What Does It Feel Like

Alicia and Rafa talk about getting laid off, Hurricaine Ian, Elvis and Madonna. Join us for this fun conversation!

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Rafa and Alicia discuss every day topics. This is a fun episode where these two discuss Shark week, new puppies to politics.

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This episode Rafa and Alicia discuss how they are feeling at the start of 2022. Both are feeling good to be back on the podcast after their break.

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Alicia and Rafa talk to Tami about caring for her mother who was diagnosed with dementia. Rafa also shares his experience caring for his mother who is in late stages of Alzheimer's. 

Please find caregiver resources below.

Resources: 
https://adrccares.org/resources/
www.brightfocus.org/alzheimers  
www.alzheimers.org (Alzheimer’s Disease Education and Referral/ADEAR) www.alzforum.org  (Fact sheets, research, medications) 
www.caregiver.org (Fact sheets, behaviors, resources -English, Spanish & Chinese) 
www.caregivers.com 
www.webmd.com (to locate local doctors) 
www.healthgrades.com 
www.needymeds.com  (Discounted prescriptions programs) 
www.benefitscheckup.org (National Council on Aging) 
www.assistedliving.com 
www.aarplifeanswers.com (AARP) 
www.ssa.gov  (Social Security Administration) 
www.medicare.gov  (Medicare site) 
www.nih.gov (National Institutes of Health)

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Alicia and Rafa talk about everyday topics.

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Alicia and Rafa discuss the animal connection.

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Alicia and Rafa talk to Andy and Lynda Gail Wright owners of Makeup and Creative Arts (MCA). This year MCA will host the fifth annual “Straight Men – Real Makeup,” benefit to raise money for the onePULSE Foundation.

Show Information:
Straight Men Real Makeup – 6 p.m. on Sunday, June 6 at HÄOS on Church. Presented by Makeup and Creative Arts and Morphstore.com. Eight straight men will step out of their comfort zone and individually perform a choreographed routine to a song of their choice while dressed in full drag.

Click Here for Tickets.

Donate to OnePulse Foundation: https://onepulsefoundation.org/donate/

MCA : https://makeupca.com/
Morphstore: http://www.morphstore.com/

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Alicia and Rafa talk discuss self care and adding it to your life.

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Rafa and Alicia talk about travel during Covid and beyond.

If you want to watch the unedited version of the podcast check out our YouTube channel at https://youtu.be/EQA-LHci_BQ.

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Alicia and Rafa talk to their friend Juleigh Mayfield about her journey as an Intersex female. This is one of our favorite episode and we enjoyed speaking with Juleigh about her journey.

Check out our podcast on YouTube: https://www.youtube.com/channel/UCoRLheptCBT9am8tbOiVlXQ

Juleigh's Website: https://www.justjuleigh.com/about-juleigh/

About Juleigh - Juleigh Amanda Mayfield was born 47XXY. She has an additional chromosome attached to every pair in her chromosomes chart.  Neither male nor female, but a configuration of both sexes.  She was raised as a male.  With a lack of understanding and education regarding her condition Juleigh struggled with autistic traits, cognitive issues, undiagnosed seizures, learning disabilities, social skills and boundaries.

In addition to being XXY, she was diagnosed with Klinefelter’s Syndrome at the age of 17.  Doctor’s told Juleigh that it was the same thing, but it is not.  Klinefelter’s Syndrome is a disease of the testicle that materializes in XXY males during puberty.  XXY occurs during development in utero.

XXY is usually caused by a disjunction error in meiosis at the earliest stages of conception when the egg has been fertilized.  The additional X can come from either the Mother or the Father. You can be XXY and never develop Klinefelter’s , although NOT developing Kleinfelter’s is rare. Most XXYs identify as male gendered.

Juleigh is currently working on a documentary about her journey and life.  She is trying to advocate for all XXYs.  Not everyone will have to transition but in Juleigh’s case it would extend her life past the 5 year diagnosis the doctors originally gave her.

Tags: #justjuleigh #Intersex #XXY #KlinefeltersSyndrome #friends #lifeafterdisney #lifelongfriends #nobox #acceptence #loveislove #equality #justlove

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