Rare Mamas Rising: A Rare Disease Podcast

A Rare Adoption Story with Rare Mama Monica Poynter


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RARE MAMAS RISING- EPISODE 33

A Rare Adoption Story with Rare Mama Monica Poynter

In honor of November National Adoption Awareness Month, guest Monica Poynter shares her incredible rare adoption story. Monica is a proud mother to her sons Tag and Trey and daughter Ophelia. Tag and Trey live with a rare bleeding disorder called hemophilia A, in which the blood does not clot properly. With no family history of the condition, their biological son Tag's diagnosis in 2014 came as a complete shock. Fast-forward to 2020, Monica and her husband Josh grew their family by adopting Trey from an orphanage in China after being inspired by a magazine story about another family who had done the same. The brothers became instantly inseparable, bonded by adoption and their shared condition. Now, the family has another exciting addition with the birth of their daughter, Ophelia. In this episode, Monica shares her family's story of adoption, her journey caring for children living with the same rare condition, and words of inspiration for fellow rare mamas!

EPISODE HIGHLIGHTS

  • Tag's Hemophilia A diagnosis

  • How Monica and Josh rose to the challenge of rare parenting

  • The road to Trey's adoption

  • Caring for two children with rare diseases

  • Tag and Trey's bond

  • Advice for families interested in adoption

  • The addition of daughter Ophelia and life today

  • Monica's best learnings for other rare mamas

LINKS

Kentucky Hemophilia Foundation

https://www.kyhemo.org/index.php

Hemophilia Federation of America

https://www.hemophiliafed.org/

Hemlibra®

https://www.hemlibra.com/

CONNECT WITH NIKKI

Website

https://raremamas.com/

Instagram

https://www.instagram.com/Rare_Mamas/

Email

[email protected]

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Rare Mamas Rising: A Rare Disease PodcastBy Nikki McIntosh

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