2 Mikes Parkinson’s Podcast

RE-POST OF THURSDAY 3/3/22 SHOW ON RAIOPARKIES.COM

Heather Kennedy, new co host Ellen Bookman and I, Interview author Michael Murray about his new book “My Pain-Body Solution” A Journey to the Other Side of Suffering which can be purchased on the website mypainbodysolution.com

About the book

MICHAEL J. MURRAY’S powerful memoir chronicles his difficult battle to conquer his undiagnosed pain. Murray confides his emotional torment and near collapse as numerous doctors promise relief but only deliver ineffective treatments, contradicting diagnoses, and often dispassionate care. In the end, Murray’s chance discovery in a book on back pain leads to a dawning awareness of the emotional root of his near-constant agony. As he digs deeper into this line of medicine and therapy—and his past—he uncovers the deep connection between mind and body, the healing power of outdoor pursuits and connecting with nature, and the inspiring, innovative methods that can cure physical and emotional pain.

But first up we have Gavin Mogan, Russ Parker, Laura Olmos, Eric Slominski and Nathan Lee Ward talk about why they’re going to Oaxaca, Mexico this April starting on the 19th. They’re looking to learn about their PD culture and see where they can help

RePost from LIVE show, Thursday February 24, 2022 6:00 on radioparkies.com for our first podcast as YOPN "living well starts here" podcast.

Tonight we speak with Young Onset Parkinson's Network (YOPN) founder Anna Brown Grill about the latest and greatest updates concerning the YOPN.

Also, we speak with board members and fellow Parkinson's fighters Jeremy Likeness and Mark Kohus, they tell their PD story and address why they joined the YOPN board.

About today's guests:

Anna Grill is the Founder of Young Onset Parkinson’s Network (YOPN). She was on the fast track as a sales executive at a Fortune 200 company, and the youngest and only woman on the executive team when she was diagnosed with Young Onset Parkinson’s Disease (YOPD) in 2007 at the age of 38.

Jeremy Likness has been a professional technology and software developer for over three decades. Currently, Jeremy is the Senior Program Manager for .NET Data at Microsoft where his personal mission is to empower developers to be their best. Prior to his current position, Jeremy helped kickstart the technology and software development efforts for several startups that ultimately grew into multi-million and multi-billion-dollar corporations.

YOPN board member, Mark C. Kohus, is a Senior Vice President and Group Manager with Fidelity Investments. With more than 24 years of experience working in the financial services field, Mark has held a variety of leadership roles including project management, relationship management and supporting operations.

RePost of Thursday 2.17.22 aired live on radioparkies.com

 

Heather, Gavin, and I had a great chat with Colonel Guy Deacon, Guy was diagnosed with PD over 11 years ago. He is very honest and show's his passion to spread awareness during this interview. I loved listening back to his incredible story and I hope you will enjoy as well!

 

This spring, Colonel Guy Deacon CBE will be driving an incredible 7,000 miles across Africa, from Sierra Leone to Cape Town, to raise vital awareness for Parkinson’s and the need for research into the condition that affects the lives of so many people worldwide. Guy, who was diagnosed with Parkinson’s over 11 years ago will mostly be traveling alone. He began his epic expedition across Saharan Africa in November 2019 which was put on hold due to COVID. Fast forward to 2022 and Guy is ready to continue his journey throughout Africa.

 

If you would like to contribute, just click the link below, the cost of the journey he is covering himself, the monies raised will support the creation of a documentary that will be used worldwide to raise awareness of Parkinson's.

 

https://www.indiegogo.com/projects/freetown-to-cape-town-with-parkinson-s-disease--2?fbclid=IwAR2OETuGlbvzsyWGgXBvv6q9bU_9d4SgA8CZLSuNLbn8NloiontCs_co55w#/

Thursday (2/10/22) at 6:00 EST on radioparkies.com we spoke with Becca Miller PhD. Becca talks about Parkinson's medication and hospital stays, and the way to fix this problem. She shares her personal story plus much more.

 

 She co-authored the book, Deprescribing in Psychiatry, published by Oxford University Press. Becca was diagnosed with Young Onset Parkinson’s Disease, at age 39 when her daughter was 9 months old, and after living with symptoms undiagnosed for 10 years prior. She has served as a delegate and spoken on YOPD and parenting at the World Parkinson Congress in Portland, OR and Kyoto, Japan.

 

Rebecca (Becca) Miller, Ph.D., is a licensed clinical psychologist and Associate Professor at the Yale School of Medicine, Department of Psychiatry, New Haven CT, USA. She received her MA and PhD in Clinical Psychology from Long Island University, Brooklyn, and her BA from Barnard College.

Matthew Farrer, Ph.D., along with special guest host Gaynor Edwards  joined us on radioparkies.com (Thursday 02.03.22) at 6:00 EST.

Dr. Farrer, internationally recognized for his work on the genetics of Parkinson’s disease, currently works at the University of Florida where he is a professor of Neurology. He is a medical and populist geneticist by training and a neurologist by design.

This interview covers why he focused on Parkinson’s (specifically YOPD), alpha synuclein and much more!

Matt and Gaynor are working together with the World Parkinson Congress - along with other advocates and researchers to further information and research into young onset PD. They hope to have a significant presence at Barcelona in 2023.

Re-Post of Thursday 1.20.22 show on radioparkies.com

Mike Heather and I have a great discussion with Jonathan Braddock about his 2nd book “WELCOME TO THE YOPD CLUB”.

Like the first book Jonathan interviews 10 inspirational people with Parkinson’s from around the world and tells their stories.

In this Chat with  Jon we discussed who he’s interviewed, how people he’s interviewed have helped him, ways to manage anxiety, the importance of laughter and much more

Join us LIVE every Thursday at 6:00

Follow us on apple https://podcasts.apple.com/us/podcast/2-mikes-parkinsons-podcast/id1537782063 or just about all other major podcast sites

RePost from Thursday 01.23.22 interview

Robert Cochrane, an award-winning filmmaker, with numerous narrative and documentary features to his credit. His touching relationship with his father who has Parkinson’s was the inspiration for Robert’s Parkinson’s-themed documentary series, Boys of Summer. He is a Ph.D. student at the University of Nevada, Las Vegas (UNLV) studying the effect of improvisation on Parkinson’s Disease and Co-Owner of ComedySportz Las Vegas, which is part of an internationally-acclaimed improvisation league.

The majority of this interview we discuss the benefits that improv has on parkinson’s 

To find out more including how you can participate, go to Robert's website, www.yesandexercise.com

RePost of Thursday 01.13.22 on RADIOPARKIES.COM

We start at 6:00 EST with Brett Miller

Brett is the founder and owner of 110 Fitness (https://110fitness.org/) in Rockland, Massachusetts. Brett is passionate about adaptive fitness and inspiring the best in everyone he meets. The mission of his wellness design is to set a new standard for the world in the “fight back” against Parkinson’s Disease through holistic and fitness-based approaches.

Brett also serves as an ambassador for the Michael J. Fox Foundation for Parkinson’s Research and the Davis Phinney Foundation.

This interview we talk about his inspirational book “It's a Beautiful Day to Save Lives: A Medic's Journey to His Destiny” and the latest and greatest happenings with 110 Fitness

Purchase at https://www.amazon.com/Its-Beautiful-Day.../dp/1665524650

Thursday 12.23.21at 6:00 EST on Radioparkies.com we had a conversation with Karen Frank.

Karen is a retired Certified Registered Nurse Anesthetist and diagnosed with Parkinson’s in 2018

She’s been working with the American Parkinson’s Disease Association starting a Young Onset Support Group.

Additionally, she’s also with the Davis Phinney ambassadorship program

Karen co-founded along with Beca Miller and Kat Hill, Hospital Equity for those living with Parkinson’s (HELP), it’s an advocacy group focused on improving health care for Parkinson’s patients.

Plus, much more!

Get to know Karen and catch some great Christmas tunes after the interview.

Thursday evening at 6:00 on radioparkies.com, the 2 Mikes and Heather spoke with Bill Patjane (Executive Director of the APDA – Massachusetts) and Rebecca Gilbert, MD, PHD

Dr. Gilbert is the Chief Scientific Officer of the American Parkinson Disease Association (https://www.apdaparkinson.org/), the largest grassroots organization dedicated to the fight against Parkinson's disease. She also sees patients at the Movement Disorders Clinic at Bellevue Hospital Center, the flagship public hospital of New York City’s Health and Hospital Corporation.

This interview we cover:

Focused ultrasound and DBS

Gene therapy

Past GDNF Trials

The need for improved clinical trials for women

Medication approval process

Diversity in Parkinson’s

APDA Grant process

New treatments to include

-Inhaled levodopa

-Non motor meds

-Orthostatic Hypotension

-Clinical trials to slow & stop progression

Listen LIVE Thursday evenings @ 6:00 PM on radioparkies.com