Episode 47- Solving Rubix's cubes while skydiving!?  Meet the incredible Jessa Ponce!  ALOPECIA AWARENESS MONTH 2025!

"If I saw little Jessa in front of me, I would tell her 'snap out of it. Hair loss never can and will stop you. Don't give up because no one can tell your story like you can.'"

On this episode of Alopecia Connection, Frank & Tommy have the pleasure of interviewing Jessa Ponce.  The guys were first introduced to Jessa on a panel during the 40th annual NAAF Conference in June 2025 (Episode 46).  They discuss Jessa's alopecia journey, her support systems, and the upcoming NAAF Walk For Alopecia, on September 27th.  Jessa established a walk team for the fundraiser, which will be based in Southern California.  You can join her team, the San Diego NAAF Squad, and help spread awareness for alopecia!

NAAF Walk For Alopecia

Jessa TED Talk

Connect with Jessa!

Jessa IG: @jessaponce

(24:47) *Friend of the show Lisa Taylor also stops by to let women listeners know about her all new FREE September bootcamp for those seeking a group healing experience in her Alopecia Self-Healing Collective!  Details Here!

Send us a text

Connection is everything!

Remember to rate, review, subscribe and share!

Alopecia Connection Linktree

Alopecia Connection Website

*Discussions on Alopecia Connection are from the personal perspectives and experiences of its host and guests, and should be considered that. Any personal medical decisions should only be made after consultation with one's health care provider.

Episode 46- 40th NAAF Conference Panel with Jesse Ponce and Friends!

On this episode of Alopecia Connection, Frank & Tommy join a discussion panel at the 40th annual NAAF Conference in Chicago!  While the guys were connecting remotely, Jessa Ponce, Kim Roxie, and Sam Guenzburger were live, along with NAAF Board Member Simon Rubenstein as moderator.  Enjoy the discussion on living with alopecia and how Jessa "finds security through her insecurities."  This was also the topic of her TED Talk.

Connect with Jessa, Kim, & Sam!

Jessa Ponce IG: @jessaponce

Kim Roxie IG: @thekimroxie

Sam Guenzburger IG: @samguenz

Send us a text

Connection is everything!

Remember to rate, review, subscribe and share!

Alopecia Connection Linktree

Alopecia Connection Website

*Discussions on Alopecia Connection are from the personal perspectives and experiences of its host and guests, and should be considered that. Any personal medical decisions should only be made after consultation with one's health care provider.

Episode 45- Alopecia Connection Update!

On this episode Frank & Tommy check in to let everyone know what's been going on behind the scenes with Alopecia Connection.  Recently Tommy made his annual trip to the US, and was able to meet up with Frank.  While visiting, they were able to connect with Simon Rubenstein of NAAF to record some video interviews.  Frank & Tommy discuss this and other items regarding the future of the podcast!

Enjoy!

Send us a text

Connection is everything!

Remember to rate, review, subscribe and share!

Alopecia Connection Linktree

Alopecia Connection Website

*Discussions on Alopecia Connection are from the personal perspectives and experiences of its host and guests, and should be considered that. Any personal medical decisions should only be made after consultation with one's health care provider.

Episode 44- A New Gut Health Masterclass with Lisa Taylor!

*Lisa Taylor is conducting a new masterclass on gut health this February 5th and February 12th, 2025.  This episode is a reposting of a previous interview with Lisa where she discusses the masterclass she offered in 2024.  Register for the upcoming course  today!

"We need to learn to become the CEO of our own health, because the truth is we have way more power and way more agency in the trajectory of our  health than we are being led to believe."

Lisa Taylor returns to Alopecia Connection to discuss her new masterclass, all about improving your gut health! 

Register for Lisa's masterclass here: www.reversemyalopecia.com

Join Lisa's free Facebook Community: Alopecia Warriors for Holistic Healing

Learn more about Lisa's self-healing programs: www.yourbestlifewithlisa.com

Send us a text

Connection is everything!

Remember to rate, review, subscribe and share!

Alopecia Connection Linktree

Alopecia Connection Website

*Discussions on Alopecia Connection are from the personal perspectives and experiences of its host and guests, and should be considered that. Any personal medical decisions should only be made after consultation with one's health care provider.

Episode 43- Jennifer Gadosky & The Rocking Your Bald Podcast

We have a very special episode to start 2025!  Frank & Tommy are joined by Jenn Gadosky, host of the Rocking Your Bald podcast, to chat about our different perspectives on several alopecia topics.  This conversation will appear on both the Alopecia Connection and Rocking Your Bald platforms, albeit with slightly different edits.  Enjoy!

Connect with Jenn!

Instagram: @rocking_your_bald ; @nerdicua

Send us a text

Connection is everything!

Remember to rate, review, subscribe and share!

Alopecia Connection Linktree

Alopecia Connection Website

*Discussions on Alopecia Connection are from the personal perspectives and experiences of its host and guests, and should be considered that. Any personal medical decisions should only be made after consultation with one's health care provider.

Episode 42- Reuben Lane, Norwich United FC Goalkeeper!

ALOPECIA AWARENESS MONTH 2024!

On this special Alopecia Awareness Month episode Tommy and Frank welcome Reuben Lane, goalkeeper for the Norwich United FC!  Alopecia Connection is also pleased to announce that the show will be sponsoring Reuben for this 24'-25' season at Norwich United FC!

Enjoy this interview where Reuben speaks about his alopecia journey which started at the age of 15!  Now 22, Reuben discusses how he has embraced his alopecia through charity runs, and playing sports.  He has remained a very confident individual, and enjoys raising alopecia awareness in all his endeavors.

Here's to a great season for Reuben and Norwich United FC!

Connect with Reuben!

Instagram: @reuben.lane_
Twitter: @iamreubenlane

Send us a text

Connection is everything!

Remember to rate, review, subscribe and share!

Alopecia Connection Linktree

Alopecia Connection Website

*Discussions on Alopecia Connection are from the personal perspectives and experiences of its host and guests, and should be considered that. Any personal medical decisions should only be made after consultation with one's health care provider.

Episode 41- Tom Spencer, Alopecia UK Ambassador

"I feel like having (alopecia) gives you a little bit of grit.  Going through hard times in any situation in life, and you make it through and you're still here talking around, making jokes and stuff like that means you got a bit of grit in you.  You build on that grit the more you carry on.  That's not something you can buy, that's something you earn..."     

On this episode of Alopecia Connect we welcome Tom Spencer, a former YouTuber who created impactful content advocating for alopecia in addition to being an ambassador for the charity, Alopecia UK.

Tom shares his personal journey of living with alopecia and now focuses on mental health awareness. He is dedicated to highlighting the emotional challenges of hair loss from a male perspective, offering support and sharing his story to inspire others.

"Tom Talks Alopecia" YouTube Channel

Send us a text

Connection is everything!

Remember to rate, review, subscribe and share!

Alopecia Connection Linktree

Alopecia Connection Website

*Discussions on Alopecia Connection are from the personal perspectives and experiences of its host and guests, and should be considered that. Any personal medical decisions should only be made after consultation with one's health care provider.

Episode 40- Sue Schilling, Alopecia UK

"It's my privilege to be the CEO of Alopecia UK. And because I have that lived alopecia experience from full hair to patchy through to the complete despair of the hairloss journey and now living very well with my alopecia... I feel, I hope that I am a good advocate and good role model because I can see it from multiple directions."

On this episode of Alopecia Connection, we sit down with Sue Schilling, the incredible CEO of Alopecia UK. Sue shares her powerful and emotional journey of living with alopecia since childhood and how this visible difference has shaped her into a passionate advocate and leader for the community and this impactful charity. 

Her dedication to leading a team of devoted staff and volunteers has created a supportive network that transforms lives every day and truly doesn't stop. This heartfelt conversation highlights the incredible impact of community on both Sue’s life and the lives of those affected by alopecia.

This episode was particularly challenging to edit because the conversation was so enriching and insightful!

Connect with Alopecia UK:

• Website: Alopecia UK
• Instagram: @alopeciauk
• Facebook: Alopecia UK
• Email: [email protected] 

How to get Involved:

https://alopecia.org.uk/donate/donate

https://www.alopecia.org.uk/Listing/Category/volunteer-with-us

Resources:

• Parents: Advice for Parents
• Living Well: Living Well with Alopecia
• Men’s Guidance: Men's Resources

Send us a text

Connection is everything!

Remember to rate, review, subscribe and share!

Alopecia Connection Linktree

Alopecia Connection Website

*Discussions on Alopecia Connection are from the personal perspectives and experiences of its host and guests, and should be considered that. Any personal medical decisions should only be made after consultation with one's health care provider.

Episode 39-  TED Talks with Laura Mathias! (Part 2)

"Finding those organizations was one thing, but actually lending my voice straight away to kind of the wider cause, that has become my support.  Meeting those people and giving myself that volunteer role, has also been how I... have healed and come to terms with everything."

On this episode of Alopecia Connection, we're excited to bring part 2 of our chat with Laura Mathias. She's a U.K. based activist, Alopecia U.K. volunteer, ambassador, model, and influencer who shines a light on visible differences and acceptance through her alopecia journey.

Laura recently hit a big milestone by giving a TED Talk in London, where she shared the impact of her journey and the importance of celebrating differences. 

Connect with Laura and hear her TED Talk!

Instagram: @relightalopecia
Linktree: RelightAlopecia
Laura's TED Talk

Send us a text

Connection is everything!

Remember to rate, review, subscribe and share!

Alopecia Connection Linktree

Alopecia Connection Website

*Discussions on Alopecia Connection are from the personal perspectives and experiences of its host and guests, and should be considered that. Any personal medical decisions should only be made after consultation with one's health care provider.

Episode 38- TED Talks with Laura Mathias! (Part 1)

"It is interesting that it took a global pandemic for me to start interrogating those feelings, but also isn't it interesting that while I was locked up in my house  I chose social media to first reveal that photo of my bald head.  I knew that I didn't have to confront anyone at work the next day in person, because I couldn't physically go anywhere.  It was the safest, weirdest way to do it..."

On this episode of Alopecia Connection, we're excited to chat with Laura Mathias. She's a U.K. based activist, Alopecia U.K. volunteer, ambassador, model, and influencer who shines a light on visible differences and acceptance through her alopecia journey.

Laura recently hit a big milestone by giving a TED Talk in London, where she shared the impact of her journey and the importance of celebrating differences. 

Connect with Laura and hear her TED Talk!

Instagram: @relightalopecia
Linktree: RelightAlopecia
Laura's TED Talk

Send us a text

Connection is everything!

Remember to rate, review, subscribe and share!

Alopecia Connection Linktree

Alopecia Connection Website

*Discussions on Alopecia Connection are from the personal perspectives and experiences of its host and guests, and should be considered that. Any personal medical decisions should only be made after consultation with one's health care provider.