What’s Shakin’?! Podcast

*Not intended for young listeners*

Bree and Grace talk relationships affected by epilepsy. They share stories from the community dealing with the mental, romantic, and sexual aspects of a relationship* when you hav epilepsy. The importance of having a solid support system, whether it be family, friends, partners, or the online epilepsy community is discussed.

First appointments can be overwhelming. What will they tell me? What if we’re not a good match? Don’t worry! Bree is joined again by guest host Allie (@) and Dr. Fernando Cubillos (behind itsyourepilepsy.com) to discuss tips for your first neurology appointment. We answer the questions you sent in and give you some tips to help you prepare for that first appointment.

Grace and Bree are back to discuss a hot topic. Society, specifically social media, is filled with people making fun of seizures. Rappers are incorrectly discussing epilepsy in their music. Dances making fun of seizures are spread by celebrities. Why is this okay? No other group gets treated the way epileptics do with no consequences. We discuss why this may be an issue. What can the community do to fix it? The answer: we will not stay silent.

*We are aware of a name mix-up in this episode, and a note has been added to the end addressing the mix-up.

Bree and Grace are joined by guest host Allie (@allisaurus_flex) to chat with the creator of www.itsyourepilepsy.com (@itsyourepilepsy), Dr. Fernando Cubillos. We discuss why the website was created, all the amazing features it has, and how you, the epilepsy community, have been a big part of its creation!

*REMINDER* What is discussed in this episode is based upon what treatment options are available in the United States.

Bree and Grace talk with Chelle (@chellenotshelly) about traveling with epilepsy. Not only is Chelle a travel nurse, she’s also a hiker!

Chelle discusses hiking, preparing for travel, and coping with an epilepsy diagnosis. Friendships, relationships, and the constantly changing emotions that go along with  epilepsy are discussed.

Meet Robert (@voiceofscars), who not only has epilepsy, but he also has Stevens Johnson Syndrome. Due to being prescribed too much medication, he has endured blisters all over his body, bullying, and more.

We discuss treatment options, including medical marijuana, how we can still lives despite hardships, and raising awareness through social media.

Check out Robert’s weekly meetings on his Instagram!

Follow us on Instagram: @whatsshakinpodcast and Twitter: @whatsshakinpod

Music: “Jump In Line (Shake, Senora)” by Harry Belafonte. RCA Records 1961. We do not own the rights to the music.

Per Copyright Disclaimer under section 107 of the Copyright Act of 1976, allowance is made for “fair use” for purposes such as research, reporting, commentary, criticism, and education. The use of material is not repurposed or meant for profit.

We’re travelling down to South Africa! Health coach Dr. Kate (@drkate.smarthealth) joins Grace and Bree to discuss ways to help improve quality of life while living with epilepsy.After living years with hundreds of seizures a day, she’s found a way to live life to the fullest, while helping others with epilepsy!She discusses mental health, sleeping habits, diet , exercise and other ways to help you feel your best, and not trapped by epilepsy.

Dr. Kate’s Website: drkatehealthcoaching.co

Join Grace and Bree as we travel across the pond (virtually) to talk to Emma (@capturing.epilepsy). We discuss our different kinds of seizures, how epilepsy treatment is different in the UK, and why mental health is so important. Emma even got to send a Christmas card to the Queen talking about epilepsy!

Follow us on Instagram: @whatsshakinpodcast and Twitter: @whatsshakinpod

Music: “Jump In Line (Shake, Senora)” by Harry Belafonte. RCA Records 1961. We do not own the rights to the music.

Per Copyright Disclaimer under section 107 of the Copyright Act of 1976, allowance is made for “fair use” for purposes such as research, reporting, commentary, criticism, and education. The use of material is not repurposed or meant for profit.

Bree and Grace talk with Tionna (@tionnaaura) about developing epilepsy from a head injury. Not only does she have seizures, her auras are almost constant. Not only does she share her story on Instagram, she creates music and art to help her cope with everyday seizures. We find out: What are auras like? What it’s like to know exactly what caused your epilepsy (and still deal with it), and shared seizure stories.

Bree and Grace bring on Max (@maxemorgan) to discuss society’s view of men with epilepsy. We discuss how men with epilepsy can help each other, dating, and the importance of sharing our stories.

*Adult themes and language discussed*

Follow us on Instagram: @whatsshakinpodcast and Twitter: @whatsshakinpod

Music: “Jump In Line (Shake, Senora)” by Harry Belafonte. RCA Records 1961. We do not own the rights to the music.

Per Copyright Disclaimer under section 107 of the Copyright Act of 1976, allowance is made for “fair use” for purposes such as research, reporting, commentary, criticism, and education. The use of material is not repurposed or meant for profit.