We are having another discussion to reflect on all of the emotional trauma we experienced from caring for our child going through AML treatment and a bone marrow transplant.

There are no words to describe the proverbial Gut Punch that we get from the cancer returning. The unknown creates a lot of fear and We don't know where we are going to get the strength to do this again. #AML #mentalhealth #XLA

5 Intensive rounds of chemotherapy treatment over 8 months in 2011. Staying in the hospital for 5-6 weeks at a time. Over 240 days in the hospital for a 12 year old. How long did that treatment's remission last? Find out how we celebrated and enjoyed being home for the summer and our son's return to school... but for how long?

We reveal Big news and details around that news. We have a discussion about reactions to the news, our feelings and steps that happened afterwards. Tune in to find out what we learned. We will discuss more details surrounding this at a later episode due to the timeline of our story. We revealed this news a little early in the story so that listeners wouldn't be left hanging, wondering about the results.

#Bruton's #XLA #AML #immunology

We get some lab results that point at our hypothesis possibly having promise. Unfortunately, we were the only ones to feel excited by this and that was disappointing but we persisted anyway, like we always do.

#Brutons #XLA #immunology

In this episode we explain our understanding of how the AML and Bruton's are related and how the chemo is working. We go into further explanation of the information on the white board and what it means to us.

We think something is starting to look suspicious with our son's counts and no one else thinks so. In this episode we are using video clips from the time that our son was in the hospital to show what we were thinking and why we start to think a CURE for Bruton's could be possible. This is part 1 of 4.

#Bruton's #XLA #AML #immunology

We knew round 5 was going to be brutal treatment but we didn't know the length of time in the hospital was going to be so hard. We all had a hard time but our son really was struggling with being in the hospital for so long.

The behaviors and actions are finally interfering with daily life at the hospital so Carlos pushes for getting help. This is our first failed attempt at getting help. Watch to find out why.