Hey everyone,
This week, in the first episode of Season 3, I sit down withSabrina Ware, an Australian mum living in Dubai, and the incredible mother of Violet and Lily.
Sabrina shares Lily’s story with so much honesty and heart, from the early symptoms that were missed, to the moment everything changed, to the road of recovery they are still walking today.
This is a conversation about advocacy, resilience, and what itreally looks like to keep going when your life is split into “before” and “after”. Sabrina also opens up about the role gratitude has played in carrying her through, and why she chooses to believe in what is still possible, even onthe hardest days.
She also shares the beautiful reason she wrote her book, Holding Onto Our Sparkle, and how storytelling became a way to process the journey, include Lily’s big sister Violet, and connect with other families around the world.
We talk about:
💫 The moment Lily’s sudden decline turned into a life-changing diagnosis.
💫 The shock, guilt, and grief that can come with medical trauma, and what helped Sabrina keep moving.
💫 Advocacy, instinct, and why parents have to trust their gut.
💫Treatment and recovery, including their experience with proton therapy overseas.
💫 The difference between surviving and thriving, and why Sabrina refuses to stop at survival.
💫 Supporting siblings through big family change, and how writing a book became a bridge for connection
💫 Why Sabrina comes back to one word every day: gratitude
This is a powerful episode for mums, carers, and anyone whoneeds a reminder that even in the hardest seasons, hope can still exist.
Follow Sabrina and Lily's journey here!
Lots of love,
Rita
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Disclaimer: the purpose of this podcast is to provideinformation. You must not rely on the information on this podcast as an alternative to speech and language therapy. You must always consult with a Speech Pathologist, GP and/or paediatrician if you have any concerns about your child's communication and/development.