I’d like to thank everyone who stuck with me during a time when I haven’t shared or written much.
This is the sequel to the first two parts of “When Healing Means Losing Everything,” about my journey towards healing.
Today is my fifty-ninth birthday. It’s July 31st, 2026, and I thought this would be a wonderful occasion to give you an update.
It has been an intense and financially strenuous seven months since I recorded my last update at the beginning of January.
Meanwhile 2026 continued exactly the way 2025 had.
Leaving my home country behind had moved even further out of reach, and the unraveling of every thread in the wild, tangled jumble of my life just progressed.
Together with the events of early January in the US, in Venezuela, and in Greenland too, this pushed me into a six-week stretch full of pain and complete exhaustion.
There were days I basically just lay on the sofa. I could no longer manage grocery shopping, could barely manage my dishes or feed myself.
I had hardly any appetite anyway.
I had headaches and body aches. My skin was sensitive. I had to pee constantly. My temperature ran above what feels comfortable and normal to me. My pulse stayed far too high for my own sense of normal. I could barely sleep anymore.
This lasted almost six weeks in total.
My attempts to get support from the German healthcare system went nowhere. When I had the capacity, I researched what it might be apart from what I already knew and recorded everything I realized.
At the same time, the German Pension Insurance ordered me to attend an appointment for a psychological and physical assessment. Neither of the evaluators got in touch with me, so I followed up. Eventually, I got an evaluation appointment set for March.
My psychiatrist had told me that when he evaluates people for official assessments, it takes him about 60 to 90 minutes of contact.
This roughly matched what I had experienced with the three psychologists, two psychiatrists, and two pain specialists I had consulted independently over the past two years. Each first session had lasted at least 60 minutes, and in one case over 90 minutes.
In the rehab program I attended last year, the physical examination itself took about a quarter of an hour. That’s reasonable too, within range. It’s a standard exam, after all.
So I was quite baffled when I found myself back out on the street after a total of barely 20 minutes with two different people — and that 20 minutes covered the so called psychological interview and the physical exam all at once.
During the examination, I had to correct the medical doctor each time she addressed me as “Frau” (”Mrs.”) Siegmann. Every time, I told her, “Jay Siegmann, please — I am non-binary.” By the third time, I found myself having to explain what non-binary actually means.
I found this absurd: here I was, sitting across from a psychologist in Germany in the year 2026, someone officially appointed to produce a formal assessment. I had assumed that anyone in such a role, a doctor of psychology no less, would already be informed about this.
At the same time, her treatment of me was condescending, degrading, curt, authoritarian, and simply bad. What I regret now, maybe, is not filing a complaint right away, immediately, with the Hesse Medical Association and the Chamber of Psychotherapists against these two people.
I remember standing outside, fuming. I was so worked up and so angry about the way I had been treated.
Today I know that it retraumatized me — across all my traumas, right down to the core trauma. I didn’t know that at the time, though. I only tracked down the last two traumas in the past six weeks.
At the end of March, my brother and I had a notary appointment set up for the selling of my part of the real estate to him.
A week before, he told me he couldn’t make it, because the appraisal wouldn’t be ready yet. We had wrangled back and forth for two months just to land this appointment at all. At one point in between, he told me he hadn’t realized it was so urgent. His conduct, at the very least, weighed on me heavily too.
Then came the answer from the Pension Insurance: I should start a rehab program. But just last year I had broken off a rehab stay after one week, because my health condition deteriorated massively during it. Staying in rehab any longer would have posed a health risk.
This despite my psychiatrist having already assessed, back in February, that I’m neither fit for rehab nor fit for work. He had asked the German Pension Insurance to proceed with the pension application.
I then approached my psychologist. I asked her to issue a corresponding letter. In an email that once again sent me completely up the wall, she answered:
* She couldn’t do that.
* She saw no chance of continuing our work together, since she couldn’t identify sufficient motivation for change in me.
In her entire assessment, she left my body out completely — entirely. As if she had cut me off at the neck and evaluated only how I talk. She even said she thought it would be good for me to take on a new professional challenge. As if I had spent two years talking to her into thin air.
The assessment she reflected back to me lay miles apart from what I knew about myself and from what every other therapist had reflected back to me. It felt like two different continents.
Just as with my brother, though, I managed, through clarity about what my actual needs were and where exactly I felt hurt in that moment, to push back and lay out my position clearly and directly.
In that, I found an incredible sense of freedom.
For the first time, I managed not only to defend myself appropriately in a situation but to name the other person’s failing clearly, on a factual basis.
That was a real success.
Suddenly, a key to at least inner freedom lay right there.
I realized: I can generate my own agency with sufficient clarity about my own position. I can decide over my own life myself. I can and may say when something doesn’t sit right with me — and I have the ability to say it in a way that actually lands with the other person.
She then apologized and sent me a letter worded accordingly, one that ultimately confirmed my inability to attend rehab as well.
At the end of May, though, I got a letter about the rehab from the German Pension Insurance. The rehab measures could only be withdrawn by the employment office, because they had ordered them. A pension application wasn’t indicated.
I went into a tailspin again, right there.
Then I thought: okay. Maybe someone else can help.
In Germany there’s a patient advocacy association that supposedly offers support for cases like mine. My psychiatrist had explicitly recommended it to me.
That turned out completely fruitless, though — counterproductive, really. Telling me there’s nothing I can do isn’t something I count as support. So I fulfilled my civic duty and informed the employment office.
A week later I got a letter back: the employment office invalidated my chronic diagnoses — my chronic mental-health diagnoses as well as the fibromyalgia — as grounds for inability to work, for all time.
Not just for this case, but for every future case too.
Once again I was up the wall.
Going forward, I’m currently not allowed to report sick to the employment office citing these diagnoses. And, in fact, I’m not allowed to report sick at all anymore, because the evaluation and a so-called differential assessment by the employment office had now determined I’m 100 percent fit to work.
I found that very strange.
First, I contacted the patient advocacy association again, and once again I got the message that I had to accept it, that there was nothing I could do, and that they couldn’t help me. So I canceled my membership right there. I still have to pay for a full year, though.
Second, I arranged an emergency appointment with my psychiatrist. His jaw hit the table, literally. He said flat out he was so shocked he didn’t even know what to say about it. Yet he couldn’t think of any solution either.
In my distress, I asked my longtime coach for an emergency session. Everything suddenly felt pointless, and I needed a completely new perspective — while I was actually sitting right in the middle of a full trauma response.
I arrived there. We’ve known each other for over 20 years now, close to 30. We’ve worked intensively together for six years. Half an hour in, she said: Jay, in all the time we’ve worked together, I’ve never seen you fuming like this. What is this rage?
So we traced this root down to its root: the injustice running through my whole life.
I realized that a large part of this rage came from other people believing they can render a verdict on me and my condition — often after knowing me for only a short time. And that their opinion carries many times more weight for the rest of my life than my own does.
Take the case of that March evaluation: it catapulted me right back into a situation where my unemployment benefits were at risk. It’s sending me into basic welfare come October, with no chance at an early pension for incapacity to work. With one stroke of the pen, she essentially invalidated that pension for incapacity to work application right through to my old-age pension.
I’ve defined this as Verfügungsgewalt: when one person can determine another person’s movement and living circumstances, wholly or in part, through their own conduct.
The first trauma I hadn’t yet identified was the trauma of Deutungshoheit: when another person, on whatever qualification, holds the position to judge me in a way that makes their opinion count for more than my own voice and my own lived experience. That an interpretation gets handed to me that I’m required to accept, even though it stands in complete contradiction to what I actually live and experience.
Even though my coach herself didn’t have a direct key or a solution for how I might take this apart — including with the German Pension Insurance and the employment agency — she still pointed me toward a tool. Not handed to me, but pointed out: German bureaucracy already provides for this.
It’s called a Dienst- und Fachaufsichtsbeschwerde — a formal supervisory complaint.
Those are more about quality: were the guidelines followed? Did the staff actually make a genuine effort? Were all the internal guidelines observed, and so on? It’s about whether an internal review confirms the decision came about lawfully, within the guidelines, at all.
I came home and decided: I’m putting my work addiction to productive use for myself.
Over the following week, I researched and pulled the evaluation apart. It’s flawed and incomplete. It accounts for only half the picture and for nothing that would speak in favor of my pension.
All of it got waved off. My pain got downgraded to minor complaints. My trauma: after two years, I should apparently have wrapped it all up and processed it all already. That downgraded my traumas significantly too.
I sat down and challenged the quality of the evaluation and the whole procedure, hard. I filed an objection against the revocation notice, because it claimed that I had refused the rehab. That’s not true, since I had submitted two independent letters declaring me unfit for rehab by medical professionals. I also objected their decision that no pension case will be opened.
The whole matter now sits with an objections committee for further decision. At the same time, I’m continuing to pursue the formal supervisory complaints. They only connect to a decision in my favor indirectly, if serious quality issues are evaluated, which then might produce a reason for re-assessment.
Against both of the assessors — the psychotherapist and the physician — I also filed a very clear professional-conduct complaint with their respective chambers. Against the physician, I additionally filed a discrimination complaint.
I’m waiting on that now.
Alongside all this, I’ve reached clarity: over the course of the next half year, I’m leaving Germany, regardless of how the decision turns out. If the pension is declined, I’ll try to stay afloat with casual work. I hope that freedom from an environment that keeps triggering me will bring me back to myself, and ultimately bring more health: less pain, more creativity. Maybe then I’ll manage to draw on the potentiality I feel within myself in an entirely new way.
I know: I can’t keep working in the field I’ve worked in so far — administration. It just doesn’t work.
I have ideas, though I don’t know how realistic they are.
Right now, my energy reserves are still very low. My concentration isn’t fully there — sometimes sharply limited. And currently it still doesn’t take much to get me to a place where I can’t do anything at all, where I struggle to keep up with my household, and where the sofa beckons all the time.
Warmth is good for me and my body, very much opposed to cold, grey German winter.
In the meantime, one appraisal for the house has come in, within the range we had estimated. The second appraisal should be ready within the next two weeks, early August. Then I can set the appointment with my brother and the notary.
We’ve talked, and my brother is aware: I actually want everything settled by mid-September. He agreed.
So now it truly looks like I will be debt-free by mid-September. Then I will plan my life abroad, regardless of how the pension decision turns out.
That second appraisal is the one that will determine how much financial backing I will have, and how long I might be able to stay afloat without a job. If the pension comes through, everything will be fine. If not, I’ll at least know how much time I have to figure out what I am still able to do, work-wise.
The point is, I have many ideas, I simply cannot discern yet what will be possible with regards to my own capacity.
From my many times abroad, I know that leaving Germany behind almost instantly changed my well-being, my pain condition, and my introverted — and by now rather isolationist — tendencies. Many a person traveling with me remarked, “You are a totally different person,” wherever we went.
I hope that to be true, when I leave Germany somewhere between October and January.
Once the pension fund’s appeals committee decision is in, and if it is not in my favor, I still have the option of filing a lawsuit with the social court to have the decision reviewed. I would genuinely take that route too. I can handle that myself; I don’t need anyone for it. Only from the second instance onward would I need an attorney.
Most of that process would run mostly in writing and would therefore not affect my leaving Germany. Of course, I would have to return briefly if they scheduled another expert evaluation or if a hearing date were to be set. I am grateful for having this option left.
Right now I’m simply waiting on decisions and evaluations.
Since last week I have all my traumas identified. The deepest one I call a legitimacy trauma. It decides who is allowed to speak at all, in which order and who holds the right to exercise Deutungshoheit and Verfügungsgewalt in the first place.
By now, after two years of intensive research, I have the system, as I understand it, laid out in front of me. Once I’ve managed to put it into words the way I understand these systems, I’ll certainly write about it too. It’s what fills most of my days right now. And perhaps this is also where I have arrived for now.
There has always been some kind of restlessness in me. Restlessness and curiosity were probably among the driving forces behind much of what I have done, including the healing work of the past five and a half years.
They kept me moving, kept me asking, kept me looking behind what I had been told about myself, my life, and the systems surrounding me.
The restlessness to leave Germany behind, at least for parts of my life, was already there in January 2021, before I even became Jay. Already then, I was conjuring up ideas about how I might spend longer stretches of my life abroad without even truly knowing why.
By the spring of 2024, this wish to leave Germany and, in some way, leave everything behind had become quite manifest. At the same time, I knew that, even if I had possessed the means to leave there and then, I probably would not have done it. There were still so many traumas, so many things to unpack. Leaving at that point would have felt more like flight than agency.
Now the transformation has already happened.
I have somehow settled, at least for the time being. I have reached something I worked toward throughout these years of healing. One chapter of my life is closing, while the next one has not yet opened.
And already I can feel the restlessness again within me.
It is building toward the leaving. Toward finally arriving, at least for the time being, somewhere beyond the life I have known here. The opening is already there on the horizon, and it is creating a completely new form of restlessness.A very nice and exiting one.
Thank you for watching or reading and staying with me thorough this time. I truly appreciate your support more than I can express.
Lovexo Jay
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