After giving birth just 11 weeks ago, Sarah joins me to talk about the whirlwind of the last few months!Sarah is also a Nurse Practitioner, specialising in gastroenterology, so comes at the subject of being a mum with a Hirschsprung's child from a unique perspective.With Leo's surgery in a couple of weeks, Sarah talks about her anxiety as a new mum preparing for his pull-through.

Emily tells the story of her 5 1/2 year old son, who is also a twin, and his journey with Hirschsprung's Disease. We talk about the late diagnosis, and how parental instinct kicked in when Emily and her husband realised something wasn't quite right.A difficult experience with salmonella a few months ago kept Leo in hospital for 5 days as Emily recounts how difficult this was for her twins.Please enjoy the episodeFollow Emily - @theemilyarner

We follow straight on from the first part as we chat through the rest of Elodie's Hirschsprung's story, including Laura's family history when it comes to this condition.
As we talk through the family history it shows how different Hirschsprung's can be in each individual.

In an emotional first part, both Laura and Ed tell the story of their daughter Elodie and her remarkable Hirschsprung's battle.We start from the beginning with a litany of conditions that Elodie was born with including, Congenital malrotation of Intestine, Ultra-short Bowel Syndrome and Long Segment Hirschsprung's Disease.We talk about how all of these conditions were discovered and the procedures that took place in order to help Elodie.
This is an episode full of resiliency, with part 2 out next week

Karen talks about her 19 year old son Kai, and his experience with Hirschsprung's, Autism and ADHD as her starts to find a career.We chat about Kai's major passion in life of creative writing, and his determination to succeed in this field.Follow Karen:- TikTok - @embracewellnessclinicIG - well_its_k

**** NEW AND IMPROVED****This is the complete introduction of my podcast covering four different topics:-
1 - What is Hirschsprung's Disease?, including symptoms and potential treatments2 - Who am I?3 - Why am I doing this podcast?4 - What to expect from the show?
This intro is far more relevant than the original made in 2024, and will hopefully give everyone a better starting point.
Follow me on Facebook, Instagram and TikTok - @toms_hirschsprungs_podcast
Contact me on socials or via email - [email protected]

Multiple time marathon finisher and Bloomberg CFO Mark Schulz, joins me to celebrate the podcasts second birthday as he talks through his extraordinary family lineage dating back to the 1800's!As well as having short segment Hirschsprung's, Mark is also a father to his 3 year old son Remy who has Total Colonic Hirschsprung's, and we talk about his role in making sure that Remy is a happy, healthy child.Mark also provides an update from his wife Sarah's episode on the amount of money raised from the 5K Race For Every Child, which will go to providing vital supplies for children with Hirschsprung's Disease.Enjoy the episode!

Professional Doula and mum of 4, Tiffany, joins me to talk about her son and his Hirschsprung's diagnosis.
A very interesting story of Hirschsprung's management without surgery, and Tiffany's reasons for doing so.
We also chat about potential stem cell therapy and what the future may hold for Hirschsprung's patients moving forward.
Enjoy the episode.

Gemma bravely shares the story of her 11 month old son Rowan, as we delve into the often unspoken topic on parental mental health when it comes to having a child diagnosed with a complex medical condition.
We also talk about how to find information on Hirschsprung's and the importance of having a community, as it can be a very lonely place for parents.
Please enjoy the episode!
Merry Christmas!!!

With no family history of Hirschsprung's Lillie talks through her son's 8 month journey with this condition.
We discuss hospital life, and how to navigate the challenging medical terms of a rare disease, as well as passing time when it comes to surgery.
Both Lillie and her wife had never heard of Hirschsprung's, but after some initial difficulties we talk about how well Oakley is doing now.