Being Rare Podcast

Being Rare Podcast

By Sarita EdwardsBusinessNon-Profit
Download on the App Store

Being Rare Podcast episodes

  • Ep 1. One Minute Monday - ACCESSIBILITY
    Kareem & Sarita's eldest kid graduated college over the weekend. It was their first public event using Elijah's wheelchair. In this one-minute Monday Sarita shares their experience with using the accessibility entrance for the first time. Listen as she shares 60 seconds of being rare!
    2 min
  • Being Rare Trailer

    Being Rare Podcast - Show Trailer


    Being Rare is where lived experience meets leadership, systems, and strategy. We don't just tell stories. We examine how decisions shape the everyday experiences of patients, caregivers, clinicians, advocates, and leaders.


    Being Rare is not just a podcast about rare diseases. It’s a platform for examining complex systems, and the steps needed to create better, more equitable outcomes.


    So whether you live rare, care for someone who does, or work in the space, you’re invited to join the conversation.


    Welcome to the Being Rare Podcast.

    1 min
  • The E.WE Foundation Promo
    The E.WE Foundation is a 501(c)(3) healthcare advocacy organization supporting families affected by Edwards Syndrome.
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    Support this podcast: https://anchor.fm/beingrare/support
    1 min
  • Being Rare - Trailer
    Being Rare is a community conversations platform bringing awareness and exposure to several different topics and how they relate to rare disease and the special needs community. Stay up to date on current conversations by subscribing now!
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    Send in a voice message: https://anchor.fm/beingrare/message
    Support this podcast: https://anchor.fm/beingrare/support
    1 min

About Being Rare Podcast

From the publisher's feed

The Being Rare podcast intersects rare disease, leadership, and systems change. It examines how policy, clinical practice, innovation, and institutional decision-making shape the lived experience of being rare, whether as a patient, caregiver, clinician, advocate, or leader.

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