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Hosted by Sarita Edwards, Being Rare examines how policy, clinical practice, innovation, and systems shape the lived experience of rare disease. Patient experience is treated as expertise, guiding con... more
FAQs about Being Rare Podcast:How many episodes does Being Rare Podcast have?The podcast currently has 124 episodes available.
November 30, 2021Ep 26. The Choice - RepodHolidays aren't "happy times" for everyone. A lot of folks are [still] struggling with pandemic life, especially those juggling rare conditions, medical complexities, and mental health challenges. Be conscious of what you say and how you say it. Be considerate of others and what they may be going through! In this One Minute Monday Sarita talks about making the choice to be kind, to others and yourself. Listen as she shares 60 seconds of Being Rare, with kindness!...more2minPlay
November 23, 2021Ep 25. One Minute Mondays - Being ThankfulIn this One Minute Monday Sarita talks about being thankful! Listen as she shares 60 seconds of gratitude for her community, social media tribe, and digital family!...more2minPlay
November 15, 2021Ep 24. One Minute Mondays - PatienceIn this One Minute Monday Sarita talks about patience, or the lack thereof, when it comes to the school carline. Listen as she shares 60 seconds of Being Rare with a wheelchair!...more2minPlay
November 08, 2021Ep 23. One Minute Mondays - Being GuardedIn this One Minute Monday Sarita talks about being guarded when it comes to Elijah's care. Listen as she shares 60 seconds of Being Rare....more2minPlay
November 01, 2021Ep 22. One Minute Mondays - DifferencesIn this One Minute Monday Sarita talks about embracing differences! Listen as she shares 60 seconds of Being Rare!...more2minPlay
September 14, 2021Ep 21. One Minute Monday - OpportunitiesIn this One Minute Monday Sarita talks about taking the opportunity to showcase the coolness of disability. Listen to 60 seconds of Being Rare....more2minPlay
September 07, 2021Ep 20. One Minute Tuesday - RestIn this One Minute Tuesday Sarita talks about taking time to rest! Listen as she shares 60 seconds of Being Rare....more1minPlay
August 30, 2021Ep 19. One Minute Mondays - InclusionIn this One Minute Monday Sarita talks about finding a birthday party invite in Elijah's backpack! Listen as she shares her appreciation for his being included....more2minPlay
July 13, 2021Ep 18. One Minute Monday - SupportIn this One Minute Monday Sarita talks about being the giver and receiver of support. Listen to 60 seconds of being rare....more1minPlay
July 08, 2021Ep 17. Supportive Adult Series: Extended Bedside MannerIn this episode Sarita is joined by Licensed Master Social Worker Ebone Kimber to discuss bedside manner or the lack thereof. Listen as Ebone shares strategy nuggets for professionals and families. Join us for more conversation on Wednesday, July 14th at 10:00am, live on Facebook and Zoom. Learn more at theewefoundation.org....more16minPlay
FAQs about Being Rare Podcast:How many episodes does Being Rare Podcast have?The podcast currently has 124 episodes available.