I Don't Know How You Do It

Turning Heartbreak Into Action, with Rare Trailblazer Megan Nolan


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Megan Nolan is a rare dynamo, channeling her profound resilience and determination into advocacy that's creating real change. After her son's challenging medical journey to get a diagnosis, Megan sprang into action - launching a nonprofit to fund research in just 3 months. And if that wasn't enough, she also created an online magazine, rareparenting.com, to provide much-needed support and resources for the rare disease parenting community.

In this conversation, Megan shares her unwavering commitment to helping other families avoid the struggles she faced. We explore how she balances intensive caregiving with running two organizations, while also prioritizing self-care and maintaining a sense of hope. Megan offers guidance on how to be an supportive ally when your friend is parenting a child with complex medical needs. 

You'll learn:

  • How to listen to your intuition and push for answers.
  • Why believing you can make a difference is one of the most powerful motivators for taking action.
  • How to use  your unique skills and experience to make an impact, like Megan did in the rare disease community.
  • Why delegating can be the key to getting it done, whatever your "it" is.
  • What kind of help to offer when you want to help a friend in need. 

Learn more about Megan:

Rareparenting.com
Children's Rare Disorder Fund
Megan's Instagram
RareParenting Instagram

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Order Jessica's memoir, Breath Taking: A Memoir of Family, Dreams, and Broken Genes

Watch Jessica's TedX Talk

Music credit: Limitless by Bells

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I Don't Know How You Do ItBy Jessica Fein

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