Megan Nolan is a rare dynamo, channeling her profound resilience and determination into advocacy that's creating real change. After her son's challenging medical journey to get a diagnosis, Megan sprang into action - launching a nonprofit to fund research in just 3 months. And if that wasn't enough, she also created an online magazine, rareparenting.com, to provide much-needed support and resources for the rare disease parenting community.

In this conversation, Megan shares her unwavering commitment to helping other families avoid the struggles she faced. We explore how she balances intensive caregiving with running two organizations, while also prioritizing self-care and maintaining a sense of hope. Megan offers guidance on how to be an supportive ally when your friend is parenting a child with complex medical needs. 

You'll learn:

• How to listen to your intuition and push for answers.
• Why believing you can make a difference is one of the most powerful motivators for taking action.
• How to use  your unique skills and experience to make an impact, like Megan did in the rare disease community.
• Why delegating can be the key to getting it done, whatever your "it" is.
• What kind of help to offer when you want to help a friend in need. 

Learn more about Megan:

Rareparenting.com
Children's Rare Disorder Fund
Megan's Instagram
RareParenting Instagram

Rate, Review, & Follow on Apple Podcasts

"This is my go-to podcast for inspiration and to discover new approaches to embrace the challenges in my life." If that sounds like you, please consider rating and reviewing my show! This helps me reach more people -- just like you -- find strategies and insights to do the things that feel undoable. Click here, scroll to the bottom, tap to rate with five stars, and select “Write a Review.” Then be sure to let me know what you loved most about the episode!

Also, if you haven’t done so already, follow the podcast. Follow now!

Sign up for my newsletter and learn more about these remarkable stories at www.jessicafeinstories.com

Order Jessica's memoir, Breath Taking: A Memoir of Family, Dreams, and Broken Genes

Music credit: Limitless by Bells