Tourette's Podcast

In the first of a two-part season finale, we've got two special guests -- Tourette Association of America President and CEO Amanda Talty, followed by Matt Capriotti, a scientist whose research is furthering our understanding of TS and its impacts. Talty answers listener questions and talks about changes going at the Tourette Association to better support the TS community of all ages. Capriotti lays out findings from a recent study of life outcomes for people diagnosed with TS. This is massively interesting stuff with loads of points about people, awareness, and where we're headed.

Some Tourette organizations around the world:

https://tourette.org/ 

https://tourette.ca/ 

https://tourette.org.au/ 

http://www.tourettescotland.org/ 

https://www.tourettes-action.org.uk/ 

Study: Long Term Follow-Up of Patients with Tourette's Syndrome https://onlinelibrary.wiley.com/doi/pdf/10.1002/mdc3.12696 

 

 

A portrait photographer whose work lights up disorders including Tourette Syndrome; a fiction author who's written a Tourettic protagonist; and listener feedback on Justin's question. 

Photographer AJ Ouellette, "Invisible Illness Project" - https://annajeanouellette.wixsite.com/ajphotography/invisible-illness-project

Janet McLaughlin, "Different" https://absolutelovepublishing.com/different/

An astronomically great guest, a challenging listener question, and endless coffee. Here we are with Episode 13 of Season 2 -- hard to believe we're this far already.

Podcastage https://www.youtube.com/channel/UCvOU-zTlankT-JjN3ZzvuKA 

Bandrew Says #145 https://directory.libsyn.com/episode/index/show/bandrewsays/id/7609697 

Per holiday travel obligations here, we kinda didn't expect an episode this week. Surprise. Here we have a GREAT conversation with Adrienne, a Touretter who lives in Manchester, England, where she's pursuing a PhD. We hear about her research, her life with TS, a Tourette connection in the family, and, among many other things, getting tattooed amid the urge the tic.

How is music or creativity so often our commonality? On this episode we hang out with Simon AKA Jimmy Humbucker, who traffics music in his personal life and, in his work life, positive words for Tourette Canada, where he has a communications role. FIRST we spend some time on listener feedback, responses to Hilary from the previous episode, and a potential revelation on the ever popular ear-popping tic.

Into the classroom we go, as a teacher with Tourette Syndrome. This week's guest Tristyn teaches high school world history and sends A LOT of kids into the world each year with a better understanding of TS. We reach into her background, diagnosis, how she explains it to her colleagues and students, and how they regard her. First, though, we give you the best listener-submitted analogies for the urge to tic, and then we field a question you can help answer.

We're back, and with a lot of goodwill in our guest this week, Alexi from Ottawa, who works in the craft beer industry. His handling of his own TS is pretty commendable -- though public shame certainly isn't a concern of his. Feeling like there's a lot to learn from this one. Plus: welcoming lots of new listeners, one of whom brings Ben a question to answer about his youth.

Yo! So, when Windows activated an automatic update on my computer on Tuesday, it was a disaster that started a chain of events that ultimately led me to lose all my audio production software -- which I now have to rebuild. No interview files lost, I had all of them backed up, thankfully. Anyhoo, listen to a brief audio message here and we'll be BACK SOON with all new episodes. Thank you so much for your patience. -Ben

Here's an episode that really stands apart at times, with Marie of the Toronto area tracing a past with Tourette moments that surprise and sometimes startle-- though ultimately we'll all agree she's is a total delight to hear from and represents a season highlight. Before we get to Marie, we hear listener feedback (and Carson gets an answer). After Marie, at the end of the episode, a little podcast policy update.

Ben is home after a string of airline flights and keeps in theme by talking with Zach, a flight attendant who has Tourette Syndrome. Zach ALSO has been a counselor at Camp Twitch and Shout, a place where kids with TS can do their thing pressure-free. Zach discusses all this and more. Loads of moments and tic connections.