Beyond the Diagnosis

By Histiocytosis Association

The Beyond the Diagnosis podcast was created by the Histiocytosis Association to give patients, families, caregivers and other members of the Histio Community the opportunity to have access to another... more

· Health & Fitness

5

33 ratings

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FAQs about Beyond the Diagnosis:

How many episodes does Beyond the Diagnosis have?

The podcast currently has 95 episodes available.

Beyond the Diagnosis episodes:

April 06, 2023 Episode 034 - 3-Minute Thursday - Positive Thinking
Welcome to episode 034 of the Beyond the Diagnosis podcast. In this episode of 3-Minute Thursday, Histiocyte Society Secretariat and Beyond the Diagnosis Podcast host, Kathy Wisniewski, talks about the power of positive thinking and how you can exercise that positive thinking muscle! Join us every week and escape for 3 short minutes into a place of hope and encouragement on your histio journey.
We'd love to hear your feedback! Let us know if a 3-Minute Thursday touched you! Reach out to [email protected] and tell us your thoughts.
Music:
Walk Together by Olexy
...more
4min
March 30, 2023Episode 033 - 3-Minute Thursday - Self-Care is NOT Selfish
March 30, 2023 3-Minute Thursday Host – Melinda Atnip
Welcome to episode 033 of the Beyond the Diagnosis podcast. In this episode of 3-Minute Thursday, Histiocytosis Association Outreach Program Coordinator Melinda Atnip shares some thoughts on how we need to shift our mindset around self-care and some great ideas on how to do just that! Join us every Thursday and escape for 3 short minutes into a place of hope and encouragement on your histio journey.
Melinda is the Outreach Program Coordinator for the Histiocytosis Association and a caregiver for her husband, Barry, who was diagnosed with ECD.
Referenced in this episode:
Self-Care Is Not Selfish — ANGEL AID (angelaidcares.org)
We'd love to hear your feedback! Let us know if a 3-Minute Thursday touched you! Reach out to [email protected] and tell us your thoughts.
Music: Walk Together by Olexy
...more
5min
March 23, 2023 Episode 032 - 3-Minute Thursday - Laughter as Medicine
March 23, 2023 3-Minute Thursday Host – Peter Yanefski
Welcome to episode 032 of the Beyond the Diagnosis podcast. In this episode of 3-Minute Thursdays, Histiocytosis Association Strategic Communications Associate, Peter Yenefski, shares his thoughts about how laughter is great medicine - and even shares a couple of jokes along the way! Join us every Thursday and escape for 3 short minutes into a place of hope and encouragement on your histio journey.
We'd love to hear your feedback! Let us know if a 3-Minute Thursday touched you! Reach out to [email protected] and tell us your thoughts.
Music: Walk Together by Olexy
...more
3min
March 22, 2023Episode 031 - The Best of Beyond the Diagnosis - 2nd Anniversary Countdown Special
Welcome to Episode 031 of the Beyond the Diagnosis Podcast. In this special 2nd Anniversary podcast, we celebrate this milestone by bringing you clips from the top 10 most listened to episodes. Join us as we count down from 10 to 1 and maybe you’ll find an episode that you want to go back and listen to!
Let us know what you think! Leave us a review, drop us a comment or share an idea for a future podcast with us at [email protected].
Take a screenshot and tag us @histiocytosis_association on Instagram. We’d love to hear your feedback! Be sure to subscribe so you can be notified the moment a new episode of Beyond the Diagnosis is released.

Resources mentioned in the podcast:
For all of the episodes mentioned in today’s podcast visit: https://spotifyanchor-web.app.link/e/8XgqvENnmyb

Or on the Association’s webpage at https://histio.org/beyond-the-diagnosis-podcast/

Follow the Histiocytosis Association on social
media:
Facebook: https://www.facebook.com/histio

Twitter: @histiocytosis

Instagram: histiocytosis_association

YouTube: https://www.youtube.com/histiocytosisassoc
Music: “Heroes” by Noah Smith
...more
46min
March 16, 2023 Episode 030 - 3-Minute Thursday - Gratitude
March 16, 2023 3-Minute Thursday Host – Deanna Fournier
Welcome to episode 030 of the Beyond the Diagnosis podcast. In this episode of 3-Minute Thursdays, Histiocytosis Association Executive Director, Deanna Fournier shares her thoughts about the benefits of taking time out to think of the things in your life that you’re grateful for. Join us every week and escape for 3 short minutes into a place of hope and encouragement on your histio journey.
Deanna is the Executive Director of the Histiocytosis Association and an LCH survivor.
We'd love to hear your feedback! Let us know if a 3-Minute Thursday touched you! Reach out to [email protected] and tell us your thoughts.
Music: Walk Together by Olexy
...more
4min
March 09, 2023 Episode 029 - 3-Minute Thursday - Ethnicity and Matching
March 9, 2023 3-Minute Thursday Host – Nate Milam
Welcome to episode 029 of the podcast. In this episode of 3-Minute Thursdays, 25th Histio Ambassador, Nate Milam talks about the challenges with ethnicity and matching and how his own match saved his life. Join us every week and escape for 3 short minutes into a place of hope and encouragement on your histio journey.
Nate is the 25th Histio Ambassador and an HLH survivor.
Resources mentioned in the podcast:
· Be the Match - https://bethematch.org/
We'd love to hear your feedback! Let us know if a 3-Minute Thursday touched you! Reach out to [email protected] and tell us your thoughts.
Music: Walk Together by Olexy
...more
4min
March 02, 2023 Episode 028 - 3-Minute Thursday - Introduction to 3-Minute Thursdays
March 2, 2023 3-Minute Thursday Host – Kathy Wisniewski
In this debut episode of 3-Minute Thursdays, Kathy introduces this new “burst of hope” that we want to offer to our community. Join us every week and escape for 3 short minutes into a place of hope and encouragement on your histio journey.
Kathy is a staff member at the Histiocytosis Association. Her roles include managing the Association’s research grant program, hosting and producing the monthly podcast, Beyond the Diagnosis, and acting as Secretariat for the Histiocyte Society.
We'd love to hear your feedback! Let us know if a 3-Minute Thursday touched you! Reach out to [email protected] and tell us your thoughts.
Music: Walk Together by Olexy
...more
4min
February 22, 2023Episode 027 - Part 1 of 3 - Seeds of Funding - The Foundation of the Research Grants Program w/ Allie McFadden
Welcome to Episode 027 of the Beyond the Diagnosis Podcast. The first in a 3-part series, in this episode Kathy speaks with Allie McFadden, Association Fundraising Events Coordinator as we introduce you to our research grant process, starting at the very beginning – raising the money to fund the grants.
Let us know what you think! Leave us a review, drop us a comment or share an idea for a future podcast with us at [email protected].
Take a screenshot and tag us @histiocytosis_association on Instagram. We’d love to hear your feedback!
Be sure to subscribe so you can be notified the moment a new episode of Beyond the Diagnosis is released.
Resources mentioned in the podcast:
To learn more about the projects that received grant funding in our 2022 cycle visit https://histio.org/research/grants-awarded/

To get more information or begin the process of planning your own fundraiser, reach out to Allie at [email protected]

Histiocytosis Association Rare Disease Day $2800 by February 28thFundraiser: https://histio.donordrive.com/event/rarediseaseday

ECD Patient and Family Gathering: www.erdheim-chester.org or contact ECDGA Patient Navigator, Belinda Cobb at 337-401-7657

For more information about Histio Hike Shenandoah: https://histio.donordrive.com/event/histiohikeshenandoah

Follow the Histiocytosis Association on social media:
§ Facebook: https://www.facebook.com/histio
§ Twitter: @histiocytosis
§ Instagram: histiocytosis_association
§ YouTube: https://www.youtube.com/histiocytosisassoc
· Commercial Background Music:
o “Ambient Inspiration” Music by The Mountain from Pixabay
Music: “Heroes” by Noah Smith
...more
34min
January 25, 2023Episode 026 - Education in the Histiocyte Society: What, Why and How w/ Dr. Michael Henry
Welcome to Episode 026 of the Beyond the Diagnosis Podcast. Listen in as Dr. Michael Henry, Chair of the Histiocyte Society Education Committee, shares with us how education is at the forefront from pilot programs to abstract scoring and so much more!
Let us know what you think! Leave us a review, drop us a comment or share an idea for a future podcast with us at [email protected].
Take a screenshot and tag us @histiocytosis_association on Instagram. We’d love to hear your feedback!
Be sure to subscribe so you can be notified the moment a new episode of Beyond the Diagnosis is released.
Resources mentioned in the podcast:
HLH Patient Registry Talk – Gaps in Current Understanding of HLH: For more information, visit https://hlhregistry.org/. Or join a session: Thursday, January 31 @11am Eastern Time or Thursday, February 9 @6pm Eastern Time. Email [email protected]to get the links to register

Histiocytic Disorders Survivor Study information: Call 866-438-1640 or email [email protected]

Learn all about the Histiocyte Society here: https://histiocytesociety.org

Find more information about the Histiocyte Society here: https://histiocytesociety.org/Committees

Follow the Histiocytosis Association on social media:

     §Facebook: https://www.facebook.com/histio

     § Twitter: @histiocytosis

     § Instagram: histiocytosis_association

     § YouTube: https://www.youtube.com/histiocytosisassoc

Commercial Background Music:

     o “Wake Up to the Renaissance” Music by AudioCoffeefrom Pixabay

     o “Ambient Inspiration” Music by The Mountain from Pixabay
Music: “Heroes” by Noah Smith
...more
39min
December 28, 2022Episode 025 - The 2022 HopeCast and Year End Update
Welcome to Episode 025 of the Beyond the Diagnosis Podcast. Come along with us in this episode as we share a replay of the HopeCast, originally broadcast on Giving Tuesday. Learn all about the accomplishments of 2022 and what’s on board for 2023.
Let us know what you think! Leave us a review, drop us a comment or share an idea for a future podcast with us at [email protected].
Take a screenshot and tag us @histiocytosis_association on Instagram. We’d love to hear your feedback!
Be sure to subscribe so you can be notified the moment a new episode of Beyond the Diagnosis is released.
Resources mentioned in the podcast:
January 8, 2023 Philadelphia Flyers Game benefiting the Histiocytosis Association: www.fevo.me/histio23

Learn more about Give an Hour here: https://giveanhour.org and register for upcoming sessions here: https://cosdncfi.paperform.co/

Learn more about the Histio Ambassador Program here: https://histio.org/histio-ambassadors/

For more information about our Peer Chats, check out our page here: https://histio.org/resource-overview/peer-chats/

Listen to our episode with updates on research from former grant recipients: https://spotifyanchor-web.app.link/e/mdPxHOokYvb

See the full video with Astrid van Halteren and 8 Years of International Collaboration from Seed Funding here: https://histio.org/8-years-of-international-collaboration-from-seed-funding/

Living with Rare Cancer Survivorship Presentation:https://cancercontrol.cancer.gov/ocs/about/events/living-with-rare-cancer

To participate in the survivorship study, email [email protected]

Get more information about the Histio Scholarship Program here: https://histio.org/resource-overview/scholarship-program/

Learn all about the Histiocyte Society here: https://histiocytesociety.org

To make a year end gift to help the Association keep doing the important work that we’re doing, go to www.histio.org and click on the big green “Donate” button in the upper right.

Follow the Histiocytosis Association on social media:
Facebook: https://www.facebook.com/histio

Twitter: @histiocytosis

Instagram: histiocytosis_association

YouTube: https://www.youtube.com/histiocytosisassoc
Music: “Heroes” by Noah Smith
Sound effects from Pixabay
Commercial music by SoundGalleryBy and The Mountain from Pixabay
...more
1h 31min

FAQs about Beyond the Diagnosis:

How many episodes does Beyond the Diagnosis have?

The podcast currently has 95 episodes available.