If you only listen to one episode of this podcast, let it be this one. 

I am certain your life will look different to you after you listen to this powerful story, friend. 

Our guest is Dr. Tasha Faruqui. She is a Pediatrician and a mother of three, an author, a speaker and an advocate for parents of medically complex children and those with limited life expectancy. 

Tasha's debut memoir, Keep Your Head Up: A Mother's Story of Chasing Joy in the Face of Grief, was published in September 2025. 

This book fundamentally changed me, dear listener. I strongly recommend you read this book immediately, if not sooner. 

In this conversation, Tasha and I unpack her powerful story of how she and her family have decided "to suck the joy out of life" while facing their middle daughter, Soraya's complex, life-limiting and little known genetic medical disorder. 

Purchase the book here: https://a.co/d/alBbnBz

https://www.tashafaruqui.com/

https://www.instagram.com/thefaruqui5/

Reference:

https://www.rashmischramm.com