Alzheimer's Speaks

Reimaging Dementia – Where We Are Now  

#CreativeDementiaCare  #DementiaCoalition  #JoyofDementia

Today, I will be talking with Mary Fridley is co-founder and coordinator of Reimagining Dementia: A Creative Coalition for Justice and creative lead for The Joy of Dementia (You Gotta Be Kidding) for the East Side Institute, where she is on faculty.

Learn:

1. Has dementia been monetized?
2. What does leading with The Joy of Dementia mean?
3. The quality of healthcare isn't where it used to be. Why is that?
4. Do people actually listen?
5. What is the Reimagining Dementia Coalition?
6. Tell us about the play – “The Joy of Dementia?”
7. What is the Taking It to the Streets Campaign?
8. The article “We're creating an Age of inspiration”

Alzheimer’s Speaks Blog Post

https://alzheimersspeaks.com/reimaging-dementia-where-we-are-now/

Watch the Video Interview Below

https://youtu.be/3R6J9407rPI

Listen and Subscribe to Alzheimer’s Speaks on Apple Podcast

https://podcasts.apple.com/us/podcast/reimaging-dementia-where-we-are-now/id986940432?i=1000738070393

Listen and Subscribe to Alzheimer’s Speaks on Spotify

https://open.spotify.com/episode/1GWJ3OHbsLbklu5tEyVDFX

Other Podcasts

https://pod.link/986940432

Dementia Map

https://dementiamap.com/events/#!event/2025/11/25/alzheimer-apos-s-speaks-open-mic-airs

Contact Mary Fridley

Website  Reimagining Dementia: A Creative Coalition for Justice

Website   www.eastsideinstitute.org/the-joy-of-dementia

Columnist  agebuzz.com

Phone  (929) 285-1691

Email   

Email   

East Side Institute

Founder and Leader, The Joy of Dementia (You Gotta be Kidding!)

Contact Lori La Bey with questions or branding needs at https://www.alzheimersspeaks.com/

Alzheimer's Speaks Radio - Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sound news, not just sound bites, since 2011.

Alzheimer's Speaks is part of the Senior Resource Podcast Network.

Support this Show: https://alzheimersspeaks.com/donate-now/

See omnystudio.com/listener for privacy information.

Lori La Bey, host of Alzheimer’s Speaks, talks with:

Mary Anne Roberto is the Co-Founder of The Memory Connection, a 501(c)(3) nonprofit dedicated to supporting individuals living with dementia and their caregivers through education, engagement, and respite programs. She’s also a Certified Dementia Care Specialist and lifelong advocate for caregiver wellness and community support.

Debbie Axel is the Co-Founder of The Memory Connection and an Entertainment Attorney whose personal experience as a dementia caregiver inspired her to expand access to resources and respite opportunities for families in need.

Learn About:

Elder Well Adult Day

The Memory Connection

Always Home Connected

Website  www.ElderWellAdultDay.com/SantaMonica

Email   [email protected]

Phone  (310) 310-8313

Instagram  @Elder Well_AdultDay

Facebook  @ElderWellSantaMonica

Website  www.TheMemoryConnection.org

Email  [email protected]

Phone  (310) 310-2975

Instagram  @The_Memory_Connection

Facebook  @TheMemoryConnection

Website  https://alwayshomeconnected.com/

Email  [email protected]

Phone  310-905-0053

Instagram @alwayshomeconnected

Facebook  @alwayshomeconnected

LinkedIn 

https://www.linkedin.com/in/mary-anne-roberto-6908a960

Alzheimer’s Speaks Blog Post

https://alzheimersspeaks.com/blog/

Watch the Video Interview Below

https://youtu.be/WqjpLbJ4e-k

Listen and Subscribe to Alzheimer’s Speaks on Apple Podcast

https://podcasts.apple.com/us/podcast/memory-connection-supporting-caregivers-and-families/id986940432?i=1000737204358

Listen and Subscribe to Alzheimer’s Speaks on Spotify

https://open.spotify.com/episode/7ECEqGAspZRrU8z8vfdBSE

Other Podcasts

https://pod.link/986940432

Dementia Map

https://dementiamap.com/events/#!event/2025/11/19/the-memory-connection-supporting-caregivers-and-families-living-with-dementia

Website  www.ElderWellAdultDay.com/SantaMonica

Email   [email protected]

Phone  (310) 310-8313

Instagram  @Elder Well_AdultDay

Facebook  @ElderWellSantaMonica

Website  www.TheMemoryConnection.org

Email  [email protected]

Phone  (310) 310-2975

Instagram  @The_Memory_Connection

Facebook  @TheMemoryConnection

Website  https://alwayshomeconnected.com/

Email  [email protected]

Phone  310-905-0053

Instagram @alwayshomeconnected

Facebook  @alwayshomeconnected

LinkedIn 

https://www.linkedin.com/in/mary-anne-roberto-6908a960

Contact Lori La Bey with questions or branding needs at https://www.alzheimersspeaks.com/

Alzheimer's Speaks Radio - Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sound news, not just sound bites, since 2011.

Alzheimer's Speaks is part of the Senior Resource Podcast Network.

Support this Show: https://alzheimersspeaks.com/donate-now/

See omnystudio.com/listener for privacy information.

Building Legacy and Dignity for the Elderly: Hannan Center Celebrates 100 Years of Service

The Hannan Center story is amazing and shines a light on Luella Hannan, the founder and philanthropist who had a laser focus on understanding community needs, forged roads on how to care way ahead of her time. Despite facing legal challenges, she established a model for supporting older adults that later influenced Social Security, Medicare, and Medicaid.

Our host, Lori La Bey, talks with Vincent Tilford, the President and CEO of the Hannan Center, a Detroit-based nonprofit dedicated to enhancing the quality of life for older adults in metro Detroit. With over 30 years of leadership in housing, community development, and aging services, he has expanded Hannan’s endowment, implemented a fund development plan, and led major facility renovations supporting dementia care and the arts. 

Hannan's Centennial Senior Support Celebration

Vince discussed Hannan's 100-year history of supporting seniors to age in place, including their current programs like the Emerge Art Festival, which demonstrates how art improves health outcomes for older adults. The organization celebrated its anniversary through events at the Detroit Historical Museum, a centenarian celebration featuring interviews and gifts, and an upcoming 70 Over 70 awards ceremony recognizing 70 individuals across seven categories.

Vince emphasized that purpose and community connections are essential for aging well, referencing Blue Zones research, which found that having a sense of purpose and being part of an intergenerational community are key factors for longevity.

Creative Aging at the Hannan Center

Vince discussed the Hannan Center's mission to support seniors through creative aging programs, including the Beyond U curriculum and art gallery, which showcases older adult artists. He highlighted the Emerge Art Festival, a juried competition for artists 55 and older, and emphasized the importance of art as a tool for connection between caregivers and care recipients.

Vince also described the social work program, which provides case management, counseling, and community resource navigation, supporting approximately 1,500 people annually, including an adult day program for those with dementia.

Adult Day Program Operations Overview

Vince discussed the history and operations of an adult day program that opened in January 2020 and closed in March of the same year due to COVID-19, before reopening a year later. The program, which operates from 9 to 5, offers affordable care for individuals with dementia diagnoses and provides significant support for their caregivers through various programming and services.

Vince highlighted the importance of building trust with caregivers and mentioned initiatives like quarterly spa days, support groups, and evidence-based programs from institutions like the Rosalyn Carter Institute and Johns Hopkins University to help caregivers manage challenging behaviors associated with dementia care.

Improving Senior Care Through Relationships

Lori and Vince discussed challenges in adult day care and senior housing, particularly staffing issues and turnover rates. Vince highlighted their program's success in maintaining low turnover through relationship-based care, competitive wages, and training, achieving a client-to-staff ratio of 3-4:1. Lori expressed frustration with the lack of stability and trust from her own experience looking for care for a loved one, as well as comments from members of support groups dealing with all companies, large and small. She emphasized the need for consistent, relationship-focused care, especially for individuals with dementia.

Facility's Approach to Participant Agency

Vince explained that their facility is located on Wayne State University's campus, providing access to interns from the School of Social Work, nursing school, and occupational therapy school for field placements. He emphasized that while they offer various activities, they do not push participants to engage if they are unwilling, instead focusing on increasing the agency of individuals in their program.

Lori highlighted the importance of balancing engagement with relaxation, referencing Harry Urban's experience with dementia, and Vince agreed, stressing that their programming aims to develop skills and talents rather than just keeping participants busy. Vince also discussed their use of occupational therapy to assess participants' well-being and provide caregivers with valuable insights.

Quality Care for Aging Residents

Vince and Lori discussed the importance of providing quality care for older people, emphasizing the need for compassionate and dedicated staff who enjoy working with this demographic. They highlighted how misconceptions about aging can lead to surprising discoveries about residents' capabilities, such as engaging in activities like sewing.

Vince shared an example of a program involving residents making throw pillows, which impressed caregivers and provided residents with a sense of purpose and competence. Both agreed on the significance of understanding the perspective of those living with dementia, referencing movies like "Still Alice" and “A Timeless Love" to illustrate the diverse approaches families take in caring for loved ones with dementia.

Dementia Care and Support Initiatives

Lori and Vince discussed the importance of recognizing and nurturing the capabilities of individuals with dementia, emphasizing the impact of supportive environments and relationships. Vince shared insights about the Daybreak program, which serves 45-50 families annually and supports both participants and caregivers through transitions and behavioral challenges. They explored the value of adapting to life changes, allowing for meaningful connections and shared experiences, and discussed the complexities of Medicare enrollment.

Alzheimer’s Speaks Blog Post

https://alzheimersspeaks.com/redefining-aging-purpose-advocacy-and-community-celebrating-100-years-of-service/

Watch the Video Interview Below

https://youtu.be/MzFIs33PFN0

Listen and Subscribe to Alzheimer’s Speaks on Apple Podcast

https://podcasts.apple.com/us/podcast/redefining-aging-purpose-advocacy-and-community/id986940432?i=1000736327191

Listen and Subscribe to Alzheimer’s Speaks on Spotify

https://open.spotify.com/episode/3iNL7RXEr5ZqbNno4bUJ9n

Other Podcasts

https://pod.link/986940432

Dementia Map

https://dementiamap.com/events/#!event/2025/11/11/redefining-aging-purpose-advocacy-and-community-celebrating-100-years-of-service

Contact The Hannan Center

Website Address  www.hannan.org

Phone 313-833-1300

Facebook @Hannan Center

Instagram @hannancenter

Contact Lori La Bey with questions or branding needs at https://www.alzheimersspeaks.com/

Alzheimer's Speaks Radio - Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sound news, not just sound bites, since 2011.

Alzheimer's Speaks is part of the Senior Resource Podcast Network.

Support this Show: https://alzheimersspeaks.com/donate-now/

See omnystudio.com/listener for privacy information.

Challenging the Behavioral Paradigm:

The Unequivocal Rights of PLWD to Express Themselves

 Lori La Bey and Leah Bisiani explore the importance of dignified, personalised relationship-based support for all individuals living with dementia.

The conversation touches on the need for better support systems as the aging population grows, and the importance of listening to people living with dementia.

The ladies discussed the recent International Dementia and Innovation Conference in Bali, where people with dementia were given a platform to share their lived experiences and provide a voice of advocacy for all people living with dementia.

They discussed the Aashaya Jasri Resort, also in Bali, which offers an “inclusive disability-enabling” holiday experience, designed for people living with dementia and people with disabilities, to enjoy a holiday in paradise.

Dementia Stigma and Respectful Discussion

Leah and Lori discussed the need to change societal perceptions and conditioning about dementia and those who live with it, emphasizing the importance of treating all individuals with dignity and respect by upholding their human rights.

They highlighted how negative portrayals and terminology contribute to stigma and prejudicial bias, and agreed that people with dementia deserve advocacy, support, and understanding.

The conversation also touched on the monetization of fear by big businesses and the importance of addressing normal human responses to unmet needs in relation to the person, “listening” to what they are trying to communicate, as opposed to labelling people living with dementia, and describing changes in behaviour as problematic.

Dementia Support: Person-Centered Approach

Leah and Lori discussed how critical it is to emphasize the importance of understanding changes in behaviour as authentic responses to feeling misunderstood, devalued, and disrespected.

They highlighted the need for person-centered support that addresses both medical, physiological, psychological, cognitive and emotional needs, advocating for a shift in how society perceives people living with dementia.

Lori noted the lack of relationship-focused training in care settings, while Leah agreed and stressed the significance of nurturing relationships through providing inclusive, meaningful engagement for people living with dementia, enabling them to continue life as they know it, and live well with dementia.

Engaging Older Adults with Dignity

Lori and Leah discussed the importance of recognizing and engaging with older adults, particularly those with dementia, to prevent feelings of invisibility and loneliness.

They highlighted the prevalence of undiagnosed depression among older people in residential aged care and the need to differentiate between depression and dementia.

Leah shared her research findings with the results suggesting that 4 older people supposedly living with dementia, post treatment of depression, returned to full cognitive function, and had been misdiagnosed with dementia, when they really had chronic depression.

Lori and Leah emphasized the importance of understanding individual and specific needs and providing environments that promote emotional well-being and a sense of control.

They agreed that aging well initiatives should prioritize maintaining a person’s dignity and quality of life, acknowledging the diversity of the human population, and that “going without is not an option”.

Dementia Communication and Technology

Lori and Leah discussed the challenges faced by individuals with dementia, placed upon them by society, including bullying and misconceptions about their condition. They emphasized the importance of adapting communication methods to accommodate those with dementia, highlighting the significance of non-verbal communication. They also touched on the impact of technology on social interaction, noting a shift towards less face-to-face communication among younger generations, which is going to have a huge effect on future care.

Dementia Communication and Support Strategies

Leah and Lori discussed the importance of understanding and communicating with people who have dementia, highlighting the need to adapt communication methods that respect cognitive capabilities and other age-related conditions that may impact well-being.

Leah shared her experience in managing homes for people living with dementia, where she provided support that enabled people to thrive and live well with dementia, highlighting the success of personalized, relationship-based frameworks that eliminate stress-related responses and promote joy and happiness. They both agreed that these learnings are applicable beyond dementia support, enriching personal and professional lives.

Legacy and Empowerment in Healthcare

Leah and Lori discussed the importance of leaving a legacy in healthcare, emphasizing the need for succession planning and empowering teams.

They shared personal experiences and strategies for creating change, including regular job description reviews and open-door policies.

Leah highlighted the significance of recognizing and nurturing staff, while Lori emphasized the impact of small, consistent changes.

Leah finished off with one of her quotes:

“Evidently, we are accountable for nurturing our own humanity to support civilisation, and value the cultivation of kindness, by respecting our vulnerable older population, and especially people living with dementia.

We must acquire the ability to develop compassion; we should critique isolation and reintroduce community and culture changes, subsequently refining our great power and precision in response to a more humane philosophy.

Reach out and be proud to advocate and provide a voice of strength for the empathy revolution”.

– Leah Bisiani

Alzheimer’s Speaks Blog Post

https://alzheimersspeaks.com/hope-for-dementia-care-wrapped-in-wisdom-compassion/

Watch the Video Interview Below

https://youtu.be/0Wk84l688_M

Listen and Subscribe to Alzheimer’s Speaks on Apple Podcast

https://podcasts.apple.com/us/podcast/hope-for-dementia-care-wrapped-in-wisdom-compassion/id986940432?i=1000735003212

Listen and Subscribe to Alzheimer’s Speaks on Spotify

https://open.spotify.com/episode/5Gg4dV1PulGdDdLvUR41vq

Other Podcasts

https://pod.link/986940432

Dementia Map

https://dementiamap.com/events/#!event/2025/10/28/challenging-the-behavioural-paradigm-the-unequivocal-rights-of-plwd-to-express-themselves

Contact Leah Bisiani

Website   https://upliftingdementia.com/

Instagram    @uplifting_dementia

Contact Lori La Bey with questions or branding needs at https://www.alzheimersspeaks.com/

Alzheimer's Speaks Radio - Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sound news, not just sound bites, since 2011.

Alzheimer's Speaks is part of the Senior Resource Podcast Network.

Support this Show: https://alzheimersspeaks.com/donate-now/

See omnystudio.com/listener for privacy information.

OPEN MIC ON ALZHEIMER'S SPEAKS - OCT 2025

#DementiaCare  #DementiaSupport  #DementiaFamilies

Each month on Alzheimer’s Speaks, we allow individuals and companies to share their services, products, tools, research, insights, and thoughts regarding dementia and caregiving on our OPEN MIC sessions.

OPEN MIC ON ALZHEIMER'S SPEAKS - OCT 2025

Lori La Bey, host of Alzheimer’s Speaks, talks with Pastor Jeanette B. Jordon.  After her husband's diagnosis with Dementia/Alzheimer's in 2016, she began to make dementia education her primary focus and advocacy.

Pastor Jordon is the Founder and CEO of Dementia Dignified Academy, a non-profit organization that provides specialized, data-supported training modules to caregivers, care partners, clinicians, and the community at large, to help them learn how to professionally, respectfully, patiently, creatively, lovingly, and effectively care for those living with various types of Dementias.

Pastor Jordon is also the author of Journey of Compassion - Alzheimer's Caregiving Unveiled (Empathy and Strategies for Dementia Care).

Learn about the services they provide and their fundraising Gala on November 8th, 2025.

Alzheimer's Speaks Blog

https://alzheimersspeaks.com/dementia-dignified-academy-teaching-families-and-professional-to-live-graciously/

Watch the video interview on YouTube

https://youtu.be/0-5hASe7d0Q?si=3qEu-R0FJepl52Jz

Listen and Subscribe to Alzheimer’s Speaks on Apple Podcast

https://podcasts.apple.com/us/podcast/open-mic-on-alzheimers-speaks-oct-2025/id986940432?i=1000733810059

Listen and Subscribe to Alzheimer’s Speaks on Spotify

https://open.spotify.com/episode/1os3x5mK4J7msnfSGvPc6r

Dementia Map Calendar

https://dementiamap.com/events/#!event/2025/10/30/open-mic-on-alzheimer-apos-s-speaks-airs

Other Podcasts

https://pod.link/986940432

If you are interested in being a guest on OPEN MIC, please don’t hesitate to reach out to Lori La Bey, the founder of Alzheimer’s Speaks and the co-founder of Dementia Map.

Here are the dates we will be recording for future shows
Nov. 18th, 2025

Dec 16th, 2025

Contact Dementia Dignified Academy

Website

https://www.dementiada.org/

Register For Gala

https://www.dementiada.org/events

Email

Contact Lori La Bey with questions or branding needs at https://www.alzheimersspeaks.com/

Alzheimer's Speaks Radio - Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sound news, not just sound bites, since 2011.

Alzheimer's Speaks is part of the Senior Resource Podcast Network.

Support this Show: https://alzheimersspeaks.com/donate-now/

See omnystudio.com/listener for privacy information.

Caring Beyond the Diagnosis: Music, Incontinence, and Whole-Person Wellness

#MusicTherapy #incontinencecare #wholepersoncare

Today, Lori La Bey, host of Alzheimer’s Speaks, talks with:

Deanna Vigliotta, National Sales Manager for Seni, a premium brand of incontinence products, has over 30 years of experience leading sales and sales management. A passionate advocate for dignity in aging and a published author, she uses her work in healthcare, sales, and storytelling to improve lives and spark meaningful conversations.

Dr. Rosemary Laird is the Principal Investigator for ClinCloud Clinical Trials, Chief Medical Officer for My Memory Clinic, and an affiliate faculty member at Florida State University School of Medicine. A nationally recognized expert in Alzheimer’s care, she was named the American Geriatrics Society’s Geriatrician of the Year in 2013 and co-authored Take Your Oxygen First, a guide for family caregivers.

Alexis Baker is a board-certified music therapist (MT-BC), certified dementia practitioner (CDP), and founder of Bridgetown Music Therapy.  She is deeply passionate about using music to make a difference in the lives of older adults living with dementia.  Her company's mission is to spark joy and connection through meaningful music engagement.

Learn:

1. What Music Therapy actually is, what therapists do, and how it can improve the lives of those living with dementia, as well as those who care for them. Available online and in-person.
2. About the various stigmas regarding incontinence and how education and the right products can improve the lives of those living with a form of dementia and their care partners.
3. What whole-person care is, why it’s critically important, and get some tips to help you care better.

Alzheimer’s Speaks Blog Post

https://alzheimersspeaks.com/caring-beyond-the-diagnosis-music-incontinence-and-whole-person-wellness/https://alzheimersspeaks.com/caring-beyond-the-diagnosis-music-incontinence-and-whole-person-wellness/

Watch the Video Interview Below

https://youtu.be/nVUFQaf3ab8

Listen and Subscribe to Alzheimer’s Speaks on Apple Podcast

https://podcasts.apple.com/us/podcast/caring-beyond-the-diagnosis-music-incontinence-and/id986940432?i=1000732764981

Listen and Subscribe to Alzheimer’s Speaks on Spotify

https://open.spotify.com/episode/5XYhDvURriEwVoQGSIxknu

Other Podcasts

https://pod.link/986940432

Dementia Map

https://dementiamap.com/events/#!event/2025/10/21/caring-beyond-the-diagnosis-music-incontinence-and-whole-person-wellness

Contact Our Guests:

SENI - Deanna Vigliotta

Website   www.seni-usa.com

Website  www.tzmo-global.com

Email 

YouTube Channel: https://www.youtube.com/@SeniUSACares 

Facebook: https://www.facebook.com/SeniCares

My Memory Clinic - Dr. Rosemary Laird

Website  https://www.mymemoryclinic.org/

Email                       

X/Twitter  https://twitter.com/clinic_memory

FaceBook  @My Memory Clinic 

LinkedIn  https://www.linkedin.com/company/my-memory-clinic/

#MyMemoryClinic

#ClinCloud

Bridgetown Music Therapy - Alexis Baker

Website  bridgetownmt.com

Email    

Facebook  facebook.com/bridgetownmusictherapy

Instagram  instagram.com/bridgetownmusictherapy/

LinkedIn  linkedin.com/company/bridgetownmt/

Contact Lori La Bey with questions or branding needs at https://www.alzheimersspeaks.com/

Alzheimer's Speaks Radio - Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sound news, not just sound bites, since 2011.

Alzheimer's Speaks is part of the Senior Resource Podcast Network.

Support this Show: https://alzheimersspeaks.com/donate-now/

See omnystudio.com/listener for privacy information.

Understanding and Coping with Generational Love and Loss  

Today, Lori La Bey talks with RJ Scarelli, who recently published his 1st children’s book about the effects of Alzheimer’s and Dementia. The book is titled For Those I Knew and Loved Before.  RJ wrote the book in honor of his grandmother, who lost her battle to Alzheimer’s back in 2021, as well as caregivers and families who are either taking care of a loved one with these neurodegenerative diseases or who have lost someone to dementia.

RJ’s story depicts a unique perspective of a young child who grapples with her grandmother’s diminishing condition and rapid memory loss. Ultimately, it gives the reader a vulnerable yet simple way to approach this difficult subject and allows young readers to effectively grapple with watching those they love the most struggle as their journey with Alzheimer’s and Dementia progresses.

RJ hopes his book will help children explore big emotions and unfamiliar changes in a safe, age-appropriate way. His story can open the door for honest conversations about memory loss, while emphasizing that love and connection remain, even when memories fade.

Alzheimer’s Speaks Blog Post

https://alzheimersspeaks.com/understanding-and-coping-with-generational-love-and-loss/

Watch the Video Interview Below

https://youtu.be/dFwhEA3F6Qg

Listen and Subscribe to Alzheimer’s Speaks on Apple Podcast

https://podcasts.apple.com/us/podcast/understanding-and-coping-with-generational-love-and-loss/id986940432?i=1000731754143

Listen and Subscribe to Alzheimer’s Speaks on Spotify

https://open.spotify.com/episode/5EvZUbGzy6DXRNE7eTgf34

Other Podcasts

https://pod.link/986940432

Dementia Map

https://dementiamap.com/events/#!event/2025/10/14/understanding-and-coping-with-generational-love-and-loss

Contact RJ Scarelli 

Instagram @rjsbooksandtales

Tik Tok @rjtheauthor

Email  [email protected]

Website Coming Soon  www.RjsRealityOfWriting.com

Amazon  https://www.amazon.com/Those-Knew-Loved-Before/dp/B0FMPQ5H4Y/ref=sr_1_1?crid=3DRUYCC149V43&dib=eyJ2IjoiMSJ9.l4lG_iH_W4pHJpf2ZEIdSA.JHg71jBWu3dWG4V014UeTXyMEg7BYfb9G7Ow6h3IcFo&dib_tag=se&keywords=For+Those+I+Knew+and+Loved+Before&qid=1759798638&s=books&sprefix=for+those+i+knew+and+loved+before%2Cstripbooks%2C117&sr=1-1

Contact Lori La Bey with questions or branding needs at https://www.alzheimersspeaks.com/

Alzheimer's Speaks Radio - Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sound news, not just sound bites, since 2011.

Alzheimer's Speaks is part of the Senior Resource Podcast Network.

Support this Show: https://alzheimersspeaks.com/donate-now/

See omnystudio.com/listener for privacy information.

Down Syndrome, Regression Disorder, and the Link to Alzheimer's 

Lori La Bey talks with Nancy Poland, who has been a guest on our show before. Through her company, Grace's Message, she is an author, speaker, and trainer. Nancy says, with grace and hope, she provides written and spoken communication on caregiving, loss, and other valuable topics.

Jodie Johson has supported her son Zachary's journey with Down Syndrome and Acute Myelogenous Leukemia at age 6 months. In honor of Zachary, in 1993, Jodie and her husband Scott started The Zachary Johnson Kids with Cancer Fund at Riverwood Healthcare Center, their local hospital foundation. They also give out monetary gifts to kids with cancer in their surrounding area. They have helped over 103 children. Jodie is here today to share about Zachary's diagnosis with Regression Disorder and the link to Alzheimer's. 

Learn:

1. Hear about Jodie’s son, Zachary, and her family's journey with Down Syndrome.
2. Jodie shares early signs of Down Syndrome Regressive Disorder, known as DSRD.
3. Find out how DSRD and Alzheimer's relate to one another.
4. Hear about studies for those diagnosed with Down Syndrome and dementia-related brain disorders, and what the current findings have been.
5. Jodie speaks about what it is like to be an aging caregiver, and what the future looks like knowing Alzheimer's is going to be part of her son's journey.

Alzheimer’s Speaks Blog

https://alzheimersspeaks.com/down-syndrome-regression-disorder-and-the-link-to-alzheimers/

Watch the Video Interview Below

https://youtu.be/6GgNPyNr0e8

Listen and Subscribe to Alzheimer’s Speaks on Apple Podcast

hhttps://podcasts.apple.com/us/podcast/down-syndrome-regression-disorder-and-the-link/id986940432?i=1000729678275

Listen and Subscribe to Alzheimer’s Speaks on Spotify

https://open.spotify.com/episode/2eWoJPQstmN8thLp3Ko222

Go to Podlink to find Your Favorite Podcast platform

https://pod.link/986940432

Dementia Map

https://dementiamap.com/events/#!event/2025/10/2/a-mom-apos-s-life-with-her-young-adult-with-down-syndrome-regression-disorder-and-the-link-to-alzheimer-apos-s

Contact Information

Nancy Poland

Website  www.gracesmessage.com

Email  [email protected]

Jodie Johnson

Email   [email protected]

Contact Lori La Bey with questions or branding needs at www.AlzheimersSpeaks.com

Alzheimer's Speaks Radio - Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sound news, not just sound bites, since 2011.

Alzheimer's Speaks is part of the Senior Resource Podcast Network.

Support this Show: https://alzheimersspeaks.com/donate-now/

See omnystudio.com/listener for privacy information.

 2025 MAUDE'S AWARDS RECIPIENTS

#Dementia #CaregiverSupport #QualityofLife

 Lori La Bey talks with Marilyn Raichle, who is the Executive Director of Maude’s Awards, to highlight a couple of the winners and mention the others in the various categories. Joining the conversation will be two of the winners:

Patti LaFleur is the former care partner to her mom, Linda, who had younger-onset dementia and was a former elementary educator for over 10 years. Patti designs and leads our programs with intentionality, knowledge, and love to connect with family members through sharing the lived experience and profound generosity of spirit that sets the tone for how Lorenzo’s House shows up for families. Lorenzo’s House empowers sons, daughters, children, and their families affected by younger-onset dementia.

Chérie Macri is a seasoned healthcare leader and licensed Occupational Therapist with two decades of experience in the senior living continuum, including skilled nursing, assisted living, and home health care. Her career is marked by a deep commitment to improving the quality of life for older adults through innovative, person-centered care. Cherie is passionate about what she calls “The Living Classroom: An Intergenerational Approach.”

Learn:

1. How and why Maude’s Awards began, and what they offer those living with a form of dementia, their families, and those in the industry.
2. Discuss what the categories and rules are for applying for Maude’s Award.
3. Which organizations won this year and why?
4. Find out which individuals were recognized for making an impact in the dementia arena.
5. Highlighted honorable mentions
6. How to get a digital or physical magazine of those recognized in 2025 by Maude’s Awards.
7. Learn how and why you should apply for the 2026 awards.

Alzheimer’s Speaks Blog Post

https://alzheimersspeaks.com/innovators-in-dementia-care-get-recognized-for-exceptional-work/

Watch the Video Interview Below

https://youtu.be/cXr4jmdARf8

Listen and Subscribe to Alzheimer’s Speaks on Apple Podcast

https://podcasts.apple.com/us/podcast/2025-maudes-awards-recipients/id986940432?i=1000729227578 

Listen and Subscribe to Alzheimer’s Speaks on Spotify

https://open.spotify.com/episode/1vch69E3p8Dw6ZX1BHeJ34

Other Podcasts

https://pod.link/986940432

Dementia Map

https://dementiamap.com/events/#!event/2025/9/30/announcing-the-2025-winners-of-maude-apos-s-awards

Guest Contact Information

Maude’s Awards Website  www.MaudesAwards.org 

Lorenzo’s House Website  lorenzohouse.org

Facebook  https://www.facebook.com/lorenzoshouseofficial

LinkedIn  https://www.linkedin.com/company/lorenzos-house/

Instagram  https://www.instagram.com/lorenzos_house/

X/Twitter  https://x.com/lorenzos_house 

Masonicare Website  https://www.masonicare.org/

FaceBook  https://www.facebook.com/Masonicare

Instagram  masonicarect

LinkedIn  https://www.linkedin.com/company/masonicare/

For Speaking Events  [email protected]

                              www.linkedin.com/in/cherie-macri-8b299148

Contact Lori La Bey with questions or branding needs at https://www.alzheimersspeaks.com/

Alzheimer's Speaks Radio - Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sound news, not just sound bites, since 2011.

Alzheimer's Speaks is part of the Senior Resource Podcast Network.

Support this Show: https://alzheimersspeaks.com/donate-now/

See omnystudio.com/listener for privacy information.

Each month on Alzheimer’s Speaks, we allow individuals and companies to share their services, products, tools, research, insights, and thoughts regarding dementia and caregiving on our OPEN MIC sessions.

Today, Lori La Bey, the host of  Alzheimer's Speaks, talks with Tyler Zanini, Co-founder at MemoryBoard, about their exciting news. Memory Board just launched in June of 2025.  Join us to learn more about the features and how Memory Board can ease your caring journey while increasing connection, communication, and comfort for both your loved one or client, as well as family members and staff.

Go to Memory Board APP, and you can take advantage of their fall special discount of 10% off by using the code FALL10 at checkout.   

Alzheimer’s Speaks Blog Post

https://alzheimersspeaks.com/blog/

 Watch the Video Interview Below

https://youtu.be/Ut3i2MLDa5U

Listen and Subscribe to Alzheimer’s Speaks on Apple Podcast

https://podcasts.apple.com/us/podcast/alzheimers-speaks-open-mic-with-exciting-news-from/id986940432?i=1000728008664

Listen and Subscribe to Alzheimer’s Speaks on Spotify

https://open.spotify.com/episode/7jhyMQkB8i6ZQgZeWbf9yC

Other Podcasts

https://pod.link/986940432

Dementia Map

https://dementiamap.com/events/#!event/2025/9/23/alzheimer-apos-s-speaks-open-mic-airs

Contact Lori La Bey with questions or branding needs at https://www.alzheimersspeaks.com/

Alzheimer's Speaks Radio - Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sound news, not just sound bites, since 2011.

Alzheimer's Speaks is part of the Senior Resource Podcast Network.

If you are interested in being a guest on OPEN MIC, please don’t hesitate to reach out to Lori La Bey,  the founder of Alzheimer’s Speaks and the co-founder of Dementia Map.

Here are the dates we will be recording for future shows

Oct. 21st, 2025
Nov. 18th, 2025
Dec. 16th, 2025

#CaregiverSupport #Technology4Dementia #MemoryBoard #ALzheimers #Dementia

Support this Show: https://alzheimersspeaks.com/donate-now/

See omnystudio.com/listener for privacy information.