Hello! I just wanted to make my update episode from my day getting my infusion at the hospital today. It turned into quite a long day, but it could always be worse! The next episode has already been recorded and will be out soon! 

 

Thank you so much, everybody!

 

Chris

I wanted to record an episode the evening after I got home from my treatment day at the hospital. I have no officially hit 4 years post-glioblastoma and I'm looking to add a whole lot more! Thank you all so much for the support.

Despite the generally poor prognosis, those are just numbers. Every person is different and every case is different. Treatments are being studied all the time and new clinical trials can be the breakthrough therapy of tomorrow.

The past few weeks have had me busy with ripping apart the whole area of my bedroom where I record while I built a new desk/pc, and improve my overall space. I just had a bit of a mess and went through a lot of extra effort in cable management so I didn't have wires and cords all over!

 

- Chris

 

References:

https://www.abta.org/wp-content/uploads/2020/09/ABTA-National-Conference-Program-Booklet_FINAL.pdf

https://www.youtube.com/channel/UCsK91mnT112KibIFx8anlHQ

I just wanted to update you all on how my treatment day went on Friday, August 28th. I want to apologize for not being as active over the past few weeks. It's just been a hectic and slightly stressful few weeks. I am excited to get back to doing episodes and get back on track! Thank you all so much for your support and for listening to the show. It means so much to me and you all are amazing.

 

- Chris

Hello! I wanted to make this short update letting you all know the results of my latest MRI. Every one is a little anxiety inducing, but I am happy to share the results with you all! I also talk about the upcoming plans for the show I'll be recording this week. Thank you all for being patient as I was just having a couple difficult weeks but I'm excited for some upcoming topics! You are all awesome, and thank you again.

 

Chris

I just wanted to post a quick update on how my day at the hospital went as well as upcoming plans for the show! Thank you all so much for listening!

 

Chris

Hello! Thank you for listening! In this episode, we are just doing a brief introduction to glioblastomas. I intended to make more detailed topics on chemo and immunotherapy soon so that I have enough time to break things down. It's been a hectic few days so thank you all for bearing with me.

 

Chris

 

Links:

 

https://www.abta.org/tumor_types/glioblastoma-gbm/

 

https://www.mdanderson.org/cancer-types/glioblastoma.html

 

Trial I am on:

 

https://clinicaltrials.gov/ct2/show/NCT02336165

I just wanted to let everybody know that I'm going to be recording an episode to be released in conjunction with National Glioblastoma Awareness Day on July 22nd. I also talk about some other upcoming plans. Thank you all so much for listening! 

 

- Chris

In this episode, we go over what an ependymoma is, what the treatment is like and tell the story of an 11 year old Maggie Miller and how an ependymoma changed her life forever. 9 years later, she is the founder of CancerTalkFoundation.org which is a way for young people who have cancer or have had cancer to talk to each other and get advice and tips from her and other people who are in a similar situation. She also has a Facebook set up which I recommend if you use Facebook! 

Thank you all for listening and a big thank you to Maggie for sharing here and for giving back to the community in such a positive way!

Make sure you subscribe on whatever app/site you use to listen to the show!

 

Chris

 

Links!

https://www.cancertalkfoundation.org/

https://www.facebook.com/CancerTalkFoundation/

https://en.wikipedia.org/wiki/Overall_Position

https://www.cancer.gov/rare-brain-spine-tumor/tumors/ependymoma

https://www.abta.org/tumor_types/ependymoma/

https://www.cern-foundation.org/education/ependymoma-basics/ependymoma-overview

https://en.wikipedia.org/wiki/Ependymoma

Hello! This is just a short update from my day at the hospital. I enjoy making these just as a way to share how my day went, how I'm feeling and what I have coming up. Thank you all for taking the time to listen. It means so much to me.

 

Chris

https://www.universalhub.com/2020/empty-city-orange-line-wednesday-morning

In this episode, we cover some of the challenges and issues that may come if you have a child that has been diagnosed with a brain tumor. A very special thank you goes out to Kitty for answering some questions that I had regarding the the experience of being a parent of a young child with a brain tumor. 

I appreciate you all and thank you so much for listening! Please subscribe to know when the next episode is up!

 

Chris

 

Links referenced in the show:

ABTA Conference 2020

https://give.abta.org/event/abta-2020-virtual-national-conference/e278784

https://www.abta.org/financial-assistance/

https://www.cancer.gov/about-cancer/coping/caregiver-support/parents#child-questions

I, Hope on Steam (recommended!)

https://store.steampowered.com/app/448960/I_Hope/