This episode of The Transplant Strong Podcast features special guest Jessica Alice, who shares her powerful and deeply personal journey of living with a liver transplant from childhood into adulthood.Jessica talks about needing a liver transplant at just 7 years old and how, for many years afterwards, she was able to live a healthy and active life. When Jessica became critically ill, her mum made the selfless decision to become a living liver donor — a choice that ultimately saved her daughter’s life.In this conversation, Jessica reflects on growing up as a transplant recipient and how her perspective on health and life has evolved over time. She also opens up about becoming seriously unwell again in 2019 after developing sepsis, which led to long periods in and out of hospital while doctors worked to stabilise her immune system.Jessica describes this experience as a stark reminder of how being a transplant patient can leave you vulnerable to certain infections and illnesses, even many years after transplant. It was a frightening time and a reality check she never expected to face again.We also discuss the pros and cons of online transplant support groups, the emotional impact of seeing other patients’ journeys, and the importance of protecting your mental health while still finding community and support.Jessica shares her thoughts on the transplant community, advocacy, and her potential plans to start her own podcast — something that would undoubtedly help and inspire many others navigating life after transplant.This episode is an honest, reflective, and important conversation about childhood liver transplant, living donation, long-term recovery, and resilience.You can find Jessica on Instagram:📸 Instagram: @jessicaalicetyThank you for watching. If you would like to join me on an episode of the podcast or have any questions, please feel free to get in touch.🔔 Please like, comment, and subscribe for more real transplant stories, patient experiences, and conversations from the transplant community.🌍 Learn more about Transplant Strong:https://transplant-strong.com✍️ Read my blog about living with Wilson’s Disease and life after transplant:https://organtransplant.home.blog/📘 Find me here:Facebook:   / danny.hiles  Instagram:   / danny_hiles86   #LiverTransplant #LivingDonation #TransplantStrong #OrganDonation #TransplantLife

This episode of The Transplant Strong Podcast features special guest Armin Muzafirovic, who shares his extraordinary journey of growing up with heart disease, living with pacemakers, and eventually receiving a life-saving heart transplant.Armin talks openly about his experience of being fitted with his first pacemaker at just 17 years old after doctors discovered his heart was three times larger than normal. As his condition progressed, Armin faced repeated cardiac emergencies, including being shocked back to life on multiple occasions.In this conversation, Armin describes the terrifying reality of having a defibrillator used on him while he was still awake and conscious — a moment few people can truly imagine. Despite these extreme experiences, he speaks with remarkable calm and honesty.At just 19 years old, Armin suffered his first heart attack while hiking up a mountain. A few years later, his condition deteriorated further, leading to the moment he found himself on the operating table receiving a heart transplant.Armin’s story is one of resilience, strength, and perspective. Despite everything he has been through, he approaches life with a positive mindset and an inspiring level of acceptance. His attitude is a reminder of how powerful the human spirit can be, even in the face of life-threatening illness.This episode explores living with pacemakers, surviving cardiac arrest, the journey to heart transplant, and finding peace and purpose after transplant surgery.You can find Armin on Instagram:📸 Instagram: @armin.muzaThank you for watching. If you would like to join me on an episode of the podcast or have any questions, please feel free to get in touch.🔔 Please like, comment, and subscribe for more real transplant stories, patient experiences, and conversations from the transplant community.🌍 Learn more about Transplant Strong:https://transplant-strong.com✍️ Read my blog about living with Wilson’s Disease and life after transplant:https://organtransplant.home.blog/aut...📘 Find me here:Facebook:   / danny.hiles  Instagram:   / danny_hiles86 

 #HeartTransplant #PacemakerLife #TransplantStrong #OrganDonation #TransplantJourney

This episode of The Transplant Strong Podcast features special guest Brandon Mouw, who shares his powerful journey living with Type 1 Diabetes and eventually needing a life-saving pancreas transplant.Brandon explains how years of living with Type 1 Diabetes led to severe complications that dramatically affected his daily life. Before his transplant, Brandon was passing out between 8–10 times a day due to unstable blood sugars. His condition became so dangerous that he was forced to stop driving and give up work entirely.Alongside the physical toll, Brandon also faced a huge financial challenge. In order to receive his pancreas transplant, he had to find $250,000 to fund the operation — an overwhelming burden while already dealing with serious illness.Since receiving his pancreas transplant, Brandon has been doing well overall, though he has experienced a few hospital admissions due to mild rejection episodes. In this episode, he talks openly about his most recent hospital stay and what living with the constant balance of transplant medication and monitoring really looks like.We cover a wide range of topics throughout this conversation, including life before and after transplant, the mental impact of chronic illness, and the realities of pancreas transplantation.Brandon also shares exciting news about his upcoming book, due to be released in 2021, where he goes into more depth about his journey with diabetes, transplant, and resilience.You can sign up for Brandon’s book and learn more about his story here:🌐 https://brandonmouw.com/This is another inspiring and honest transplant story that highlights the strength it takes to keep going through extreme challenges.Thank you for watching. Please like, comment, and subscribe to the channel for future episodes featuring real transplant stories and patient experiences.If you would like to join me on an episode of the podcast or have any questions, feel free to reach out.✍️ Read my blog about living with Wilson’s Disease and life after transplant:https://organtransplant.home.blog/📘 Find me here:Facebook:   / danny.hiles  Instagram:   / danny_hiles86  

#PancreasTransplant #Type1Diabetes #TransplantStrong #OrganDonation #DiabetesJourney

This episode of The Transplant Strong Podcast features special guest Elizabeth Cassidy, who shares her journey living with Wilson’s Disease and eventually needing a life-saving liver transplant.Elizabeth talks openly about how, like many people with Wilson’s Disease, she spent years feeling unwell without having the correct diagnosis. Despite repeatedly visiting doctors, she was initially told to return home, leaving her symptoms unexplained and untreated.Eventually, Elizabeth was sent for a CAT scan, which led to further liver testing and finally a diagnosis of Wilson’s Disease — a rare genetic condition that causes copper to build up in the body and can lead to severe liver damage if left untreated.After spending many years managing her condition with medication, Elizabeth reached the point where a liver transplant was necessary. She became the first guest on the podcast to receive a liver transplant from a living donor, which brings its own unique challenges, emotions, and considerations.In this episode, we talk about the long road to diagnosis, living with Wilson’s Disease, the transplant process, and what it’s like knowing someone chose to donate part of their liver to save your life.This is another honest, emotional, and inspiring transplant story that highlights the importance of awareness, persistence, and listening to your body.If you enjoyed this video or found it helpful, please give it a thumbs up and subscribe to the channel for more real transplant stories.If you would like to join me on an episode of the podcast or have any questions, feel free to reach out.✍️ Read my blog about living with Wilson’s Disease and life after transplant:https://organtransplant.home.blog/📘 Find me here:Facebook:   / danny.hiles  Instagram:   / danny_hiles86  

#WilsonsDisease #LiverTransplant #LivingDonor #TransplantStrong #OrganDonation

This episode of The Transplant Strong Podcast features special guest Arooj, who shares her journey of having a heart transplant as a child.Arooj talks about what it was like growing up after a heart transplant, including the operation itself and the lifelong medication she has needed to take since. She explains how transplant medication affects day-to-day life and the importance of learning to manage both physical and mental health from a young age.During the conversation, we discuss a wide range of topics, including the pros and cons of social media, living life under medical supervision, and why taking time for yourself is so important when managing a long-term condition.Arooj also talks about how social media can be both a support and a challenge, especially when sharing health experiences online, and why setting boundaries is essential.This is an honest and thoughtful conversation that will resonate with transplant patients, families, and anyone navigating life after major surgery at a young age.If you enjoyed this video or found it interesting, please give it a thumbs up and subscribe to the channel for more real transplant stories.If you would like to join me on an episode of the podcast or have any questions, feel free to reach out.📘 Find Arooj on Instagram:  / littlemissnewheart  ✍️ Read my blog about living with Wilson’s Disease and life after transplant:https://organtransplant.home.blog/📘 Find me here:Facebook:   / danny.hiles  Instagram:   / danny_hiles86   #HeartTransplant #OrganTransplant #TransplantStrong #LifeAfterTransplant

Danny Chats Episode 9 features special guest Dr Veronica Loy, a transplant hepatologist from the United States.In this episode, Dr Loy answers some of the most common questions people have about the liver and liver transplantation. We cover topics such as whether the liver can regenerate, how doctors train for complex transplant procedures, and the different types of liver biopsies patients may undergo.Dr Loy also explains the longevity of a liver transplant, what life looks like after surgery, and the types of medication patients may need to take long-term. We discuss the future of transplantation, including advances in medical technology and the possibility of 3D printing organs.This episode is packed with useful, easy-to-understand information for anyone who is:• Waiting for a liver transplant • Living life after transplant • Supporting someone with liver disease • Interested in how transplant medicine works I really enjoyed this conversation and learning more from a medical professional who works in liver transplantation every day.Thanks for watching — I hope you find this episode helpful and informative.If you would like to join me on an episode of Danny Chats or have any questions, feel free to reach out.✍️ Read my blog about living with Wilson’s Disease and life after transplant:https://organtransplant.home.blog/📘 Find me here:Facebook:   / danny.hiles   Instagram:   / danny_hiles86  

#LiverTransplant #LiverHealth #OrganDonation #TransplantLife

The Transplant Strong Podcast – Episode 8 features special guest Dan Gottlieb, and we’re talking all about living with Wilson’s Disease.In this episode of The Transplant Strong Podcast, Dan shares his personal transplant story and experience of being diagnosed with Wilson’s Disease. We talk openly about how Wilson’s Disease affects day-to-day life, including diagnosis, managing symptoms, diet choices such as raw food diets, staying active through sport, and how the condition can impact school, work, and mental wellbeing.Dan explains how he has learned to manage Wilson’s Disease alongside everyday life and why awareness and education around rare diseases are so important.This episode is especially useful for:• People living with Wilson’s Disease • Transplant patients and those awaiting transplant • Families and caregivers • Anyone interested in real transplant stories and rare disease journeys The Transplant Strong Podcast shares honest conversations and real transplant stories to help people feel informed, supported, and less alone.🔗 Check out Dan’s website:www.sproga.comIf you would like to join me on an episode of The Transplant Strong Podcast or have any questions, feel free to reach out.📘 Connect with me:Facebook –   / danny.hiles   Instagram –   / danny_hiles86   ✍️ Blog – Life before and after liver transplant:https://organtransplant.home.blog/#TransplantPodcast #TransplantStories #WilsonsDisease #TransplantStrong

The Transplant Strong Podcast – Episode 7 features special guest Jamie Delf, sharing his powerful transplant story and experience living with a rare condition called Abernathy Syndrome.In this episode of The Transplant Strong Podcast, Jamie talks openly about being diagnosed with Abernathy Syndrome, a rare condition that affected his cognitive function and led to tumours developing on his liver. Jamie explains how he was misdiagnosed for a long time, the different stages of diagnosis he went through, and the treatments he received before eventually needing a liver transplant.We also discuss:• Living with a rare liver condition • The emotional impact of long-term misdiagnosis • Liver tumours and treatment options • Going through a liver transplant • Writing to the organ donor’s family • Life after transplant and recovery Jamie also shares how yoga and mindfulness have played an important role in his recovery and ongoing wellbeing after transplant.This episode is ideal for:• Transplant patients and those awaiting transplant • People living with rare liver conditions • Anyone interested in real transplant stories • Families and caregivers 🔗 Find out more about Jamie’s yoga classes:https://delfliving.com/If you would like to join me on an episode of The Transplant Strong Podcast or have any questions, feel free to reach out.📘 Connect with me:Facebook –   / danny.hiles   Instagram –   / danny_hiles86   ✍️ Blog – Life before and after liver transplant:https://organtransplant.home.blog/#TransplantPodcast #TransplantStories #LiverTransplant #AbernathySyndrome #TransplantStrong

The Transplant Strong Podcast – Episode 6 features special guest Beth Trudeau, sharing her powerful transplant story and journey with Wilson’s Disease and liver transplantation.In this episode of The Transplant Strong Podcast, Beth talks openly about living with Wilson’s Disease, being misdiagnosed, undergoing a liver biopsy, and the mental health challenges she faced along the way, including clinical depression.Beth also shares her experience of recovering from a liver transplant and how both the physical and emotional sides of transplant recovery can be just as challenging.We discuss:• Wilson’s Disease and delayed diagnosis • Misdiagnosis and the road to answers • Liver biopsy experiences • Mental health and clinical depression • Life before and after a liver transplant • Recovery and adapting after transplant This episode is especially valuable for:• People living with Wilson’s Disease • Liver transplant patients and those awaiting transplant • Anyone interested in real transplant stories • Patients navigating mental health challenges If you enjoyed this episode, please like, subscribe, and help support The Transplant Strong Podcast.If you would like to join me on an episode or have any questions, feel free to reach out.📘 Connect with me:Facebook –   / danny.hiles   Instagram –   / danny_hiles86   ✍️ Blog – My life with Wilson’s Disease and transplant:https://organtransplant.home.blog/

#TransplantPodcast #TransplantStories #WilsonsDisease #LiverTransplant #TransplantStrong

The Transplant Strong Podcast – Episode 5 features special guest Rob Holcombe, sharing his transplant story and experience living with Wilson’s Disease in the United States.In this episode, Rob and I talk openly about living with Wilson’s Disease and navigating the medical healthcare system in the USA. We compare experiences, discuss treatment approaches, and explore how managing a chronic condition impacts everyday life.Rob also talks about how Wilson’s Disease has influenced his diet, relationships, and overall lifestyle, offering an honest and relatable perspective for others living with rare liver diseases.We discuss:• Living with Wilson’s Disease • Managing a rare disease in the US healthcare system • Diet and lifestyle adjustments • Relationships and chronic illness • Day-to-day life with Wilson’s Disease This episode is ideal for:• People living with Wilson’s Disease • Those interested in transplant stories • Patients navigating rare diseases • Anyone wanting real, patient-led conversations If you enjoyed this episode, please like, subscribe, and support The Transplant Strong Podcast.If you would like to join me on an episode or have any questions, feel free to reach out.📘 Connect with me:Facebook –   / danny.hiles   Instagram –   / danny_hiles86   ✍️ Blog – Life with Wilson’s Disease:https://organtransplant.home.blog/

#TransplantPodcast #TransplantStories #WilsonsDisease #RareDisease #TransplantStrong