Ask The Expert Presents Hemophilia on Balance

This episode of "Ask the Expert" titled "Striking the Right Balance – Why Does it Matter in Hemophilia Treatment?" delves into the concept of rebalancing in hemophilia treatment. Hosted by Amy Bord, the episode features expert insights from Dr. Ben Samuelson Jones, Dr. Patrick Ellsworth, and Dr. Mark Redding. They explain how hemophilia treatments can go beyond merely replacing missing clotting factors by using rebalancing agents that adjust anticoagulant proteins. The conversation emphasizes the importance of understanding the delicate balance between bleeding and clotting in the body, why this knowledge is vital for treatment decisions, and introduces the new class of medications called rebalancing agents. The episode also highlights the role of individual bleeding tendencies in determining appropriate treatments.

Presenting Sponsor:

Presented by Sanofi

Show Notes:

Ask the Expert is produced by Believe Limited, and is found only on the BloodStream Media Podcast Network.

Presented by Sanofi

Subscribe to the Ask the Expert

Did you know BloodStreamMedia.com is your one-stop shop for all podcasts for the bleeding disorders and rare disease community?

→ BloodStreamMedia.com

→ BloodStream Media on Facebook

→ BloodStream Media on Instagram

→ BloodStream Media on LinkedIn

In this episode of 'Ask the Expert,' host Amy Board dives into the clotting cascade and explains how our blood clots. Alongside experts Dr. Ben Samuelson Jones, Dr. Amy Dunn, Dr. Mark Redding, and Dr. Patrick Ellsworth, Amy unpacks the complexity of the hemostatic system, discusses new treatments for hemophilia, and explores both the clotting and regulating parts of this vital bodily function. Tune in to understand how the clotting system works and the exciting potential of new therapies in the field.

Presenting Sponsor:

Presented by Sanofi

Show Notes:

Ask the Expert is produced by Believe Limited, and is found only on the BloodStream Media Podcast Network.

Presented by Sanofi

Subscribe to the Ask the Expert

Did you know BloodStreamMedia.com is your one-stop shop for all podcasts for the bleeding disorders and rare disease community?

→ BloodStreamMedia.com

→ BloodStream Media on Facebook

→ BloodStream Media on Instagram

→ BloodStream Media on LinkedIn

Ask the Expert is back with a twelve-episode deep dive into the evolving landscape of a groundbreaking new class of therapies in hemophilia treatment—rebalancing agents. Through expert insights and discussions, our new season, Hemophilia: On Balance, unpacks complex science to make it accessible and relevant to the hemophilia community. Episodes will be released monthly starting March 2025, with bonus content dropping weekly. Whether you're a patient, caregiver, or healthcare provider, Ask the Expert empowers you to understand the latest advances and make informed decisions about hemophilia care.

Presenting Sponsor:

Presented by Sanofi

Show Notes:

Ask the Expert is produced by Believe Limited, and is found only on the BloodStream Media Podcast Network.

Presented by Sanofi

Subscribe to the Ask the Expert

Did you know BloodStreamMedia.com is your one-stop shop for all podcasts for the bleeding disorders and rare disease community?

→ BloodStreamMedia.com

→ BloodStream Media on Facebook

→ BloodStream Media on Instagram

→ BloodStream Media on LinkedIn

Our guest for this month is Believe Limited CEO and Bloodstream host, Patrick James Lynch. Ask the Expert is headed in a new direction and Patrick joins us to share what the future will hold for the Bloodstream Media network. Even though this will be the final episode of Ask the Expert, we are excited to announce the new path for our expert interviews, because they're not going away! Listen in with Patrick and Amy as they share the new and exciting things coming from Bloodstream Media!

Welcome to Episode 40, or To the Future! The final episode of the Ask The Expert Podcast!

Check out all the podcast offerings from Bloodstream Media: https://www.bloodstreammedia.com/

Register for the virtual Bleeding Disorder Conference here: https://events.hemophilia.org/ehome/bleedingdisordersconference/about/?&_ga=2.12224756.1785968952.1589565712-1855623951.1578586058

Join us for our "Get to Know the Expert" episode of Ask the Expert! Having the opportunity to know our national leaders in a personal way is an honor and a treat for any community. Join us on today's episode to get to know CEO the National Hemophilia Foundation, Dr. Len Valentino! We'll learn how Dr. Valentino got his start, what lessons he learned from treating patients, his interests in the global disparity of care, and his thoughts of the Michael Jordan documentary, The Last Dance! Join us to get to know Dr. Valentino a little better!

Welcome to Episode 39 - or our Get to Know the Expert Episode - of the Ask The Expert Podcast!

Check out the weekly webinar series provided by the National Hemophilia Foundation here:

The National Hemophilia Foundation: https://www.hemophilia.org/

Register for the virtual Bleeding Disorder Conference here: https://events.hemophilia.org/ehome/bleedingdisordersconference/about/?&_ga=2.12224756.1785968952.1589565712-1855623951.1578586058

The National Hemophilia Foundation announced new leadership in Dr. Len Valentino weeks before the COVID-19 outbreak and his unique position to guide our community during this unprecedented time has been welcome. Dr. Valentino joins us on Ask the Expert this month to share a bit of his story and his thoughts on the pandemic could affect the bleeding disorder community. Dr. Valentino shares how NHF is addressing the current COVID pandemic, NHF's national research agenda, and how COVID could impact the shift in treatment in hemophilia. We'll also chat about the Bleeding Disorder Conference going virtual this year, so join us for a can't miss episode of Ask the Expert!

Welcome to Episode 39 - or our Dr. Valentino Episode - of the Ask The Expert Podcast!

Check out the weekly webinar series provided by the National Hemophilia Foundation here:

The National Hemophilia Foundation: https://www.hemophilia.org/

Register for the virtual Bleeding Disorder Conference here: https://events.hemophilia.org/ehome/bleedingdisordersconference/about/?&_ga=2.12224756.1785968952.1589565712-1855623951.1578586058

Join us for our "Get to Know the Expert" episode of Ask the Expert! Having the opportunity to know our national leaders in a personal way is an honor and a treat for any community. Join us on today's episode to get to know CEO of Hemophilia Federation of America (HFA), Sharon Meyers, as she begins her tenure at the organization. Sharon shares how she became involved in non-profit work, her passion and philosophy on fundraising, and how she became involved within the bleeding disorder community! Join us to hear more about Sharon's personal journey and what makes her tick! A fun episode of Ask the Expert!

Welcome to Episode 38 - or our Get to Know the Expert Episode - of the Ask The Expert Podcast!

Check out the terrific resources from the Hemophilia Federation of America in the midst of COVID-19 outbreak:

Hemophilia Federation of America: https://www.hemophiliafed.org/

HFA COVID-19 Resources Page: https://www.hemophiliafed.org/news-stories/2020/04/coronavirus-covid-19-what-hfa-is-doing/

HFA COVID-19 Relief Fund: https://www.hemophiliafed.org/our-role-and-programs/assisting-and-advocating/financial-assistance/covid-19-relief-fund/

HFA Helping Hands Financial Assistance Program: https://www.hemophiliafed.org/our-role-and-programs/assisting-and-advocating/financial-assistance/helping-hands-emergency-assistance/

NHF Informational Webinars during COVID Crisis: https://www.hemophilia.org/

During this period of unprecedented turmoil and uncertainty, the bleeding disorder community has found comfort in the Hemophilia Federation of America's (HFA) messaging and voice. Newly-minted CEO of HFA, Sharon Meyers, joins us to share the behind the scenes work HFA has done to prepare statements, resources, and education during the COVID pandemic. She shares how HFA has set up a COVID-19 Relief Fund, as well as utilizing their foundational Helping Hands financial assistance program to provide support to community members during the crisis. Sharon stops by to share her vision for HFA going forward and how increased communication with NHF sets both organizations up for success. Join us for another great episode of Ask the Expert!

Welcome to Episode 38 - or our Meet Sharon Meyers Episode - of the Ask The Expert Podcast!

Check out the terrific resources from the Hemophilia Federation of America in the midst of COVID-19 outbreak:

Hemophilia Federation of America: https://www.hemophiliafed.org/

HFA COVID-19 Resources Page: https://www.hemophiliafed.org/news-stories/2020/04/coronavirus-covid-19-what-hfa-is-doing/

HFA COVID-19 Relief Fund: https://www.hemophiliafed.org/our-role-and-programs/assisting-and-advocating/financial-assistance/covid-19-relief-fund/

HFA Helping Hands Financial Assistance Program: https://www.hemophiliafed.org/our-role-and-programs/assisting-and-advocating/financial-assistance/helping-hands-emergency-assistance/

NHF Informational Webinars during COVID Crisis: https://www.hemophilia.org/

Join us for our "Get to Know the Expert" episode featuring Brian Ragaishis! Brian is a teenager with vWD who created the website Live Smart, Play Smart, a community where other teens affected by bleeding disorders can share their story. In today's episode, we hear about what it was like for Brian when he was diagnosed with vWD and how he felt isolated from his friends. How did he manage and why did he think it was important for other teens to share their story? Check out this great episode and if you know an amazing teen affected by a bleeding disorder doing incredible things for their community, nominate them for the Teen Impact Award at www.teenimpactawards.com

Welcome to Episode 37 Part 2- or our Get to Know the Expert Episode - of the Ask The Expert Podcast!

Check out the following resources mentioned in our episode:

Nominate a teen for the Teen Impact Awards:

https://www.teenimpactawards.com/

Apply for the Adam Lynch Scholarship here:

https://www.teenimpactawards.com/scholarship

To learn more about Live Smart, Play Smart and share your story: https://www.livesmartplaysmart.com/

To learn more about Bleeding Disorders Awareness Month and how you can contribute: https://redtiecampaign.org/

So much of our community programming and education is focused around teenagers and yet oftentimes our teenagers seem like mysteries to us. What is it like being a teen with a bleeding disorder and what would make their lives easier? To celebrate Bleeding Disorders Awareness Month we asked teen, Brian Ragaishis, to join us on Ask the Expert to share why he created Live Smart, Play Smart, a website that creates community for other teens affected by bleeding disorders by telling their story. Brian, a former Teen Impact Award winner, joins us to share how the idea was born and why it was so important to connect with his peers. A unique episode of Ask the Expert!

Welcome to Episode 37 - or our Live Smart, Play Smart Episode - of the Ask The Expert Podcast!

Check out the following resources mentioned in our episode:

Nominate a teen for the Teen Impact Awards:

https://www.teenimpactawards.com/

Apply for the Adam Lynch Scholarship here:

https://www.teenimpactawards.com/scholarship

To learn more about Live Smart, Play Smart and share your story: https://www.livesmartplaysmart.com/

To learn more about Bleeding Disorders Awareness Month and how you can contribute: https://redtiecampaign.org/