theMSguide podcast

theMSguide podcast

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theMSguide podcast episodes

  • Coping with mobility loss caused by Multiple Sclerosis

    Please Subscribe to the channel, ring the bell to be notified of new content, and if you really enjoy it then please support me by becoming a Patreon supporter. Thank you.


    https://www.patreon.com/theMSguide


    theMSguide.com is nothing without your help. Please get in touch and let me know what you need to know. I'll reach out and do my level best to get the best answers for you.


    After 31y of #MS I have accumulated a wide network of contacts, so I am sure we can work together to answer any questions you have about MS. I look forward to hearing from you.


    Email: [email protected]

    Twitter: @theMSguide

    LinkedIn: https://www.linkedin.com/company/themsguide/

    Instagram: @theMSguide

    Facebook: facebook.com/MultipleSclerosisGuide (I am really bad at Facebook - please email me!)

    Hosted on Acast. See acast.com/privacy for more information.

    59 min
  • Nerve Remyelination & Regeneration in Multiple Sclerosis

    Professor Stefano Plucino - a leader in this field who is a working MS Neurologist and researcher at the University of Cambridge in the UK helps us understand what is coming, when it will be here and how you can get involved with Clinical trial of these amazing new therapies.


    Always ask your doctor - press them on this - what6 trials are running and how you might get involved. As ever, much of the burden falls to us but don't be disheartened.


    Go to www.clinicaltrials.gov and you can search by condition (MS I guess!), country, recruiting status, eligibility criteria and there will always be a contact you can email directly or share with your neuro to refer you. I'd just send the email myself. Time is not our friend in MS.


    If you are in the UK then the best thing you can do to indicate your interest and availability for clinical trial is go to https://ukmsregister.org and register there. You can take part in all sorts of research through this amazing hub.


    If you have any questions then drop a note in the comments and please don't forget to like and subscribe on your podcast platform of choice. It really helps get this content in front of you and likeminded people. Thank you.


    Please Subscribe to the channel, ring the bell to be notified of new content, and if you really enjoy it then please support me by becoming a Patreon supporter. Thank you.


    https://www.patreon.com/theMSguide


    theMSguide.com is nothing without your help. Please get in touch and let me know what you need to know. I'll reach out and do my level best to get the best answers for you.


    After 31y of #MS I have accumulated a wide network of contacts, so I am sure we can work together to answer any questions you have about MS. I look forward to hearing from you.


    Email: [email protected]

    Twitter: @theMSguide

    LinkedIn: https://www.linkedin.com/company/themsguide/

    Instagram: @theMSguide

    Facebook: facebook.com/MultipleSclerosisGuide (I am really bad at Facebook - please email me!)

    Hosted on Acast. See acast.com/privacy for more information.

    34 min
  • Let's Talk About Sex - in MS

    Please Subscribe to the channel, ring the bell to be notified of new content, and if you really enjoy it then please support me by becoming a Patreon supporter. Thank you.


    https://www.patreon.com/theMSguide


    theMSguide.com is nothing without your help. Please get in touch and let me know what you need to know. I'll reach out and do my level best to get the best answers for you.


    After 31y of #MS I have accumulated a wide network of contacts, so I am sure we can work together to answer any questions you have about MS. I look forward to hearing from you.


    Email: [email protected]

    Twitter: @theMSguide

    LinkedIn: https://www.linkedin.com/company/themsguide/

    Instagram: @theMSguide

    Facebook: facebook.com/MultipleSclerosisGuide (I am really bad at Facebook - please email me!)

    Hosted on Acast. See acast.com/privacy for more information.

    33 min
  • theMSguide talks with Professor Bart Van Wijmeersch an MS Neurologist who is a bit different

    Prof Bart van Wijmeersch practices in Belgium and he has a very enlightened view on how to treat patients. I just loved talking to him and hearing how he goes about everything. Ypou are v lucky to be one of his patients.


    We cover the use of Evoked Potentials to aid in predicting the course of our MS and how these form part of the diagnostic and managing process.


    Read what the MS Trust says about Evoked Potentials: https://mstrust.org.uk/a-z/evoked-potentials#:~:text=As%20damage%20to%20the%20nerves,you%20notice%20any%20clinical%20symptoms.


    A simply fascinating interview.


    This is the full length version. I think I Please Subscribe to the channel, ring the bell to be notified of new content, and if you really enjoy it then please support me by becoming a Patreon supporter. Thank you.


    https://www.patreon.com/theMSguide


    theMSguide.com is nothing without your help. Please get in touch and let me know what you need to know. I'll reach out and do my level best to get the best answers for you.


    After 31y of #MS I have accumulated a wide network of contacts, so I am sure we can work together to answer any questions you have about MS. I look forward to hearing from you.


    Email: [email protected]

    Twitter: @theMSguide

    LinkedIn: https://www.linkedin.com/company/themsguide/

    Instagram: @theMSguide

    Facebook: facebook.com/MultipleSclerosisGuide (I am really bad at Facebook - please email me!)

    Hosted on Acast. See acast.com/privacy for more information.

    40 min
  • Scientists crack mystery of how MS gene spread - Exclusive interview with the Lead Researcher

    Prof Fugger is the lead researcher on this incredibly important paper. It has been established how the 'MS Gene' came to be. Hear Lars talk in depth to theMSguide.com about his discovery and where the EBV we hear so much about fits. You#'ll be very surprised at some of the things you'll learn.


    Read more here: https://www.bbc.co.uk/news/health-67917294


    Please Subscribe to the podcast and if you really enjoy it then please support me by becoming a Patreon supporter. Thank you.


    https://www.patreon.com/theMSguide


    theMSguide.com is nothing without your help. Please get in touch and let me know what you need to know. I'll reach out and do my level best to get the best answers for you.


    After 31y of #MS I have accumulated a wide network of contacts, so I am sure we can work together to answer any questions you have about MS. I look forward to hearing from you.


    Email: [email protected]

    Twitter: @theMSguide

    LinkedIn: https://www.linkedin.com/company/themsguide/

    Instagram: @theMSguide

    Facebook: facebook.com/MultipleSclerosisGuide (I am really bad at Facebook - please email me!)

    Hosted on Acast. See acast.com/privacy for more information.

    37 min
  • #TimeIsBrain - Brain health: time matters in multiple sclerosis.
    ,Brain health: time matters in multiple sclerosis. Emily Stock joins us to talk about a global initiative tio ensure that MS has an appropriately rapid intervention protocol in the same way that styoke or cancer have. The sooner an MS diagnosis is acted on the more brain (function/quality of life) is saved.

    Hosted on Acast. See acast.com/privacy for more information.

    22 min
  • Clinical Trial Failure in MS: What does the big BTK trial failure mean for patients?

    On this patient focused podcast I get together with one of the leading MS Neurologists in the US - Aaron Boster MD - to discuss the implications of the trial failure of evobrutinib. Aaron helps break down what it all means and more importantly, what does it mean for patients?


    Please help support the channel by subscibing and on Patreon. patreon.com/theMSguide Thank you for your help. I appreciate it.

    Hosted on Acast. See acast.com/privacy for more information.

    25 min
  • Cathy Chester : The Doyenne of MS

    In this episode Cathy (in the USA) and I (in the UK) combine our 60+y of living with Multiple Sclerosis to observe how far things have come, what the positive changes are and what still needs to be done.


    Please support theMSguide on Patreon at: patereon.com/theMSguide Thank You.

    Hosted on Acast. See acast.com/privacy for more information.

    46 min

About theMSguide podcast

From the publisher's feed

This is a podcast where an expert MS patient of 31y (and counting) with the disease talks all things Multiple Sclerosis from a patient perspective. Keeping other patients informed and up to date on…