Parents of disabled children are responsible for navigating a number of complex systems, from educational services and accommodation to medical care. Author Kelley Coleman, whose son has an undiagnosed genetic syndrome, says that parenting a disabled child can be hard–but hard is not bad. That's the central framework of her book, Everything No One Tells You About Parenting a Disabled Child, which came out earlier this year. In today's episode, Coleman speaks with Here & Now's Deepa Fernandes about their joyful and difficult parenting moments, how to access the support needed for kids to thrive, and teaching self-advocacy.

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