Being Rare Podcast

We all like new things but the process to achieve "new" sometimes comes with difficulty. LISTEN to 60 seconds of Being Rare!

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Support this podcast: https://anchor.fm/beingrare/support

We all like new things because "new" brings an overwhelming sense of accomplishment. But, sometimes, we shy away from new experiences because the process to achieving "new" is difficult. It's easy to settle in the familiar when the process to newness is hard. Listen to 60 seconds of Being Rare: New Beginnings!

In the US, at least 1 in 7 children experience child abuse or neglect annually. Children with disabilities are at least three times more likely to be abused or neglected than their peers without disabilities, and they are more likely to be seriously injured or harmed by maltreatment. This episode is about child abuse prevention, resources, and support. Joining the conversation is Sallye Longshore, Director, Alabama Department of Child Abuse and Neglect Prevention, The Children’s Trust Fund and Stephanie Wright, Director of Family Services, UCP of Huntsville and Tennessee Valley, Inc. 

The E.WE Foundation is a 501c3 healthcare advocacy organization and sponsor of the Being Rare Podcast. Learn more at www.theewefoundation.org.

The Children's Trust Fund www.ctfalabama.gov

UCP Huntsville and Tennessee Valley www.ucphuntsville.org

*The video of this conversation can be found on our YouTube channel

This One Minute Monday is about pressure. Sometimes we put way too much pressure on ourselves about almost everything. We've learned that living authentically is so much healthier than creating a perfectly false environment for ourselves or those around us. Listen as Sarita shares 60 seconds of Being Rare!

In this One Minute Monday Sarita talks about celebrating Elijah's birthday today along with every other day, adventure and new milestone! Listen to 60 seconds of Being Rare!

This Being Rare episode is about financial advocacy. Financial advocacy in the context of health involves the ability to assess, understand, and use financial information in ways that support good health and financial outcomes. Understanding Financial Advocacy will explore financial concepts and enhance awareness about best practice financial solutions. Today's guest is Dustin Mayo, Vice President, Retail Market Manager, Synovus Bank.

Connect with Dustin: linkedin.com/in/dustinbmayo | instagram.com/dustinbmayo | [email protected]

Connect with Sarita: linkedin.com/in/saritakedwards | twitter.com/saritaedwards | facebook.com/edwards4real | instagram.com/therealedwards | [email protected]

Connect with the E.WE Foundation: www.theewefoundation.org | facebook.com/everyoneiswe | instagram.com/everyone.is.we | twitter.com/everyoneiswe | linkedin.com/company/e-wefoundation

March is Trisomy Awareness Month! Kareem and Sarita sat down with Joe Ott, Inspirational Radio Host for WACE AM 730 to talk about Trisomy 18 and how the E.WE Foundation is raising awareness, providing support, and shifting the conversation surrounding the diagnosis.

In this One Minute Monday episode Sarita talks about emotions. We sometimes shelter our emotions for fear of looking weak. Likewise, sometimes we shelter our emotions for fear of looking angry. Emotions aren't bad and how we express them doesn't have to be pretty. Listen to 60 seconds of Being Rare!

In this One Minute Monday episode Sarita talks about community. Today is Rare Disease Day - a day for the rare disease community to raise awareness about the more than 7,000 rare diseases affecting 300 million individuals globally. Listen as Sarita shares 60 seconds of Being Rare!

Being Rare Podcast is excited to welcome Sarah Tompkins, patient advocate and Ms. Wheelchair Washington USA 2022!

Rare Disease Day is a day to raise awareness of the over 7,000 rare diseases that impact over 300 million people globally! Since its creation in 2008, Rare Disease Day has played a critical part in building an international rare disease community that is multi-disease, global, and diverse– but united in purpose. This exclusive Rare Disease Day episode is about advocacy, pageantry, and finding confidence as a rare disease patient.   

To connect with Sarah, Ms. Wheelchair Washington USA 2022 or to learn more about sponsorship opportunities, email Sarah at [email protected].    

Ms. Wheelchair USA: Ms. Wheelchair USA Website www.mswheelchairusa.org  

The Dane Foundation (Nonprofit Sponsor of Ms. Wheelchair USA Pageant and works and services for the Disability Community: The Dane Foundation's Website www.thedanefoundation.org  

To donate:  http://thedanefoundation.org/eventsprograms/sponsormwusafinalists.html 

Select Sarah Tompkins from the list of Sponsors to click for the PayPal Link 

TEXT TO DONATE: Dial the numbers 44321 and in the message type MWWUSA for Ms. Wheelchair Washington USA Sarah Tompkins  

Connect with Sarita on social media: 

LinkedIn: linkedin.com/in/saritakedwards 

Twitter: twitter.com/saritaedwards 

Instagram: instagram.com/the.real.edwards 

Facebook: facebook.com/edwards4real  

Follow The E.WE Foundation: 

Website: www.theewefoundation.org 

Facebook: facebook.com/everyoneiswe 

Instagram: instagram.com/everyone.is.we 

Twitter: twitter.com/everyoneiswe 

LinkedIn: linkedin.com/company/e-wefoundation