BloodStream

Dr. Ben Samelson-Jones is on the show highlighting the advances of Gene Therapy in Hemophilia B and we'll also share an exciting staffing update for Star Therapeutics, a biotech with an encouraging vWD pipeline. We'll tell ya all about it!

Presenting Sponsor:

Takeda, visit bleedingdisorders.com to learn more.

Show Notes:

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The BloodStream Podcast

To learn more about our advocacy digital storytelling platform, Voices for Policy Change, head over to www.bleeding.org

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Behind the Mystery is the only television series featuring rare, genetic diseases, and we have creators and producers Carri Levy and Molly Mager, to tell us all about it and how to watch. Also, from the Living with Hemophilia blog, Philippines residents Cza and Jared share their story about living with severe hemophilia B. All this and more!

Presenting Sponsor:

Takeda, visit bleedingdisorders.com to learn more.

Show Notes:

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The BloodStream Podcast

To learn more about our advocacy digital storytelling platform, Voices for Policy Change, head over to www.bleeding.org

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Patrick and Amy reflect on their favorite moments of the BloodStream year, plus Max Feinsten is getting surgery and we get to hear about it. And then, another I'm Fine segment with Michael Bishop.

Presenting Sponsor:

Takeda, visit bleedingdisorders.com to learn more.

Show Notes:

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The BloodStream Podcast

I'm Fine is presented by @SanofiUS

Check out season 14 of Stop the Bleeding!

To learn more about our advocacy digital storytelling platform, Voices for Policy Change, head over to www.bleeding.org

Connect with BloodStream Media:

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Patrick sits down with Jonathan Cappiello, an ultra-rare who hosts the podcast, 1 out of 20 (who also has a connection to Ryan White!). Plus, our final Gene Therapy segment of the year and those WHF USA announcements. All that and more on BloodStream!

Presenting Sponsor:

Takeda, visit bleedingdisorders.com to learn more.

Show Notes:

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The BloodStream Podcast

It's a Whole New World Gene Therapy Segment brought to you by CSL Behring, which now has a first-of-its-kind hemophilia B treatment. Visit BeyondHemB.com or download B SUPPORT wherever you get your apps for more information.

It's a Whole New World brought to you by @CSLBehring.

The 1 out of 20 Podcast featuring PJL

Check out season 14 of Stop the Bleeding!

To learn more about our advocacy digital storytelling platform, Voices for Policy Change, head over to www.bleeding.org

We've got HFA CEO Dan Kelsey on the show to give a 2025 preview for the organization. NBDF and Believe Limited have partnered on a new digital advocacy storytelling project, called Voices for Policy Change and we'll tell you all about it! Plus, the new season of Stop the Bleeding! And the I'm Fine segment with Michael Bishop.

Presenting Sponsor:

Takeda, visit bleedingdisorders.com to learn more.

Show Notes:

Subscribe:

The BloodStream Podcast

I'm Fine is presented by @SanofiUS

Check out season 14 of Stop the Bleeding!

To learn more about our advocacy digital storytelling platform, Voices for Policy Change, head over to www.bleeding.org

Connect with BloodStream Media:

BloodStreamMedia.com

BloodStream on Facebook

BloodStream on Twitter

On the latest Gene Therapy segment, we host Blood Brothers Rick Starks, Colin Johnston, Bobby Wiseman for a roundtable discussion to hear their unique thoughts about the gene therapy landscape. We also honor Jess McClean (Page)'s life and her contribution to the bleeding disorder community.

Presenting Sponsor:

Takeda, visit bleedingdisorders.com to learn more.

Show Notes:

Subscribe:

The BloodStream Podcast

It's a Whole New World Gene Therapy Segment brought to you by CSL Behring, which now has a first-of-its-kind hemophilia B treatment. Visit BeyondHemB.com or download B SUPPORT wherever you get your apps for more information.

It's a Whole New World brought to you by @CSLBehring.

Connect with BloodStream Media:

BloodStreamMedia.com

BloodStream on Facebook

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NBDF CEO Phil Gattone traveled to regional chapters (and got infused, y'all) to meet communities on the ground, and he tells us all about it! Plus, big news for the community with a few recent therapy approvals and the latest I'm Fine segment with Michael Bishop.

Presenting Sponsor:

Takeda, visit bleedingdisorders.com to learn more.

Show Notes:

Subscribe:

The BloodStream Podcast

I'm Fine is presented by @SanofiUS

Connect with BloodStream Media:

BloodStreamMedia.com

BloodStream on Facebook

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Alternative Funding Programs are a nightmare new insurance tactic that has experts concerned. We've got Zack Duffy and Roland Lamy from the Hemophilia Alliance to break it down and tell you what to look out for. Plus, HFA's Project ECHO and the latest Gene Therapy segment, all about Myths and Misconceptions.

Presenting Sponsor:

Takeda, visit bleedingdisorders.com to learn more.

Show Notes:

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The BloodStream Podcast

Want more information on Alternate Funding Programs? Roland said to Google it.

But, here's some more stuff:

• AFP White Paper

• The Present and Future of Alternative Funding Programs for Specialty Drugs

HFA Project ECHO: Recognition and Care of Women with Bleeding Disorders

Oct 28 2024, 12:00 pm - 1:00 pm EST

It's a Whole New World Gene Therapy Segment brought to you by CSL Behring, which now has a first-of-its-kind hemophilia B treatment. Visit BeyondHemB.com or download B SUPPORT wherever you get your apps for more information.

Genentech Patient Foundation is dedicated to making sure that people with hemophilia A can get access to treatment. No matter what type of health insurance you have, and even if you have none at all, there may be some potential options available to help you afford your medicine.

To learn more about these resources and find out if you are eligible, visit www.HemophiliaAccess.com

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We recap NBDF's BDC and welcome back PPTA CEO Anita Brikman to share more about International Plasma Awareness Week. Plus, the latest I'm Fine featuring guest host Michael Bishop.

Presenting Sponsor:

Takeda, visit bleedingdisorders.com to learn more.

Show Notes:

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The BloodStream Podcast

Help celebrate International Plasma Awareness Week!

I'm Fine is presented by @SanofiUS

Connect with BloodStream Media:

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Coming to you LIVE from NBDF's Bleeding Disorder conference, Patrick is with CEO Phil Gattone right after Opening Session. A walk and talk you don't wanna miss! Also, hear how HTCs have operationally aligned to administer gene therapy with Zack Duffy and Roland Lamy from the Hemophilia Alliance on the latest Gene Therapy segment. Plus, an interview with Janet Brewer from CHES.

Presenting Sponsor:

Takeda, visit bleedingdisorders.com to learn more.

Show Notes:

Subscribe:

The BloodStream Podcast

It's a Whole New World Gene Therapy Segment brought to you by CSL Behring, which now has a first-of-its-kind hemophilia B treatment. Visit BeyondHemB.com or download B SUPPORT wherever you get your apps for more information.

Connect with BloodStream Media:

BloodStreamMedia.com

BloodStream on Facebook

BloodStream on Twitter