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Hosted by Sarita Edwards, Being Rare examines how policy, clinical practice, innovation, and systems shape the lived experience of rare disease. Patient experience is treated as expertise, guiding con... more
FAQs about Being Rare Podcast:How many episodes does Being Rare Podcast have?The podcast currently has 124 episodes available.
May 03, 2021Ep 1. One Minute Monday - ACCESSIBILITYKareem & Sarita's eldest kid graduated college over the weekend. It was their first public event using Elijah's wheelchair. In this one-minute Monday Sarita shares their experience with using the accessibility entrance for the first time. Listen as she shares 60 seconds of being rare!...more2minPlay
February 25, 2021The E.WE Foundation PromoThe E.WE Foundation is a 501(c)(3) healthcare advocacy organization supporting families affected by Edwards Syndrome.--- Support this podcast: https://anchor.fm/beingrare/support...more1minPlay
December 20, 2020Being Rare - TrailerBeing Rare is a community conversations platform bringing awareness and exposure to several different topics and how they relate to rare disease and the special needs community. Stay up to date on current conversations by subscribing now! --- Send in a voice message: https://anchor.fm/beingrare/messageSupport this podcast: https://anchor.fm/beingrare/support...more1minPlay
FAQs about Being Rare Podcast:How many episodes does Being Rare Podcast have?The podcast currently has 124 episodes available.