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76. How to Navigate End of Life as a Family Caregiver with Betsy Wurzel
Are You Ready to Embark on a Courageous Caregiving Journey?
Betsy Wurzel, is a lifelong caregiver and passionate advocate for cognitive impairment and caregiving.
Betsy's journey started at age 4 when her mother's illness ignited her calling to be a caregiver. She later became an LPN, exploring various roles before marrying Matthew Sloan in 1980.
But it was Matt's memory issues and later diagnosis of Early Onset Alzheimer's that set Betsy on an advocacy mission. She fought relentlessly for Matt's proper diagnosis and end-of-life care, defying initial disbelief due to his age.
In 2018, Betsy's advocacy reached a wider audience when her videos caught the attention of Jeanne White, leading to her own show, "Chatting with Betsy." In 2019, she founded the #KickAlzheimersAss Movement Group on Facebook, ensuring no one faces caregiving alone.
In 2021, Betsy received the Caregiving Visionary Advocate Award, a testament to her unwavering commitment. Her journey continues as she remains a caregiver, driven by the promise she made to Matt.
Discover Betsy's incredible story, her advocacy for cognitive impairment, and her unwavering dedication to caregivers in this impactful episode.
0:03:04 Frustration with Doctors' Denial of Memory Problems
0:07:56 Stunned by Incompetence of Hospice Care System
0:09:57 Struggles with the Healthcare System
0:13:35 Dementia and Pain: Misconceptions and Personal Experience
0:17:49 The Emotional Journey of Loss and Separation
0:19:48 Lack of Compassion and Support in the Healthcare System
0:22:13 The Need for Early Intervention in Caregiving Journey
0:26:22 Celebrating Life and Joy Amidst Caregiving Challenges
0:30:35 Shifting mindset and overcoming negativity in caregiving journey
0:33:54 Grieving with hope and valuable life lessons from caregiving
0:36:19 Betsy's Show - Bringing Visibility to Dementia Caregivers
0:39:18 Challenging the Defeatist Attitude in Healthcare
SOCIAL LINKS: Facebook page: Betsy E.Wurzel Personal https://www.facebook.com/profile.php?id=100005271496390&mibextid=2JQ9oc
#Kick Alzheimer's Ass Movement Group Page https://m.facebook.com/groups/545809349256035/?ref=share&mibextid=I6gGtw
LinkedIn page
https://www.linkedin.com/in/betsy-wurzel-90a7b61a8
Chatting with Betsy on Spreaker
https://www.spreaker.com/show/chatting-with-betsy
Enjoy our podcast? Please take a moment to leave us a review on Apple Podcasts and Spotify —it really supports our show!
https://podcasts.apple.com/us/podcast/dementia-caregiving-for-families/id1716187550
If you would like more information on how to help a parent living with dementia. Join our next free workshop.
https://www.dementiacaregivingmadeeasy.com/wsl
Join our Facebook Group at: https://www.facebook.com/groups/1301886810018410
Become a Founding Member of Our Exclusive Academy!
Only 54 Founding Family Slots Available for Extraordinary Caregivers.
https://www.dementiacaregivingmadeeasy.com/start
View all episodes
By Lizette Cloete, Christian Dementia Coach
4.9
7777 ratings
Are You Ready to Embark on a Courageous Caregiving Journey?
Betsy Wurzel, is a lifelong caregiver and passionate advocate for cognitive impairment and caregiving.
Betsy's journey started at age 4 when her mother's illness ignited her calling to be a caregiver. She later became an LPN, exploring various roles before marrying Matthew Sloan in 1980.
But it was Matt's memory issues and later diagnosis of Early Onset Alzheimer's that set Betsy on an advocacy mission. She fought relentlessly for Matt's proper diagnosis and end-of-life care, defying initial disbelief due to his age.
In 2018, Betsy's advocacy reached a wider audience when her videos caught the attention of Jeanne White, leading to her own show, "Chatting with Betsy." In 2019, she founded the #KickAlzheimersAss Movement Group on Facebook, ensuring no one faces caregiving alone.
In 2021, Betsy received the Caregiving Visionary Advocate Award, a testament to her unwavering commitment. Her journey continues as she remains a caregiver, driven by the promise she made to Matt.
Discover Betsy's incredible story, her advocacy for cognitive impairment, and her unwavering dedication to caregivers in this impactful episode.
0:03:04 Frustration with Doctors' Denial of Memory Problems
0:07:56 Stunned by Incompetence of Hospice Care System
0:09:57 Struggles with the Healthcare System
0:13:35 Dementia and Pain: Misconceptions and Personal Experience
0:17:49 The Emotional Journey of Loss and Separation
0:19:48 Lack of Compassion and Support in the Healthcare System
0:22:13 The Need for Early Intervention in Caregiving Journey
0:26:22 Celebrating Life and Joy Amidst Caregiving Challenges
0:30:35 Shifting mindset and overcoming negativity in caregiving journey
0:33:54 Grieving with hope and valuable life lessons from caregiving
0:36:19 Betsy's Show - Bringing Visibility to Dementia Caregivers
0:39:18 Challenging the Defeatist Attitude in Healthcare
SOCIAL LINKS: Facebook page: Betsy E.Wurzel Personal https://www.facebook.com/profile.php?id=100005271496390&mibextid=2JQ9oc
#Kick Alzheimer's Ass Movement Group Page https://m.facebook.com/groups/545809349256035/?ref=share&mibextid=I6gGtw
LinkedIn page
https://www.linkedin.com/in/betsy-wurzel-90a7b61a8
Chatting with Betsy on Spreaker
https://www.spreaker.com/show/chatting-with-betsy
Enjoy our podcast? Please take a moment to leave us a review on Apple Podcasts and Spotify —it really supports our show!
https://podcasts.apple.com/us/podcast/dementia-caregiving-for-families/id1716187550
If you would like more information on how to help a parent living with dementia. Join our next free workshop.
https://www.dementiacaregivingmadeeasy.com/wsl
Join our Facebook Group at: https://www.facebook.com/groups/1301886810018410
Become a Founding Member of Our Exclusive Academy!
Only 54 Founding Family Slots Available for Extraordinary Caregivers.
https://www.dementiacaregivingmadeeasy.com/start
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