Welcome to Episode 004 of the Beyond the Diagnosis Podcast. In this episode we talk with Jamie Sullivan and Shannon von Felden from the EveryLife Foundation about the STAT Act, the upcoming Rare Disease Week and the impact that both of these initiatives have had and will have on the rare disease community. We also welcome Deanna Fournier, Executive Director of the Histiocytosis Association as she shares about the Association’s involvement in several of EveryLife Foundation’s working groups.

Let us know what you think! Leave us a review, drop us a comment or email Kathy directly at [email protected].

Take a screenshot and tag us @histiocytosis_association on Instagram. We’d love to hear your feedback!

www.everylifefoundation.org

www.statact.org

www.rareadvocates.org/rdw

Music: “Heroes” by Noah Smith

Welcome to Episode 003 of the Beyond the Diagnosis Podcast. Have you ever heard of the Histiocyte Society? Are you curious about who they are and what they do? In this episode, we interview Michael Jordan, President of the Histiocyte Society, to learn about the physicians and scientists dedicated to finding better treatments and a cure for histiocytosis and his vision for the future of the Society.

Let us know what you think! Leave us a review, drop us a comment or email Kathy directly at [email protected].

Take a screenshot and tag us @histiocytosis_association on Instagram. We’d love to hear your feedback!

Music: “Heroes” by Noah Smith

Welcome to Episode 002 of the Beyond the Diagnosis Podcast. Have you ever wondered what the staff at the Histiocytosis Association do and what roles they fill? Are you interested in learning more about the future direction of the Association? In this interview with Deanna Fournier, Executive Director of the Histiocytosis Association, we’ll dive into all of that and more!

For more information on Histio Hike Shenandoah, visit www.histiohikeshenandoah.com. 

Let us know what you think! Leave us a review, drop us a comment or email Kathy directly at [email protected].

Take a screenshot and tag us @histiocytosis_association on Instagram. We’d love to hear your feedback!

Music: “Heroes” by Noah Smith

Welcome to the premier episode of the Beyond the Diagnosis podcast where we strive to bring you useful and timely information to inspire and encourage you on your journey with histiocytosis.  In this episode, learn a little bit about your host, how the podcast came to be and what you can expect from future episodes.

Let us know what you think! Email Kathy at [email protected] or leave a comment.

Take a screenshot and tag us @histiocytosis_association on Instagram.

Music: “Heroes” by Noah Smith