Come be a fly on the wall as Vanessa chats with her friend Heidi Engelhardt about living an active life with Addison's disease, what it's like to receive a diagnosis at a young age, and the importance of stress dosing for emotional stress and grief.

Plus Heidi and Vanessa share their words of advice for teens and young adults living with adrenal disease.

Heidi is the NADF Colorado Support Group leader. Are you part of our network of support groups? We want to connect you with people who understand what you're going through, whether as a patient or a caregiver. Check out our list of regional and specialized support groups and get signed up today.

Reach out to NADF for support with your adrenal disease: [email protected]

All Things Adrenal’ is sponsored by the National Adrenal Diseases Foundation and Neurocrine.

NADF is non-profit organization for patients and caregivers, with a vision of a world without suffering or death from adrenal disease.

NADF does not practice medicine and does not provide medical advice. NADF is not a medical authority and does not claim to have medical expertise. The information shared in this podcast is for educational purposes only and should not be considered medical advice.

NADF.us

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Erin Foley-Moudry, MPH, the co-president of the NADF board, stops by to chat with Vanessa about her involvement with NADF since her adrenal insufficiency diagnosis at age 19. Erin talks about how the organization has grown and evolved, and how listeners can support NADF to grow further and continue its mission of finding a world without suffering and death from adrenal insufficiency.

Learn more about NADF support groups

Donate to NADF

Connect with Erin via email

Request emergency injection and wallet ID cards

All Things Adrenal’ is sponsored by the National Adrenal Diseases Foundation and Neurocrine.

NADF is non-profit organization for patients and caregivers, with a vision of a world without suffering or death from adrenal disease.

NADF does not practice medicine and does not provide medical advice. NADF is not a medical authority and does not claim to have medical expertise. The information shared in this podcast is for educational purposes only and should not be considered medical advice.

NADF.us

Follow us on social media: Bluesky - Facebook - Instagram - Threads - TikTok - X

Julia Anthony, Founder of SOLUtion Medical, talks with Vanessa about working towards an adrenal insufficiency auto-injector, how having CAH paved the way for her life's work, and the importance of educating in all directions.

Is your emergency kit ready to go? Check NADF's handy list to find out how ready you are.

Learn how to give an emergency Solu-Cortef injection: 

• For adults (video)
• For pediatric patients (video)
• Download PDF instructions
• Order your FREE emergency injection card to carry with your kit

Visit the SOLUtion Med Co website

Follow SOLUtion on Instagram, Facebook, and LinkedIn

All Things Adrenal’ is sponsored by the National Adrenal Diseases Foundation and Neurocrine.

NADF is non-profit organization for patients and caregivers, with a vision of a world without suffering or death from adrenal disease.

NADF does not practice medicine and does not provide medical advice. NADF is not a medical authority and does not claim to have medical expertise. The information shared in this podcast is for educational purposes only and should not be considered medical advice.

NADF.us

Follow us on social media: Bluesky - Facebook - Instagram - Threads - TikTok - X

Vanessa interviews Dr. Liza Lindenberg about Primary Aldosteronism, its effects on blood pressure, and the study Dr. Lindenberg is conducting around diagnosis.

Visit Dr. Lindenberg's study, "Evaluating the Functional Status of the Adrenal Glands With [68Ga]Ga-PentixaFor in Hyperaldosteronism and Hypercortisolism"

Contact the research nurse for the study, Yolanda McKinney.

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Looking for support and community? Join one of NADF's support groups today. Contact [email protected] to learn more.

All Things Adrenal’ is sponsored by the National Adrenal Diseases Foundation and Neurocrine.

NADF is non-profit organization for patients and caregivers, with a vision of a world without suffering or death from adrenal disease.

NADF does not practice medicine and does not provide medical advice. NADF is not a medical authority and does not claim to have medical expertise. The information shared in this podcast is for educational purposes only and should not be considered medical advice.

NADF.us

Follow us on social media: Bluesky - Facebook - Instagram - Threads - TikTok - X

Vanessa introduces listeners to the wide spectrum of experience that is Cushing's Syndrome before diving into a conversation with disability advocate and author Wendy Moses. Wendy generously shares her experience moving from Cushing's syndrome to Addison's disease, and the difference surgery has made in her life.

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Find your people: NADF Support Groups

Orders Wendy's books off her website and use promo code ATA for free shipping!

Follow Wendy's advocacy work with the following foundations:

• Make-A-Wish Foundation
• Cushing's Support and Research Foundation
• Disability Book Week

All Things Adrenal’ is sponsored by the National Adrenal Diseases Foundation and Neurocrine.

NADF is non-profit organization for patients and caregivers, with a vision of a world without suffering or death from adrenal disease.

NADF does not practice medicine and does not provide medical advice. NADF is not a medical authority and does not claim to have medical expertise. The information shared in this podcast is for educational purposes only and should not be considered medical advice.

NADF.us

Follow us on social media: Bluesky - Facebook - Instagram - Threads - TikTok - X

Curious about CAH? Seeking community as a parent or caregiver of an adrenal insufficient child? Vanessa interviews Jenna W. Coura about parenting a child with Congenital Adrenal Hyperplasia, adjusting her vision of parenting futures on the fly, and finding her work in the world of adrenal disease information sharing as a person with fully functioning cortisol.

Buy Jenna's book Welcome to Congenital Adrenal Hyperplasia: A Handbook for New CAH Families  >> Bookshop.org  Amazon.com (All proceeds benefit CAH-related non-profit groups)

Watch Jenna's CAH videos on YouTube >>

Join the MAGIC Foundation on Facebook >>

All Things Adrenal’ is sponsored by the National Adrenal Diseases Foundation and Neurocrine.

NADF is non-profit organization for patients and caregivers, with a vision of a world without suffering or death from adrenal disease.

NADF does not practice medicine and does not provide medical advice. NADF is not a medical authority and does not claim to have medical expertise. The information shared in this podcast is for educational purposes only and should not be considered medical advice.

NADF.us

Follow us on social media: Bluesky - Facebook - Instagram - Threads - TikTok - X

Vanessa interviews Hilary Hodge, author of the forthcoming book The Art of Parenting While Sick, about the additional life skills it takes to manage multiple chronic illnesses, and how foundations and individuals are filling in the gaps between what medical professionals can provide.

Upcoming events with Hilary Hodge

Follow Hilary on Instagram

Follow Vanessa on Instagram and YouTube

NADF's Patient Resources available for download

All Things Adrenal’ is sponsored by the National Adrenal Diseases Foundation and Neurocrine.

NADF is non-profit organization for patients and caregivers, with a vision of a world without suffering or death from adrenal disease.

NADF does not practice medicine and does not provide medical advice. NADF is not a medical authority and does not claim to have medical expertise. The information shared in this podcast is for educational purposes only and should not be considered medical advice.

NADF.us

Follow us on social media: Bluesky - Facebook - Instagram - Threads - TikTok - X

Vanessa interviews Dr. Smita Abraham about the adrenal glands and how they function ... or don't.

Learn more about adrenal diseases on the NADF website.

All Things Adrenal’ is sponsored by the National Adrenal Diseases Foundation and Neurocrine.

NADF is non-profit organization for patients and caregivers, with a vision of a world without suffering or death from adrenal disease.

NADF does not practice medicine and does not provide medical advice. NADF is not a medical authority and does not claim to have medical expertise. The information shared in this podcast is for educational purposes only and should not be considered medical advice.

NADF.us

Follow us on social media: Bluesky - Facebook - Instagram - Threads - TikTok - X

Host Vanessa O'Rourke shares her journey with Addison's disease, from crisis to diagnosis to managing her adrenal insufficiency today.

Follow Vanessa on social media:

Instagram

YouTube

All Things Adrenal’ is sponsored by the National Adrenal Diseases Foundation and Neurocrine.

NADF is non-profit organization for patients and caregivers, with a vision of a world without suffering or death from adrenal disease.

NADF does not practice medicine and does not provide medical advice. NADF is not a medical authority and does not claim to have medical expertise. The information shared in this podcast is for educational purposes only and should not be considered medical advice.

NADF.us

Follow us on social media: Bluesky - Facebook - Instagram - Threads - TikTok - X

Welcome to ‘All Things Adrenal’, a monthly podcast dedicated to education, awareness, and stories from individuals living with adrenal disease.

All Things Adrenal’ is sponsored by the National Adrenal Diseases Foundation and Neurocrine.

NADF is non-profit organization for patients and caregivers, with a vision of a world without suffering or death from adrenal disease.

NADF does not practice medicine and does not provide medical advice. NADF is not a medical authority and does not claim to have medical expertise. The information shared in this podcast is for educational purposes only and should not be considered medical advice.

NADF.us

Follow us on social media: Bluesky - Facebook - Instagram - Threads - TikTok - X