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This 4AM STARTED as a traditional When Autumn Comes episode but Suz and Diane got side tracked talking about pie and… well now it’s 4AM.
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Meet Stacie! Mama to Lainey and Calvin. Lainey has a rare genetic disease that can make their day-to-day lives incredibly unpredictable due to her main symptom, recurring attacks of paralysis that can affect one side of the body, the whole body, or even move from side to side. While Lainey’s condition may be rare, the topics in today’s episode are relatable to so many of the families in disabled community.
Topics we talked about that you do not want to miss:
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It has been over a month since Suz and Di saw each other. Today they are reconnecting for the first time and chatting about so many things. Suz shares the details about botox and Lorelei’s Wishbeads Cause Bracelet that is now available, Diane talks about her Garden Elf and skin care products! There is also a lot of rambling but it’s fun rambling so we hope y’all join the convo in the When Autumn Comes Society!
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Today we are sharing a conversation that Diane and I recorded on a whim after a friend sent me a text about her mixed emotions about her daughter’s recent IEP meeting. We chat about struggles with the school system, home based schooling, navigating medically complex children while navigating the school process and... well, germs. This episode was recorded late in June 2021, two weeks before Lorelei died. There are things that were said may be hard from some people to listen to, as it’s almost haunting now, knowing what happened.
Topics we talked about that you do not want to miss:
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Meet Megan! She is a sister with a lot of siblings, three of which are disabled. We are pretty sure Megan is a unicorn example of a sister but we are hopeful there are more out there like her. Megan is real and honest with us, explaining why she feels more comfortable with the disabled community, how she acts as many roles for her siblings and how she faces grief after losing her sister.
Convos you do not want to miss:
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And, if you enjoyed this episode, please leave us a 5 star rating and a review! Thank You!
For the first time ever, Suz and Di meet IN PERSON. They share a bit about their time together and we quickly realize that they are much better at recording separately than together. Sorry for the not-so-stellar audio but it was windy and they were socially distant, on the porch, in the rain, wearing matching Lauren Daigle merch from the concert the night before.
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There are so many different titles we pick up as moms of disabled children: nurse, therapist, teacher, advocate, comforter, and of course, mom. But some of us become frequent flyers in the hospital. We hoped to become soccer moms, but instead we are hospital moms. Today you will meet Aubree as she talks about her three unique and medically complex children, and how they have adjusted and adapted to life as a medical, hospital family.
Topics we talked about that you do not want to miss:
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Don’t forget that for now, as Suz is trying to get back into the swing of things with life, we are flip flopping our traditional WAC episodes with our 4AM content. This week you are getting a candid 4AM Mom Convo about working out, or lack thereof, with special guest, Benji.
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Today we are chatting with Catherine, a pediatric speech-language pathologist. She is one of the most loving and passionate people you will ever chat with and as two moms we are thrilled to hear her perspective from the other side of the therapy sessions.
Topics we talked about that you do not want to miss:
Links and resources:
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September is NICU Awareness Month so this month we wanted to showcase a journey that involved the NICU. Today Georgette talks about her son’s grand entrance, their NICU experience and how her faith carried her through it. She opens up about when she was vulnerable and begged her community to pray for her son. Georgette wrote "Arrival of the Warrior Prince" to share the first year of Benjamin's life and their NICU experience.
Convos we shared that you can’t miss:
Links and resources:
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And, if you enjoyed this episode, please leave us a 5 star rating and a review! Thank You!
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