The TSW Podcast

Ben Atherton shares his expedited TSW recovery story, his guidance and how he navigated living with his GP father during withdrawal. 

Book recommendations:

The Biology of Belief by Bruce Lipton

The Expectation Effect by David Robson

#thetswpodcast #tswpodcast #steriodwithdrawal #tsw #severeeczema #eczema

The International DJ Chloe Robinson joins us to discuss recovering whilst driving her career forward. We discuss continuing to embrace life, juggling career, dupilumab/dupixent, jak inhibitors, mental health, travel, social media and red light therapy.

You can connect with Chloe on instagram @cholerobinsondj and listen to her music on spotify and soundcloud @chloerobinson

Welcome back to the TSW  podcast. We are thrilled to bring you this episode with Dr. Greenberg  to discuss TSW recovery the natural way. Dr Greenberg is a licensed Naturopathic Doctor (ND) and Registered Herbalist RH(AHG) in the US who specializes in integrative dermatology. She is passionate about natural skin care and believes that many of today’s chronic skin diseases can be healed by using evidence-based alternative treatments. In this episode we discuss adrenal insufficiency, insomnia, what is happening in TSW vs Eczema, PH of healthy skin, bleach baths and staph infections.

You can find out more about about Dr Greenberg at https://www.integrativedermatologycenter.com/  as well as listen to the other podcast episodes she has featured on.

Rachael Pontillo joins me for an insightful conversation on the skincare industry, what one ingredient natural products to consider using to support your skin during recovery, what to avoid at all costs and she shares some powerful insights that will help us all protect going forward.

Rachael is a IAHC and AADP Board Certified International Health Coach, Certified Nutritional Aesthetics Practitioner, Licensed Aesthetician, best selling author of 'Love your Skin, Love Yourself'; and natural skincare formulator and educator. She has treated many TSW clients, supporting their journey to skin health.. and Rachael has the most beautiful skin imaginable... so she definitely knows her stuff!

Resources

Instagram: @rachaelpontillo

Web: createyourskincare.com

Web for skin care and health coaches: skinwellnesspro.com

Hydrosols, hydrolates, herbal waters

Anya Charnaud BA(hons), FDsc,PGcert,PGdip, MBACP acred

Integrative and trauma specialist psychotherapist and clinical supervisor. If you would like to work with Anya you can contact her at www.ANCtherapy.com

Please note Anya is not a crisis service if you are in crisis or need urgent medical attention please call 999, your GP or the NHS 111 service. 

Resources and references discussed during the podcast:

Books:

Gabor Mate ‘When the body says no’.

Trigger warning: Bessel van der Kolk ‘ The body keeps the score’

Trigger warning: Viktor Frankl ‘Man’s search for meaning’

Theories and techniques

Polyvagal theory - vagus nerve’s role in emotional regulation, social connection and fear response.

EMDR - Eye Movement Desensitisation and Reprocessing

TRE: trauma release therapy - TRE® : Tension and Trauma Releasing Exercises, an Introduction with Jessica Schaffer - YouTube

Improving Access to Psychological Therapies (IAPT) APT service www.nhs.uk

Metanoia institute

https://www.metanoia.ac.uk/therapy/metanoia-counselling-and-psychotherapy-service/

 https://dilemmaconsultancy.org/ linked to the new school of counselling and psychotherapy. 

Products

Shakti /Acupressure mat: The Shakti Acupressure Mat - Total mind and body relaxation – Shakti Mat UK Cheaper alternatives can be found on amazon

CosiCare ice roller. Discount code ‘RELIEF’

It’s up!! This one is a corker! Louise @louigi.skin and Jing @tsw_trooper share their insights and experience from treating clients at the Skin Solace Clinic in the Uk @skinsolaceclinic.uk 

Product recommendations including @cosi_care @childsfarm @cjay.serum, Ecover Zero @ecover_uk and ‘snow pillow’ are below with discount codes where they exist.

I hope you enjoy this one, I personally love these girls, and please do share with other members of the community!

Cosi care: 10% discount with using ‘Relief’

In this episode I have the pleasure of speaking to Daisy Malin (DaisyMalin_Skin on instagram) about her recovery to date, how life has paused in some areas, but how she has personally evolved in many brilliant and unexpected ways. We speak about having courage to go out and face the world, natural healing, TSW social media pros and cons and relationships.

Daisy is the co-host of the 'Itch n Bitch' podcast with Katie Mackie, which discusses living with a range of skin disorders, including eczema and TSW.

Daisy refers to the TSW Atlas video during the episode which can be accessed here; An Overview of TSW

Kelly Palace is a force of nature! Co-Founder of ITSAN in 2012 with Marvin Rapaport MD, Kelly, together with Dr Rapaport blazed the way for recognition and awareness of TSW. Kelly acted as the President for 6 years before handing leadership across to a member of the executive board. 

In this episode I talk to Kelly about long haul healing, mindset and visualisations, the impact of stress, relationships and intimacy, the joy of waking up and knowing it’s over as well as establishing ITSAN and acting as a beacon for us all.

Thank you to @ITSAN for making this episode possible and congratulation on the 10 year anniversary.

You can find Kelly over on @championsmojo, her award winning podcast and links to resources, her book and the products we discuss are all linked in the show notes.

Sending you all healing love • Clare • The TSW Podcast •

Kelly’s podcast: http://www.championsmojo.com/

Top episodes from Champions Mojo for TSW: https://podcasts.apple.com/gb/podcast/dr-martin-rossman-get-rid-of-stress-anxiety-episode-80-9-8-20/id1457917756?i=1000490541510

https://podcasts.apple.com/gb/podcast/dealing-with-pain-and-suffering-episode-14-6-5-19/id1457917756?i=1000440573235

Products we discuss: Eucerin Eczema Relief and Remedy Anti Fungal Soap

Kelly’s book available on kindle: ‘Take your mark, Lead!’ https://www.amazon.com/gp/aw/d/1737106906/ref=dbs_a_w_dp_1737106906#

https://www.itsan.org

I talk to Cara about her recovery in a time where information and resources were limited, her personal commitment to natural healing, writing, advocacy and coping with post recovery trauma. Cara is a real inspiration and has been a leading contributor to raising awareness and providing support to sufferers throughout her own journey. We hope this episode fills you with confidence and positivity about your body’s own ability to heal.

Cara’s blogspot is full of wonderful resources and information on tsw and can be accessed through - http://tswcara.blogspot.com

Disclaimer: This podcast does not constitute medical advice. Always seek the guidance of your GP or medical practitioner.

Marvin Rapaport MD is widely accepted as a leading physician in Topical Steroid Withdrawal. In 1978 he established the contact and photo dermatitis clinic at UCLA and identified TSA and TSW as a consequence of topical steroid use. He has dedicated his life’s work to raising awareness of the condition and preventing needless suffering. He has written and contributed to numerous white papers on the subject, treating thousands of patients in his Beverly Hills, CA, clinic and online and has acted as the driving force behind the Skin on Fire documentary, produced by PCH Films. It was an absolute honour to speak to Dr Rapaport about all things TSW and his continuing work to ensure the condition is widely accepted.

Disclaimer: This show does not constitute personal medical advice and you should always seek the advice and guidance of your own general practioner or doctor on your health.

Dr Rapaport Clinic and Virtual Consultations

Skin on Fire documentary

White papers on TSW