The Way We Roll

Bristol City Council recently reversed their planned cost-cutting strategy, which would have impacted independent living for disabled people. The UK government recently reversed the proposed closure of ticket offices at railway stations, which would have had an impact on disabled people. Sophie Morgan, the Rights on Flights campaigner, appears to be close to getting legal rights for disabled people on flights. Is campaigning stronger than ever? We talk through the possible renaissance and ask, is it all it seems?

At the end of February this year, the UK Government’s Health Select Committee published findings on Assisted Dying / Suicide. Phil picks through its findings and gives an update on the Not Dead Yet campaign. 

We finish with good news from Europe, with Mar Galcerán making history as Spain’s first parliamentarian with Down’s syndrome. Another barrier knocked down. 

Links:

Bristol City care plans

Transport for All - Ticket offices

Rights on Flights

Health Select Committee report on Assisted Dying / Suicide

Mar Galcerán in Spanish parliament

How would you feel if your local authority suggested you move from your home of 30 years to a residential care home because they need to save money? It's something Bristol City Council were proposing for disabled people as they try to reduce their deficit. Although this proposal has been shelved, it might not be the last time we see it. We explore the reasoning, impact and resistance.

Becoming disabled can bring a complete change of outlook, and you might reflect on who you once were. The author, Hanif Kureishi (My Beautiful Launderette, The Buddha of Suburbia), lost the use of his arms and legs in late 2022. He makes headlines with his newfound frustrations and doesn't hold back, but is he, a year later, finally adjusting? We discuss how people adapt, how long it takes and how non-disabled people might ignore disability until it impacts them.

Phil and Simon are passionate about these subjects. You will hear us disagree agreeably, with added swearing and raised voices.

Links:

Hanif Kureishi: I've become a reluctant dictator

Hanif Kureishi on the 'hell' of life after his accident

The Kureishi Chronicles - Hanif's blog

Francis Ryan in the Guardian 

Think of this: a plan to 'warehouse' disabled people. What kind of nation is Britain becoming? "

‘Know your audience and communicate to as many people as you can, including disabled people’, says Sarah Brown Fraser on effective, accessible communication. That Sarah can whittle information down to valuable nuggets might be a consequence of her role as Head of Communications and Policy at the Activity Alliance. 

As our guest, Sarah is timely, with accessible and inclusive communications being a hot topic. How do we communicate effectively with a diverse audience via various methods: print, website, social media, video, web links, in-person and even emojis? Is there such a thing as a fully accessible comms? Sarah helps us with what we need to think about initially and how to adjust as we go along.

From Liverpool with aspirations to be a TV Presenter, Sarah has found her niche in communication. Before starting work, Sarah moved from Merseyside to London to study for a BA in Media Studies at the University of East London. It was the mid-90s, but she was the first student with a disability to do her course. She is also an Everton supporter.

Links

Activity Alliance

Sarah Brown Fraser LinkedIn

Business Disability Forum Inclusive Communications toolkit

Activity Alliance Effective Engagement Factsheets

UK Government Accessible Formats

Our guest is Andrew Miller, the Chief Executive Officer of Motability Operations (MO). Many of you will know of this unique organisation. Indeed, some of you will be customers. 

The Motability Scheme leases cars, powered wheelchairs and scooters to more than 700,000 disabled people in the UK. It is the largest car fleet in the UK. Andrew heads up the scheme's delivery, ensuring customers have a range of affordable options to stay mobile and ensuring the company stays on the right financial road.  

It’s not an easy job with many challenges. The switch to electric vehicles is well underway, and it disproportionately impacts disabled people in terms of access, charging accessibility and price. As MO buys and sells 200,000 cars a year, small price fluctuations can significantly impact the financial model. Still, they must also maintain a consistent offering to their customers. Stakeholders aren’t just scheme customers; there’s the oversight from the Motability Foundation, successive governments, and the press, which often take an interest. 

In an open conversation, we explore with Andrew the biggest challenges in the recent past and what the future looks like. Although he may be highly experienced in finance and business, he’s new to disability, and we check in with him to see how he is getting on.

Links:

Andrew Miller background 

Motability Scheme website 

How the scheme works 

Motability Operations corporate website

Motability Foundation 

Simon was at the airport recently. He was on his mobility scooter, and his mum was using an airport wheelchair. Looking at the long line in the disabled passport queue, his walkie-talkie sister and cousin decided to move to the non-disabled line. We explore what happened and how it made Simon feel. 

The Business Disability Forum has produced a second adjustments in the workplace piece of research. Both managers and individuals who are Deaf, disabled or neurodivergent responded. Phil picks through the key findings. 

History is littered with new businesses created to serve disabled consumers that weren’t viable. It feels different now. Simon asks, with the growth in service providers, including bespoke clothes makers, the hotel and leisure industry and accessible car and van hire, has the Purple Pound finally landed, and how do you cater to the diversity of disabled people? 

Oh, and Bake Off want to hear from you. 

Links

Business Disability Forum has produced another piece of research on adjustments in the workplace

Blue Badge Awards Leisure Industry

Proximo accessible vehicle hire

Able2Wear clothing 

WAVs. Motability and Callum

UnHidden clothing

Apply for Bake Off UK

Pic Credit

A wheelchair user in the airport https://spintheglobe.net

They say you shouldn’t kick a person when they’re down. It feels right now the UK Government are down. And unfortunately for them, Phil and Simon have found more reasons why they deserve maybe not a kick but a strong toe poke.   

Launched in late September 2023, Ask Don’t Assume is the government’s disability awareness-raising campaign. It asks everyone to avoid making assumptions about disabled people as well as asking non-disabled people to become allies. Many disabled-led organisations and influential people dismissed it. We explore why it feels outdated and inappropriate and ask why, if it was created with disabled people, it doesn’t have more validity.

Another government initiative is the Disability Confident employer scheme. Quoting from the Disability New Service, Phil suggests the results show it’s not working. Simon flips the statistics around and shows it can be argued that it is doing very well. We know statistics can be manipulated, so leaving that aside, is the campaign any good?

Phil gives an update on his recent cancer treatment, and Simon tells of his recent talk at the Royal Television Society on 20 years of disability representation on television.

Ask Don’t Assume 

Disability Confident article 

 Simon’s talk with Steph Lacey at the Royal Television Society

Forbes Online posted an article which showed the 7 things disabled people have to think about, which non-disabled types don’t have to. Simon thinks it’s informative and helpful, like an access rider. Phil bemoans why we still need to tell people the basics. 

There are big concerning issues relating to disability right now. 

Why isn’t the UK Government meeting with the UN about its obligations under the Convention on the Rights of People with Disabilities? 

How do you justify the possible closures of ticket offices at train stations, which will impact disabled travellers more than most? 

As is our way, it’s personal, too. We make an appointment with Phil’s radiotherapy treatment and head to the athletics stadium where Simon competed at the World Dwarf Games in Cologne. 

LINKS

Forbes 7 Things Disabled People Have To Think About Every Day

Andrew Pulrang @AndrewPulrang

Unlimited What is an Access Rider

World Dwarf Games website

World Dwarf Games instagram

World Dwarf Games Facebook 

Dwarf Sports Association UK

Prostate Cancer NHS info

United Nations Convention on the Rights of Persons with Disabilities 

Disability Rights UK Government refuses to attend 

Ministers skip UN meeting on disability rights

BBC Tanni-Grey Thompson says big problems for disabled passengers with ticket office closures 

Photo of Simon competing copyright Anna Spindelndreier

In an exceptional show, our guest is the remarkable human that is Sophie Morgan. Sophie often finds liberation on a motorbike. She pops up frequently on TV, presenting Crufts or the Paralympics as a guest on Loose Women or breakfast TV. This past year she’s been promoting her autobiography Driving Forwards: A Journey of Resilience and Empowerment After Life-Changing Injury. She’s a powerful campaigner for disability and, specifically, better rights on flights for wheelchair users. 

As can happen when you throw three thoughtful and pragmatic disabled people together, Sophie allowed us to have a far-reaching conversation. What drives her, what does she do when the going gets tough and who supports her? She explains that writing her autobiography allowed her to pause and reflect on her identity and how her passions have formed and re-formed over the year. It turns out that having a ‘chip on your shoulder’ can be a helpful motivator. As we approach the 20th anniversary of her becoming a disabled person, she talks through her immediate and future plans. We know this will include being an artist, something she’s returning to as painting allows her to find a calming place.  

Links

Wiki Sophie Morgan

Instagram

Sophie on Twitter

Driving Forwards: A Journey of Resilience and Empowerment After Life-Changing Injury

Can-Am trikes

Sophie’s page on Can-Am

Rights on Flights 

Howdens accessible kitchen

Can you fail upwards? Aarian Mehrabani from FlawBored Theatre says that is what they have done. With his theatre company co-founders Samuel Brewer and Chloe Palmer, they have created a play that pushes the boundaries of disability arts and arts more broadly. 

How has the audience reacted? Do those with a disability react differently to those who aren’t disabled (the answer is sometimes yes)? After creating a show with disability themes, is there a subtle pressure for the next piece of work to move away from the topic? Is that natural, an enhancement or devaluing the subject? And might the term ‘able-anxiety’ be a throw-away joke turning into an accepted word and concept? Sam and Aarian join us to discuss this and more. 

FlawBored is performing ‘It’s a Mother F**king Pleasure’ in Edinburgh this August (link below). Our show has a few spoilers but also might add to your enjoyment. Listeners discretion! 

Links

FlawBored Theatre Company

Tickets to Edinburgh Fringe performances of It’s a Mother F**king Pleasure. 

A bumper show this month. There’s an underlying theme around the erosion or optionality of including disabled people. 

What do you do when you’re hotel room isn’t ready…especially when you return to the hotel after a night out at midnight and find out? Move to another room? Not so simple if you’re a wheelchair user. Kat Watkins had this happen to her, and we explore what coulda shoulda happened. 

Did you know there are new consumer duties which may assist differently disabled people (beyond Phil’s favourite group being learning disabled people who fill in forms). 

Simon and Phil have noticed the word ‘vulnerable’ is creeping back into the language to describe disabled people. Used without context or explanation, as in, ‘financially vulnerable’ or ‘vulnerable to exclusion’, the use of the word feels patronising and retrograde. Is it linked to Covid when lots of people were vulnerable? Is it broader, a moral driver of ‘being kind’? The issue is the word is disempowering, and inclusion isn’t optional nor a favour. There are legal duties underpinning this, as well as a moral imperative. 

More happily, we enjoy the success Lenny Rush is experiencing. A British actor with dwarfism, only 14 years old, he is absolutely storming it. We ask, was Peter Dinklage in Game of Thrones a watershed moment?   

Links

Disabled woman forced to sleep in hotel dining area ‘after the booked room was unavailable’

Disability and Vulnerability paper 

New Consumer Duty.  

Speech introducing a new duty

Best Bits of Am I Being Unreasonable with Daisy Cooper and Lenny Rush

Lenny Rush BAFTA acceptance speech