Bria chats to me about her 3 year old son and his story with Hirschsprung's. Having had one child already, Bria and her family had no idea that Hirschsprung's existed as we talk through procedures and the pull-through surgery.
Later in the episode Bria talks about her informative TikTok's explaining various points on Hirschsprung's Disease and how this has helped families from all over the world.
Enjoy the episode.
Follow Bria - Instagram - @itsbeeingbriaTikTok - @beeingbria

Musician and Composer Tony talks about his life with a variety of conditions, including Hirschsprung's.Having interviewed Tony's brother James, we discover that both men's lives have been very different, with Tony also being lactose intolerant, having type 1 diabetes and Hashimoto's disease.We also chat about Tony's accomplishments in music, as well as what he's currently working on.
Follow Tony:-Instagram:- @tonybrattolicomposerTikTok:- @tonybrattoli

A tricky and emotional episode as Shakeyra tells her story with Hirschsprung's from the beginning. Towards the end we talk about what good days and bad days look like for Shakeyra and her Hirschsprung's.
Follow Shakeyra - @shakeyraloving_life24

Today I chat with Ben Jevans and Georgina Merckel to make a special announcement regarding a Hirschsprung's event on Saturday 4th July 2026.
Listen to find out what it is and all the details.
Ticket link:-https://www.ucl.ac.uk/population-health-sciences/events/2026/jul/ucl-hirschsprung-disease-awareness-day
HD study discussed in the episode:-https://fg.bmj.com/content/early/2026/01/02/flgastro-2025-103478.info

Not only was Jack diagnosed with Hirschsprung's Disease, (a 1 in 5000 chance) he was also diagnosed earlier with Duodenal Atresia (a 1 in 6000 chance) thus making one of the rarest combinations ever seen on the podcast.Annalise talks through Jack's story, including his very premature birth and delayed diagnosis, whilst Annalise later talks about how he is thriving now.
Follow Annalise - @annalisekatherine

An extraordinary story unfolds as 24 year-old Hana wasn't diagnosed with Hirschsprung's until 22 years of age, having gone through many years of frustration and gaslighting.
We also chat about ostomy surgery and how Hana's life has improved since the operation 2 years ago.

Charli tells the story of her 3 year old son with Hirschsprung's, with a difficult initial diagnosis, but a positive look towards the future.Despite a hospital mix-up, and being told that Hirschsprung's was 99% not in Teddy's future, Charli advocated hard and listened to her motherly instincts to make sure she had the right outcome for her child.Enjoy the episode.Follow Charli - @charli_warriner

Hannah joins me to talk about her 5 month old son Oliver and his story with Hirschsprung's. With no family history of Hirschsprung's, the diagnosis obviously came as a shock, especially with a bout of Enterocolitis in January.Hannah also explains her thoughts and feeling on surgery as well as what's next for the future.

James is an Actor and Screenwriter from LA, who shares his incredibly raw and honest account of his life with Hirschsprung's from the very start.With over 20 surgeries before the age of 6 as well as his older brother having Hirschsprung's, James mentions how this affected him in later life as we discuss the mental impact of the condition.Please enjoy the episode

In this episode myself, Faye and Elle will talk about the new parent support group, specific to Hirschsprung's that's coming soon
We will discuss:-- What is the parent support group- How did it all come about- How is it going to work
Please enjoy the episode