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The Use of Patient-Reported Outcomes to Assess Symptom Burden in Sickle Cell Disease


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In this podcast, Nirmish Shah, MD, discusses patient involvement and the use of patient-reported outcomes in the development of sickle cell disease interventions. Dr Shah’s team presented research on this topic titled “Development of a Patient Reported Outcome Daily Diary to Assess Symptom Burden in Sickle Cell Disease” at the American Society of Hematology’s 2023 annual meeting in San Diego, CA.
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