Being Rare Podcast

Being Rare Podcast

By Sarita EdwardsBusinessNon-Profit
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Being Rare Podcast episodes

About Being Rare Podcast

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The Being Rare podcast intersects rare disease, leadership, and systems change. It examines how policy, clinical practice, innovation, and institutional decision-making shape the lived experience of being rare, whether as a patient, caregiver, clinician, advocate, or leader.

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