Being Rare Podcast

Being Rare Podcast

By Sarita EdwardsBusinessNon-Profit
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Being Rare Podcast episodes

  • Ep 14. Father's Day Takeover - Part Two
    In this special Father's Day episode, Sarita's husband Kareem sits down with John Hart, Dadvocate to Harley, a 5 year old with Full Trisomy 18. Listen as John shares their journey of living with a rare disease.
    33 min
  • Ep13. Father's Day Takeover - Part One
    Sarita's husband Kareem takes over Being Rare Studios in a two-part special Father's Day episode. In this episode Kareem sits down with Aaron Ludwig, rare Dadvocate to Mimi, his 3 year old daughter living with Full Trisomy 18. Listen as Aaron shares their Trisomy 18 journey.
    44 min
  • Ep 9. A Journey of Faith
    In this special Mother's Day edition Sarita sits down with Beverly Jacobson, wife and mom to 9 children. Beverly shares how her faith helped her better accept her daughter's rare diagnosis. Listen as Beverly and Sarita talk about family, faith, and Beverly's new nonprofit, Verity's Village.
    36 min
  • The Power in Storytelling
    In this final Mother's Day episode, Sarita talks with Effie Parks, podcast host at Once Upon A Gene about finding our people, sending our rare kiddos to school, and the power in sharing our stories. To learn more about Effie and her podcast, visit her online at EffieParks.com.
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    Send in a voice message: https://anchor.fm/beingrare/message
    Support this podcast: https://anchor.fm/beingrare/support
    29 min

About Being Rare Podcast

From the publisher's feed

The Being Rare podcast intersects rare disease, leadership, and systems change. It examines how policy, clinical practice, innovation, and institutional decision-making shape the lived experience of being rare, whether as a patient, caregiver, clinician, advocate, or leader.

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