Tourette's Podcast

Tourette's Podcast

By Geeks RisingSociety & CultureHealth & Fitness
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Tourette's Podcast episodes

  • Quick Announcement! Let's Connect at the Sunshine Summit!

    So you might've heard talk about the Sunshine Summit, an online event that's all about making connections and is coming right up at https://www.sunshinesummit.live/. I, Ben, am one of the guests and I'd love to interact with you. My part of the summit (again, livestreamed) will be Monday, Aug. 12, at 9 p.m. EDT. Heather Welch, an amazing podcaster who organizes the summit, will be talking with me, but she'll also be reading your questions to me, and they can be about anything. Be thinking! Join me! Let's communicate! ((And stay tuned for Season 4!))

    3 min
  • S3 (FINALE) - Episode 14 - To Any Average Viewer

    If you watched the recent season of Survivor: Edge of Extinction, you'll recall notably energetic contestant Wendy Diaz. Wendy joins us on this episode, the finale to Season 3, and opens up about her life with Tourette Syndrome through rapid-pace honesty. We discuss her portrayal and how she thought the show handled her TS; Tourette hyperpower; aversion to sleep; social weirdness; strange takes about TS (from a large TV audience); being known for more than your TS; and trading tics, including a "sign of the cross" she ended up giving Ben. Plus: Great answers to the question about jury duty with TS; a Tourettic race-car driver; a thoughtful fundraiser; and something big that happened to Ben this past week. This episode closes out Season 3, but work is already underway on the next one, and there's plenty happening in the interim. Updates and more at tourettespodcast.com. 

    Roundup: 

    Website: https://www.tourettespodcast.com/     Twitter: https://twitter.com/TourettesPod     Instagram: https://www.instagram.com/tourettespodcast/     Support the podcast: https://www.patreon.com/tourettespodcast   Tourette’s Podcast Discussion Group: https://www.facebook.com/groups/664680327265761/ 

    1 hr 11 min
  • S3 - Episode 13 - Rusties and Ralphies Per Minute

    An episode you'll love with guest Dylan Frost of the UK, whose story of Tourette Syndrome is fairly different than most. Its led him to question convention while he works as an advocate (a prolific writer on Quora) for the community. He also brings a favorite analogy for what it's like living with the disorder. Plus: listener questions and a truly, solidly great TS art project. 

    Dylan Frost on Twitter https://twitter.com/DylanFrost14

    Writing about how Tourettes Action helped him find funding for CBIT https://www.tourettes-action.org.uk/blog-107-.html

    Website: https://www.tourettespodcast.com/   Twitter: https://twitter.com/TourettesPod   Instagram: https://www.instagram.com/tourettespodcast/   Support the podcast: https://www.patreon.com/tourettespodcast Tourette’s Podcast Discussion Group: https://www.facebook.com/groups/664680327265761/

    51 min
  • S3 - Episode 12 - Imitating a Snake
    Peter Zhao was born and raised through boyhood in China before he moved to the U.S. and became the affable, freestyle-rapping online presence many of you know as Fabulously_Tourette. Peter, while multitasking (finishing up a bowl of soup, later changing his child's diaper and performing other home activites during the conversation) takes us from his youth and early family dynamics to establishing himself in New York and later incorporating Tourette Syndrome into his persona. He used to struggle with it; he's now content. Peter also gives an interesting explanation of his coprolalia, discusses his own tic-management preferences, and talks with Ben about racial diversity in TS. A rewarding episode covering territory Tourette's Podcast hasn't hit before.    SENSORY NOTE: While it's an awesome conversation, there's some background noise in parts of this episode, as we caught our guest in his duties as a father caring for two children at his home. Sometimes, different background sounds from the phone call overlap and could sound a little chaotic to people sensitive to such things. That doesn't occur throughout the episode, but there are a few, limited parts that get a bit noisy. The prevalence and epidemiology of Gilles de la Tourette syndrome. Part 2: tentative explanations for differing prevalence figures in GTS, including the possible effects of psychopathology, aetiology, cultural differences, and differing phenotypes. https://www.ncbi.nlm.nih.gov/pubmed/18940378 (Thanks, Dr. Conelea!)   A National Profile of Tourette Syndrome, 2011–2012 https://journals.lww.com/jrnldbp/Abstract/2014/06000/A_National_Profile_of_Tourette_Syndrome,_2011_2012.2.aspx   Sunshine Summit August 2019 Livestream! Think of questions to ask Ben on Aug. 12 at 9 p.m EDT. https://www.sunshinesummit.live/   Roundup: Website: https://www.tourettespodcast.com/  Twitter: https://twitter.com/TourettesPod  Instagram: https://www.instagram.com/tourettespodcast/  Support the podcast: https://www.patreon.com/tourettespodcast Tourette’s Podcast Discussion Group: https://www.facebook.com/groups/664680327265761/
    1 hr 7 min
  • S3 - Episode 11 - Everything Was a Laser Noise

    As Tourette Awareness Month continues, we hear Jason from Australia, a guest as warm and comforting as hot chocolate, throw down some seriously quotable stuff here about accepting Tourette Syndrome, laughing about it from time to time, and being a darn good parent. Medication, meditation, gaming, mentoring and more discussed.

    Plus: a couple special announcements.

    But we start with a question -- should we rename Tourette Syndrome? Yes, that question is going around.

    Jason's show, Experience This 2 https://www.twitch.tv/experiencethis2 

    "Rename Tourette Syndrome?" https://www.tourettespodcast.com/blog/rename-tourette-syndrome 

    Sunshine & Powercuts (Tourette's Podcast will be part of its August 2019 Summit) https://www.sunshineandpowercuts.com/ 

     

    1 hr 13 min
  • S3 - Episode 10 - Exorcism

    Clay Jones, M.D., on Science-Based Medicine https://sciencebasedmedicine.org/author/clayjones/

    On Twitter https://twitter.com/SBMPediatrics

    New Tourette's Podcast website https://www.tourettespodcast.com/

    Support the show https://www.patreon.com/tourettespodcast

    57 min
  • S3 - Episode 9 - Not Real Housewives of Tourette or Anything

    Packed episode with an amazing guest -- one you might already know. Kristin Moorehead has been on A&E's "Raising Tourette's" and continues strong advocacy for the community with the kind of humor that connects. Great lessons in advocacy, finding resources, and having a laugh. Plus: A non-Touretter question answered and followups to recent haps in TS science.

    A Patient-Centered Perspective on the Future of Tic Disorder Diagnosis: Response to “Tic disorders revisited: Introduction to the term ‘tic spectrum disorders” by Müller-Vahl et al. - https://psyarxiv.com/egknj

    Kristin Moorehead on Twitter - https://twitter.com/K__Moorehead

    Tourette Association of America, "Ben Brown's Story" - https://tourette.org/ben-browns-story/

     

    57 min
  • S3 - Episode 8 - Physics Books For Fun

    In a way, this is a different kind of episode. Liam is only our second non-adult guest, and he brings along his super-supportive mom, Sarah, for an awesome, two-layered perspective on Tourette Syndrome. We hit diagnosis, meds, school, social things, and other intersections with that just-before-high-school age, with solid parental insights. Don't miss their stories. Also, big news in TS treatment. And a new patron thank-you.

    New AAN Guideline for Treating Tourette Syndrome and Other Chronic Tic Disorders: https://www.aan.com/PressRoom/Home/PressRelease/2721

    TV news spot on the guideline https://youtu.be/iAqTbQQ3E78

    Treating Tourette Together Summit https://www.treatingtourettetogether.org/

    Tourette Canada conference info https://tourette.ca/ts-conference-2019/

    https://www.patreon.com/tourettespodcast

    51 min

About Tourette's Podcast

From the publisher's feed

Authentic conversations about Tourette Syndrome, produced by an insider who isn't interested in the ol' one-dimensional take on what it's like to have TS. On each episode, host Ben Brown talks with a…

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