Being Rare Podcast

Being Rare Podcast

By Sarita EdwardsBusinessNon-Profit
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Being Rare Podcast episodes

  • Ep 36. Understanding Parent Leadership: What Is Parent Leadership and Why Is It Important?
    February is National Parent Leadership Month, dedicated to recognizing the important role of parents and caregivers in their homes and community. Join us as we discuss parent leadership and why it is an important concept to gaining valuable insight into healthcare and community programs benefiting children and families. Today's guests: Molly Martzke and Ebone Kimber
    *Sponsored by the E.WE Foundation's LEAP program.    
    Connect with Sarita: linkedin.com/in/saritakedwards | twitter.com/saritaedwards | facebook.com/edwards4real | instagram.com/therealedwards | [email protected]
    Connect with the E.WE Foundation: www.theewefoundation.org | facebook.com/everyoneiswe | instagram.com/everyone.is.we | twitter.com/everyoneiswe | linkedin.com/company/e-wefoundation   
    Connect with Molly: Molly Martzke, Senior Program Manager, National Genetics Education and Family Support Center, a division of Expecting Health | https://nationalfamilycenter.org | https://expectinghealth.org | [email protected]
    Connect with Ebone: Ebone Kimber, Licensed Master Social Worker, Professional Development with Ebone Kimber | https://www.facebook.com/watch/prodevwithek/ | [email protected]
    58 min
  • Ep 35. One Minute Monday - Being Fulfilled
    In this One Minute Monday episode Sarita talks about being fulfilled. We all take on new projects or tasks with the hope of making something or someone better. But what happens when the projects and tasks no longer fulfill us? Listen as Sarita shares 60 seconds of Being Rare!
    2 min
  • Ep 33. One Minute Mondays - Compromise
    In this One Minute Monday episode Sarita talks about compromise. At some point we all compromise - from what to eat - to - which movie to watch. Compromise can be healthy but some things are off limits.. Listen as Sarita shares 60 seconds of Being Rare!
    2 min
  • Ep 32. One Minute Mondays - Balance
    In this One Minute Monday episode Sarita talks about balance. Life will always toss us some unexpected adventures; but we're in charge of the weight we choose to carry and the weight we choose to let go. Listen as Sarita talks about finding balance.
    1 min
  • Ep 30. One Minute Mondays - Resolutions
    In this One Minute Monday Sarita talks about resolutions. The New Year has always been a time for change. The 10-to-1 countdown is the end of someone's "old" and the start of someone's "new". Listen to 60 seconds of Being Rare, resolutions.
    1 min
  • Ep 28. Saying No - Repod
    In this One Minute Monday Repod Sarita talks about saying no. With the holidays upon us it's important to know "your" limits.
    Listen to 60 seconds of Being Rare, on the road!
    2 min

About Being Rare Podcast

From the publisher's feed

The Being Rare podcast intersects rare disease, leadership, and systems change. It examines how policy, clinical practice, innovation, and institutional decision-making shape the lived experience of being rare, whether as a patient, caregiver, clinician, advocate, or leader.

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