2 Mikes Parkinson’s Podcast

Thursday night 5/5/22 at 6:00 on radioparkies.com we spoke Christopher Sutphin otherwise known as cosmosperfect on TikTok. Chris talks about mental Health and Parkinson’s and https://www.parkie.tv/

We have Carol Walton and Stacey Walstrum of the Parkinson's Alliance. Yes there is a walk in NYC this year and a virtual component as well!

Jessica runs Zoom classes for voice and yoga, she' worked with the PD community for over 20 years.

She runs zoom classes for a "Speak Steady" program

Speak Steady Program for people with Parkinson's and other neurologic impairments.

This targeted program is delivered by Licensed Speech-Language Pathologist, Jessica Ackerman MSCCC-SLP, also a Registered Yoga Teacher with a career of experience in Voice and Speech Therapy for neurologic impairments, including LSVT LOUD.  Jessica's breath-based yoga program aims to maximize vocal loudness, breath support for speech, and intelligibility of speech  that so often impact communication effectiveness of people with Parkinson's Disease.

This weekly program focuses on synchronizing basic gentle yoga poses with breath (matching a movement to an inhale and a movement to an exhale). Movements and poses can be achieved in a chair, wheelchair, recliner, standing, or yoga mat.

If/when you have voice issues, this program is highly recommended

Matt Vilardebo has been one of our most popular guests and now he's running for State Representative. Matt as you know has Parkinson's and he wants to leave this world in a better place. Listen in as Matt explains why he's running.

Check out his Facebook page https://www.facebook.com/mvilardebo

Donate to his campaign paypal.me/mattvforfm

RePost of Thursday (4/14/22 show at 6:00 EST on radioparkies.com we have two very special people to the Parkinson’s community, Karl and Angela Robb!

 

They share their amazing journey from meeting in an America on-line chatroom through how they stay strong dealing with PD for over 30 years.

 

This is a fun, inspiring interview, check it out, you’ll enjoy.

 

About Karl

Karl Robb has had Young Onset Parkinson’s disease (PD) for over thirty years. With symptoms since he was seventeen years old, Karl was diagnosed at the age of twenty-three. Now fifty-five, he is a Parkinson’s disease advocate, entrepreneur, inventor, Reiki Master, and author of two books (A Soft Voice in a Noisy World: A Guide to Dealing and Healing with Parkinson’s Disease and Dealing and Healing with Parkinson’s Disease and Other Health Conditions: A Workbook for Body, Mind, and Spirit) with his wife and carepartner, Angela Robb. He has blogged for thirteen years on his website, ASoftVoice.com. He is a Community Team Member to ParkinsonsDisease.net. Karl is a board member of both the Parkinson Voice Project and Parkinson Social Network.

 

About Angela

Angela Robb is Karl’s wife of 25 years, co-editor at ASoftVoice.com, Community Team Member at ParkinsonsDisease.net, and a Reiki Master. Angela has advocated for caregiver issues by sharing her experiences at various regional and national Parkinson’s conferences, writing for the Every Victory Counts manual from the Davis Phinney Foundation, and presenting at the World Parkinson Congress. In 2015, Angela was honored at The White House as a Champion of Change in Parkinson’s Disease.

PODCAST version of Thursday 4/8/22 EST aired LIVE each Thursday on radioparkies.com we talked with Arlene Faulk.

Arlene Faulk is a teacher, writer, storyteller and accomplished business woman. After a years-long struggle to understand and conceal debilitating symptoms as she ascended the corporate ladder, a life-changing zigzag led her to find comfort and healing through Chinese medicine and Tai Chi. She discovered her calling with Tai Chi and has been teaching for more than 20 years.

An award-winning blogger who had a passion for writing from a young age, now Arlene has captured her dramatic personal story in a memoir, Walking on Pins and Needles: A Memoir of Chronic Resilience in the Face of Multiple Sclerosis. Her inspiring story demonstrates how a chronic and debilitating health condition lacks the power to control our lives and stop us from moving in the direction of possibility.

PANEL INCLUDES

Ellen Bookman https://laughingmywaythroughparkinsons.home.blog/.../ell.../

Heather Kennedy

https://www.kathleenkiddo.com/blog/

Teresa Jackson

https://podcasts.apple.com/.../parkinsons.../id1541914877

Joe and Alicia Golomboski remember their father talk about their latest fundraiser for the American Parkinson’s disease Association of Rhode Island

Thursday night 3.25.22 on the YOPN PODCAST we have guests hosts:

Jonathan Braddock author of YOPD Club 1 and 2

Teresa Jackson host of Podcast “Parkinson’s Pathway Pals”

Heather Kennedy podcast host, writer blogger

Mike Achin, athlete, and fundraiser (over 300K for MJFF and APDA) and my co-host for over 5 years

Check it out as we take turns asking blogger and exercise advocate Eric Slominski (PARKYPERSPECTIVE.COM) questions about how he deals with Parkinson’s symptoms and situations.

Also, we have YOPN founder Anna Grill giving updates on the membership drive and the latest happenings with the Young Onset Parkinson’s network.

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Shared with Public

Tonight at 6 on Radioparkies.com the Young Onset Parkinson’s Network Podcast (https://yopn.podbean.com/) is proud to present 2-time Stanley cup champion and all-around great guy Shawn Thornton. In this episode Shawn breaks down as he talks about his grandmothers battle with Parkinson’s, his book “Fighting my way to the top”, his foundation (https://www.thorntonfoundation.org/ ) which raises money for Parkinson’s and Pediatric cancer and why he’s worked with the APDA of Massachusetts for 10 years plus much more. Please see attached tribute to Shawn when he played in Boston for 7 years accompanied by the Drop Kick Murphy’s.

Happy St. Patrick’s Day!https://www.youtube.com/watch?v=APMuw8drN8cSpecial thanks to Bill Patjane Executive Director of the APDA Northeast for setting everything up

SEASON 1 : EPISODE 3

Re-Post from Thursday 3/10/22 on radioparkies.com at 6:00 EST the Young Onset Parkinson’s Network Podcast proudly to spoke with PD advocate extraordinaire Teresa Jackson!

 

Diagnosed in February 2019 Teresa quickly became a tremendous advocate for PD starting with a Mrs. Virginia beauty Pageant where she placed top 10 at 57 years young with Parkinson’s.

 

Next, she authored her book called “Thriving with Parkinson’s – finding Joy after diagnosis” a personal memoir since being diagnosed

 

She didn’t stop there adding a hit Podcast “Parkinson’s Pathway Pals - Tuesdays with Teresa to her resume

 

Today in addition to managing her Podcast, this amazing person is preparing for a bike ride across Virginia (300+ Miles) raising awareness and funds for Parkinson’s research

 

To top it all off she manages to exercise 14-16 hours a week!

Catch the LIVE show Thursday's 6:00 on radioparkies.com

PODCAST: https://www.buzzsprout.com/1386772

FUNDRAISER: https://www.facebook.com/donate/1664174550641619/