her podcast “Transplant Chats With Eliza” and her one-to-one coaching sessions supporting transplant patients. Eliza’s advocacy, education, and lived experience make her a powerful voice within the transplant community.This episode highlights the importance of support, education, and connection for young transplant patients navigating life after transplant.The Transplant Strong Podcast focuses on real transplant stories, transplant survivor experiences, and raising awareness around organ donation and transplantation. If you’re searching for a transplant podcast that explores growing up with transplant and life after surgery, this episode is for you.🎧 Topics covered in this episode:• Heart transplant journey• Life in hospital and long-term care• Transition from children’s to adult transplant services• Life before and after transplant• Advocacy, coaching, and support for transplant patients🔔 Subscribe for weekly transplant stories, organ transplant experiences, and conversations from the transplant community.🌍 Learn more about Transplant Strong:https://transplant-strong.com✍️ Read my transplant journey and blog:https://organtransplant.home.blog/aut...📲 Connect with Eliza:Instagram –   / transplantchatswitheliza  Website – https://transplantchats.com/#TransplantPodcast #HeartTransplant #TransplantStories #LifeAfterTransplant #OrganDonation

This episode of The Transplant Strong Podcast is a transplant podcast sharing real transplant stories, rare disease journeys, and powerful patient experiences.In this episode, I’m joined by special guest Margaret Elizabeth, who shares her deeply personal story of living with Wilson’s Disease and how the condition nearly cost her life in her early twenties.Margaret explains how, over a very short period of time, Wilson’s Disease caused severe neurological symptoms that left her barely able to walk, write, or feed herself. This sudden decline was an incredibly frightening experience for both Margaret and her family.After receiving a correct diagnosis of Wilson’s Disease, Margaret talks about the determination, resilience, and inner strength she had to find in order to rebuild her life. With the correct medication, ongoing medical care, and strong family support, she slowly regained abilities that some doctors once believed she may never recover.Now living a fulfilling life, Margaret is also a proud mum to a beautiful baby boy. In this episode, she talks openly about pregnancy with Wilson’s Disease and how her medical team carefully managed her medication throughout the entire process.We also discuss the reality of living with a complex rare disease — the good days, the bad days, and how the good now far outweigh the difficult ones.This episode highlights the importance of early diagnosis, specialist care, and never giving up, even when the odds feel stacked against you.The Transplant Strong Podcast focuses on real transplant stories, rare disease awareness, and life-changing medical journeys. If you’re searching for a transplant podcast or health podcast that shares honest patient stories, this episode is for you.🎧 Topics covered in this episode:• Wilson’s Disease symptoms• Neurological impact of Wilson’s Disease• Recovery and long-term management• Pregnancy with Wilson’s Disease• Rare disease resilience and advocacy🔔 Subscribe for weekly transplant stories, rare disease conversations, and organ donation awareness.🌍 Learn more about Transplant Strong:https://transplant-strong.com✍️ Read my transplant journey and blog:https://organtransplant.home.blog/aut...📲 Connect with Margaret:Facebook –   / margaret.e.hill789  Instagram –   / wick3d.mag  #WilsonsDisease #RareDiseaseAwareness #PatientStories #TransplantPodcast #HealthJourney

This episode of The Transplant Strong Podcast is a transplant podcast and rare disease podcast sharing real transplant stories, patient experiences, and global health challenges.In this episode, I’m joined by Emilia Quezgo from Mexico, who shares her powerful story of living with Wilson’s Disease and the serious challenges she has faced accessing life-saving medication.Emilia explains how she was diagnosed with Wilson’s Disease and the harsh reality that the main medications used to treat the condition are not readily available in Mexico. Because of this, Emilia has had to apply for special permits and source her medication from Canada and the United States just to stay alive.As many people in the Wilson’s Disease community know, going without medication can be extremely dangerous and even fatal. Emilia talks openly about the fear, stress, and uncertainty that comes with knowing your treatment depends on international access and approval.Despite these challenges, Emilia has turned her experience into advocacy. She is now using her knowledge to help other Wilson’s Disease patients in Mexico access the correct medication and navigate the complex systems required to obtain it.This episode highlights the importance of medication access, global healthcare inequalities, and the strength of rare disease communities supporting one another across borders.The Transplant Strong Podcast focuses on transplant stories, rare disease awareness, and honest patient-led conversations. If you’re looking for a transplant podcast or health podcast that shares real-life challenges and solutions, this episode is for you.🎧 Topics covered in this episode:• Wilson’s Disease diagnosis• Medication shortages and access issues• Living with Wilson’s Disease in Mexico• International medication permits• Rare disease advocacy and awareness🔔 Subscribe for weekly transplant stories, Wilson’s Disease conversations, and organ donation awareness.🌍 Learn more about Transplant Strong:https://transplant-strong.com✍️ Read my transplant journey and blog:https://organtransplant.home.blog/aut...📲 Connect with Emilia:Instagram –   / wilsondisease_mx  #WilsonsDisease #RareDiseaseAwareness #MedicationAccess #PatientAdvocacy #TransplantPodcast

This episode of The Transplant Strong Podcast is a transplant podcast and rare disease podcast sharing real transplant stories, patient experiences, and honest conversations around Wilson’s Disease.In this episode, I’m joined by Caroline Tancredy, who shares a deeply personal and emotional story about how Wilson’s Disease affected both her and her twin sister, Mary, who sadly lost her life before receiving a diagnosis.Caroline explains how she was asymptomatic at the time of testing but was found to have very high copper levels. Because of this, she was immediately started on Wilson’s Disease medication, despite not experiencing symptoms. She talks openly about the side effects she experienced from the medication and how difficult it was adjusting to treatment.This episode also explores an important and rarely discussed topic — pregnancy and Wilson’s Disease. Caroline shares her experience of pregnancy while managing Wilson’s Disease and the medications involved. We discuss concerns, monitoring, and the realities of navigating pregnancy with a rare metabolic condition.This was the first Wilson’s Disease conversation on the podcast where pregnancy was discussed in depth, and it raised important points that many patients may not have considered before.The Transplant Strong Podcast focuses on transplant stories, Wilson’s Disease awareness, rare disease education, and patient-led conversations. If you’re looking for a transplant podcast or health podcast that explores real-life experiences with honesty and compassion, this episode is a must-watch.🎧 Topics covered in this episode:• Wilson’s Disease diagnosis• Losing a sibling to Wilson’s Disease• Being asymptomatic with high copper levels• Medication side effects• Pregnancy and Wilson’s Disease• Rare disease awareness and patient education🔔 Subscribe for more transplant stories, Wilson’s Disease conversations, and organ donation awareness.🌍 Learn more about Transplant Strong:https://transplant-strong.com✍️ Read my transplant journey and blog:https://organtransplant.home.blog/aut...#WilsonsDisease #RareDiseaseAwareness #WilsonsDiseasePregnancy #TransplantPodcast #PatientStories

Danny Chats Episode 30 features special guest Jaskaran Singh.  

Jaskaran was diagnosed with Wilson's Disease in March 2017 but before that his Doctors had miss diagnosed him with Bipolar.  Its very common for WD patients to be miss diagnosed at first as the symptoms also match up with many other diseases and illnesses.    

Once on the medication, Jakarans copper levels started to drop but he still has many of the neurological effects.   

Jakaran is a hugely positive and inspirational person who has been making videos on his Youtube, giving other people tips on how he manages the neurological effects of his WD.   

I also have a little chat to Jakarans parents who have been doing there best to support him, they also have some tips on keeping track of medication and how a change in dose may affect a person.   

1Big thank you to Jakaran for taking some time out of his day to chat with me.

This episode of The Transplant Strong Podcast is a transplant podcast sharing real transplant stories, rare disease journeys, and patient-led conversations from across the transplant community.In this episode, I’m joined by Elisha Emerald, who shares her incredible journey of living with Glycogen Storage Disease and undergoing a life-saving liver transplant.Elisha was diagnosed with Glycogen Storage Disease at just four months old, which meant constant medical treatment, strict routines, and ongoing concern about her health throughout childhood and adulthood. As Elisha entered her twenties, doctors told her that without a liver transplant, she would not survive much longer.In an extraordinary act of love, Elisha’s brother became a living liver donor. Unfortunately, complications meant that just four days later, Elisha required a second liver transplant. Despite the setbacks, Elisha’s strength and resilience carried her through, and today she is stable and thriving.Elisha now works with Lyfebulb, an organisation focused on raising awareness, supporting rare disease communities, and connecting transplant patients around the world. Her journey highlights not only the challenges of rare disease and transplantation but also the power of advocacy and community.The Transplant Strong Podcast focuses on organ transplant stories, rare disease awareness, living donor experiences, and life after transplant. If you’re looking for a transplant podcast that shares honest, inspiring journeys of survival and hope, this episode is for you.🎧 Topics covered in this episode:• Glycogen Storage Disease• Living with a rare metabolic condition• Liver transplant journey• Living liver donation• Multiple transplants and recovery• Life after transplant• Patient advocacy and awareness🔔 Subscribe for weekly transplant stories, rare disease conversations, and organ donation awareness.🌍 Learn more about Transplant Strong:https://transplant-strong.com✍️ Read my transplant journey and blog:https://organtransplant.home.blog/aut...

#LiverTransplant #GlycogenStorageDisease #RareDiseaseAwareness #TransplantPodcast #LivingDonor

This episode of The Transplant Strong Podcast is a transplant podcast sharing real transplant stories from organ transplant recipients, advocates, and charity founders from around the world.In this episode, I’m joined by Denise Redeker, a heart transplant recipient and the founder of Heartfelt Help Foundation. Denise shares her journey of undergoing a heart transplant in 2018 and speaks openly about the physical and emotional challenges she faced during recovery.Despite several obstacles along the way, Denise is now thriving and living an active life — often running, hiking, and organising charity events to support the transplant community. Her journey is a powerful example of resilience, gratitude, and turning adversity into purpose.We also talk about Heartfelt Help Foundation, why Denise founded the charity, and the goals she has for the future. Heartfelt Help Foundation provides vital support to transplant patients and their families, helping to bridge gaps in care and community connection.The Transplant Strong Podcast focuses on real transplant stories, organ donation awareness, life after transplant, and the incredible people who turn their transplant journeys into advocacy. If you’re searching for a transplant podcast that shares inspiring stories of survival and giving back, this episode is for you.🎧 Topics covered in this episode:• Heart transplant journey• Recovery after heart transplant• Life after organ transplant• Charity work and patient advocacy• Heartfelt Help Foundation• Giving back after transplant🔔 Subscribe for weekly transplant stories, organ donation conversations, and real-life experiences from the transplant community.🌍 Learn more about Transplant Strong:https://transplant-strong.com✍️ Read my transplant journey and blog:https://organtransplant.home.blog/aut...❤️ Learn more about Heartfelt Help Foundation:https://www.heartfelthelpfoundation.com/

#HeartTransplant #TransplantPodcast #TransplantSurvivor #OrganDonation #HeartfeltHelpFoundation

This episode of The Transplant Strong Podcast is a transplant podcast sharing real transplant stories from organ transplant recipients, advocates, and creatives within the transplant community.In this episode, I’m joined by Jeff and Ryan — also known as The Kidney Boyz — who share their kidney transplant journeys and how their shared experiences led them to the Transplant Games and Lyrics For Life.Jeff and Ryan talk about meeting during their transplant journeys, discovering they lived locally to one another, and how music became a powerful outlet for expressing life as transplant patients. Together, they formed The Kidney Boyz, writing original songs inspired by their experiences of kidney disease, transplantation, and recovery.We also talk about performing at the Transplant Games in America and Lyrics For Life — a unique, X-Factor-style music event where transplant patients come together to perform and share their stories through music. It was the first time I’d heard about Lyrics For Life, and the guys explain how creativity, community, and transplantation intersect in such a meaningful way.The Transplant Strong Podcast focuses on real transplant stories, transplant survivor experiences, and raising awareness around organ donation and transplantation. If you’re looking for a transplant podcast that highlights creativity, community, and life after transplant, this episode is for you.🎧 Topics covered in this episode:• Kidney transplant journeys• Life before and after kidney transplant• Music and creativity after transplant• Lyrics For Life explained• Transplant Games experiences• Community and connection in transplant life🎶 Listen to The Kidney Boyz:https://linktr.ee/TheKidneyBoyz📺 The Kidney Boyz on YouTube:   / @thekidneyboyz4393  🔔 Subscribe for weekly transplant stories, organ transplant experiences, and conversations from the transplant community.🌍 Learn more about Transplant Strong:https://transplant-strong.com✍️ Read my transplant journey and blog:https://organtransplant.home.blog/aut...#KidneyTransplant #TransplantPodcast #TransplantStories #LyricsForLife #TransplantGames

This episode of The Transplant Strong Podcast is a transplant podcast sharing real transplant stories from organ transplant survivors, advocates, and voices within the transplant community.In this episode, I’m joined by Brooke Gurrad, a liver transplant recipient and host of The Bonus Years podcast. After appearing on Brooke’s podcast to talk about my own transplant journey, it was a pleasure to welcome her onto The Transplant Strong Podcast to share her story.Brooke opens up about how her need for a liver transplant came as a complete shock. Having enjoyed good health throughout her early life, Brooke’s liver began to fail rapidly in her twenties, and within a very short period she found herself facing the reality that a liver transplant was the only option to survive.We talk honestly about the emotional impact of sudden illness, the fear and uncertainty of waiting for a transplant, and the complex feelings that come with life before and after organ transplantation. Brooke’s openness and vulnerability make this a powerful episode that many transplant patients and families will deeply relate to.The Transplant Strong Podcast focuses on real transplant stories, transplant survivor experiences, and raising awareness around organ donation and transplantation. If you’re searching for a transplant podcast that shares honest conversations about liver transplant journeys and life after transplant, this episode is for you.🎧 Topics covered in this episode:• Liver transplant journey• Sudden liver failure and diagnosis• Emotional impact of needing a transplant• Life before and after liver transplant• Sharing transplant stories through podcasting• Finding purpose after transplant🌍 Check out Brooke’s blog and podcast, The Bonus Years:https://www.thebonusyearsblog.com/🔔 Subscribe for weekly transplant stories, organ transplant experiences, and conversations from the transplant community.🌍 Learn more about Transplant Strong:https://transplant-strong.com✍️ Read my transplant journey and blog:https://organtransplant.home.blog/aut...#LiverTransplant #TransplantPodcast #TransplantStories #LifeAfterTransplant #OrganDonation

Danny Chats Episode 25 features special guest Jareb Gutierrez.   

In this episode Jareb tells me about his experience with Wilson's Disease, like me Jareb was diagnosed in his early teens.   

Like most Wilson's Disease patients the diagnosis took some time but one Jareb was diagnosed he was soon put onto medication.    

Jareb has been able to live a happy stable life since being on the medication and over the years he has developed a passion for photography.  

Jareb Instagram - @jnggtzphotography   

Check out his webpage here - https://vsco.co/gtzphotography/galler... 

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