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What happens when internet friends meet in real life? Does Suz smell bad? Is Katrina super short? Join us to find out!
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Any parent of a child with a rare disease hopes for a cure, a treatment, anything to improve their child's quality of life. We often hear about new developments in medicine for more common illnesses, but are our young zebras forgotten? Is someone doing something to help? Today, Susan gets to speak with Dr Keri-Lyn Kozul, one of the researchers studying the Benji and Lorelei's specific disease. Parents, we hope this episode gives you hope, that there are people working on this, good people who truly care.
Dr Keri-Lyn Kozul works in the Niemi Lab at Wash U in St Louis, Missouri. During her PhD, Dr Kozul was one of the first scientists to define the mechanisms of FBXL 4 disease in 2023. We are sure that you can tell from this episode, Dr Kozul's focus and passion is to help children like Lorelei and Benji, and help find answers for families with FBXL 4 disease.
"Three years ago, we wouldn't even be able to think about these things." -Dr Kozul
Here's what you don't want to miss:
Vote for Dr Kozul!:UMDF Accelerators
Contact Dr Kozul at [email protected] if you have questions about this research.
Touch base with us in the When Autumn Comes Society or send us a DM on Instagram! We'd love to hear from you! While you're at it, consider supporting the podcast .
When Autumn Comes:
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Did Katrina ever make it to America? Stay tuned to find out!
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Make sure you hit SUBSCRIBE so you don't miss out on our upcoming stories of medical and special needs parenting from families like yours.
And, if you enjoyed this episode, please leave us a rating and a review? Thanks!
Our dear friend and former co-host, Diane, used to talk about two things sitting together at the same time without blending the two. Did you know what she meant by that? It seems like it resonated so well with some people, while Suz never fully understood it.
Today, the girls re-visit that concept. They discuss how two very different emotions and experiences can be a part of your life at the same time, without affecting how you experience or process the other. They discuss the uniqueness of this concept as it relates specifically to medical motherhood.
"I guess I understood but I didn't physically understand in my bones until that moment." -Suz
Here's what you don't want to miss:
Referenced in this episode: Welcome to Holland
Touch base with us in the When Autumn Comes Society or send us a DM on Instagram! We'd love to hear from you! While you're at it, consider supporting the podcast .
When Autumn Comes:
WAC Instagram
WAC Facebook Page
Wiggly teeth, shark teeth, new grown up teeth. This is all new in the Geoghegan house.
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Make sure you hit SUBSCRIBE so you don't miss out on our upcoming stories of medical and special needs parenting from families like yours.
And, if you enjoyed this episode, please leave us a rating and a review? Thanks!
According to the google, anxiety is a normal human emotion characterized by feelings of unease, or fear about a future-oriented threat. Anxiety can have physical manifestations, along with mental, and can interfere with daily life. We have spoken about anxiety before. Today, the girls sit down to re-visit the subject. Medical motherhood comes with a whole host of anxiety inducing opportunities.
The girls will discuss their individual experiences with anxiety, including what triggers it, and how they manage.
"I don't have the mental capacity to deal with that stuff, so that box needs to stay shut." -Katrina
Here's what you don't want to miss:
Touch base with us in the When Autumn Comes Society or send us a DM on Instagram! We'd love to hear from you! While you're at it, consider supporting the podcast .
When Autumn Comes:
WAC Instagram
WAC Facebook Page
WAC Society Facebook Page
WAC is a program of the Apricity Hope Project
Apply for a Caregiver Package
We love our listeners. Meeting them in person is always extra special. Kaylee (I hope we spelled your name right,) we are your fan club!
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Make sure you hit SUBSCRIBE so you don't miss out on our upcoming stories of medical and special needs parenting from families like yours.
And, if you enjoyed this episode, please leave us a rating and a review? Thanks!
We have all heard the stories, watched the documentaries. You know the ones…The ones where the mother is injuring her child to make her child appear sick. The child spends a lifetime in hospitals…Of course, these stories are terrible and heartbreaking.
How do these stories affect moms of children with actual diagnoses? Today, Suz and Katrina sit down to discuss. Have they been accused of harming their child? Find out today. When Autumn Comes.
"The wrong answer is Muchausen By Proxy…" -Suz
Here's what you don't want to miss:
Touch base with us in the When Autumn Comes Society or send us a DM on Instagram! We'd love to hear from you! While you're at it, consider supporting the podcast .
When Autumn Comes:
WAC Instagram
WAC Facebook Page
WAC Society Facebook Page
WAC is a program of the Apricity Hope Project
Apply for a Caregiver Package
Now that we know Suz has survived her hysterectomy, it's safe to air this episode…
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Make sure you hit SUBSCRIBE so you don't miss out on our upcoming stories of medical and special needs parenting from families like yours.
And, if you enjoyed this episode, please leave us a rating and a review? Thanks!
Once a year, flamingos flock to Virginia Beach for a weekend. Not real feathered, flying, bird flamingos…Mingo Mommas! These women and their friends and families join together for the most epic camp out fundraising weekend ever, in support of the Apricity Hope Project. This year, Suz packed up not just her camper and a million other things, but also her microphone for camp : Hope Full.
Join us for the first ever live from camp podcast episode. Susan sits down with several alumni of Apricity Hope Project retreats to talk about what AHP and this community mean to them.
"Okay, I just used my scrunchie to clean the pollen off…" -Suz
Here's what you don't want to miss:
Are you in need of community? Let us know in the When Autumn Comes Society or send us a DM on Instagram! We'd love to hear from you! While you're at it, consider supporting the podcast .
When Autumn Comes:
WAC Instagram
WAC Facebook Page
WAC Society Facebook Page
WAC is a program of the Apricity Hope Project
Apply for a Caregiver Package
From the publisher's feed