Hello! Thank you for taking the time to tune in. I plan to do multiple episodes covering children with brain tumors and dedicate episodes to some of the more common, and rare brain tumors that a child may be diagnosed with. This is meant to be an overview and introduction episode.

If you would like to tell your story of being a parent of a child with brain cancer, please reach out! I'd love to hear from you. You could also come on and tell your story in your words. I'm open to everything and I can handle all recordings on my end.

Thank you so much for listening and make sure to subscribe to get notified when I upload! I've been trying various recording setups to get the best sound but I think I know it's on me to slow down. Thanks for your patience as I learn!

My friend Caitlin I mentioned in the episode!

https://www.youtube.com/watch?v=7ItHXvYW844

Below are the pages I referenced:

https://blog.dana-farber.org/insight/2018/09/difference-cancer-adults-cancer-children/

https://www.hopkinsmedicine.org/health/conditions-and-diseases/brain-tumor/pediatric-brain-tumors

https://www.hopkinsmedicine.org/neurology_neurosurgery/centers_clinics/brain_tumor/center/pediatric/tumors/

https://www.mskcc.org/pediatrics/cancer-care/types/pediatric-brain-tumors/diagnosis

ABTA Webinar:

https://www.youtube.com/watch?v=sVk7MZVOumU

Hello, everyone! I hope you're all doing well. I just wanted to record my thoughts after my treatment at the hospital on June 5th, 2020. It was a couple stressful days in which my phone broke and dealing with getting a new phone I could mod to use Android how I like to use it. I'll be recording a proper episode this week. Thank you for listening to the show and for listening to me talk about how I've been doing. It really helps me as well.

Chris

This episode turned out to be a little longer than I originally had intended but I want to thank you for taking the time to listen to the show! We are going to talk about some of the fake cancer cures that are being marketed to the most vulnerable people. I wanted to explain some of the most commonly used marketing terms that these frauds will use to try to scam you out of your money.

I understand that a quick cure or all-in-one sounds appealing, but take a step back and think about the facts.

Some of the articles referenced in the show:

https://quackwatch.org/about/altseek/

https://www.theguardian.com/science/2019/jul/14/cancer-fake-news-clinics-suppressing-disease-cure

https://www.theguardian.com/science/blog/2017/jan/24/cancer-treatment-myths-clean-eating-cannabis-homeopathy-alternative

https://www.independent.co.uk/life-style/health-and-families/health-news/fake-news-health-facebook-cruel-damaging-social-media-mike-adams-natural-health-ranger-conspiracy-a7498201.html

https://www.fda.gov/consumers/consumer-updates/products-claiming-cure-cancer-are-cruel-deception

https://www.fda.gov/consumers/consumer-updates/6-tip-offs-rip-offs-dont-fall-health-fraud-scams

https://sciencebasedmedicine.org/miracle-mineral-supplement-as-a-cure-all/

https://www.houstonpress.com/news/heres-why-authorities-want-to-stop-the-sale-of-jim-humbles-miracle-cure-8909556

https://abc7.com/church-of-bleach-genesis-ii-2-health-and-healing/1578279/

https://en.wikipedia.org/wiki/Miracle_Mineral_Supplement

https://realfarmacy.com/ (Note) You can't actually click on the top with the DMCA, legal disclaimers and privacy policy..it's just a picture.

In this episode, I wanted to point out some statistics about the rates of depression and anxiety in brain cancer patients. It's important to address these issues because they can affect all of us. I try to give a couple ideas to help overcome the stress and anxiety which has seen an increase due to the pandemic.

Please let me know if you have any suggestions, ideas or comments. 

If you ever feel like you can't reach out to anyone, I am always available. Don't hesitate to contact me.

I'm posting some links from the show down below here. Thank you all for listening and make sure you subscribe and rate the show!

Psychology Today

https://www.cancer.gov/about-cancer/coping/feelings/depression-hp-pdq

https://www.cancerhealth.com/article/mental-health-cancer

https://blog.ochsner.org/articles/mental-health-tips-for-cancer-patients-during-coronavirus

https://www.cedars-sinai.org/newsroom/expert-qa-cancer-covid-19-and-mental-health/

https://www.cancerresearchuk.org/about-cancer/cancer-in-general/coronavirus/living-well

Head and neck cancer study

Hello! This episode was recorded after my most recent trip to the hospital for my treatment and despite taking a nap, I was still a little tired. I just wanted to record something that night and it helps me keep my mind active. The links for the studies will all be posted here as well as on the website braincancerpodcast.com so feel free to check it out. 

What do you want to hear on the next episode? Let me know and thank you so much for listening!

Chris

Articles referenced:

Gene markers study by NIH

How mutations in a single gene alter the course of a deadly brain cancer

IDH study by the NIH

Gene mutation defines brain tumors that benefit from aggressive surgery

MGMT Methylated

MGMT Promoter Methylation, Tumor

MGMT Gene Silencing and Benefit from Temozolomide in Glioblastoma

Personalized treatment strategies in glioblastoma: MGMT promoter methylation status

Glioblastoma (GBM)

In this episode, I give a quick recap of how my last MRI went. Then we talk some statistics, charities and things you can do to help bring awareness to brain cancer!

I sort of rushed this and I don't like how the audio turned out, but I wanted to get this one out for early May. I also messed up the volume settings on my original template so please let me know if it's too loud, or not loud enough. I mixed it to the usual level, but I have the files so I could adjust it quickly if needed.

Feel free to give me your thoughts and what you want to hear about. I'm trying my best to cover what I can and would love to do more in-depth episodes. 

Thanks again!

Chris

Links from the episode:

https://braintumor.org/brain-tumor-information/brain-tumor-facts/

https://seer.cancer.gov/statfacts/html/brain.html

https://www.abta.org/about-brain-tumors/brain-tumor-education/#statistics

https://www.abta.org/

https://www.thebraintumourcharity.org/

https://www.curebraincancer.org.au/

I made this episode 2 days before my upcoming brain scan. I just wanted to talk about some of the things that I do to prepare for my scans along with tips in general to help keep your mind occupied in the weeks leading up to a scan. Thank you all for listening!

In this episode, we talk about clinical trial statistics and why you should ask you doctor about clinical trials that may be available. Please give this show a like and be sure to follow on Twitter @BrainCancerPod and be sure to visit Braincancerpodcast.com where I will post news and resources for you all to check out! 

https://clinicaltrials.gov

Study I am on:

https://clinicaltrials.gov/ct2/show/study/NCT02336165

Sources:

https://braintumor.org/brain-tumor-information/treatment-options/clinical-trials/

https://www.webmd.com/cancer/immunotherapy-risks-benefits#1

https://www.cancer.gov/news-events/cancer-currents-blog/2018/immunotherapy-glioblastoma

Trials mentioned:

https://www.news5cleveland.com/lifestyle/health-and-fitness/university-hospitals-part-of-clinical-trial-that-uses-the-polio-virus-to-shrink-brain-tumors

https://health.ucsd.edu/news/releases/Pages/2020-01-16-zika-virus-key-into-brain-identified-leveraged-block-infection-and-kill-cancer-cells.aspx

https://www.sciencedaily.com/releases/2019/07/190725092538.htm

https://www.webmd.com/cancer/brain-cancer/news/20090506/fda-oks-avastin-for-glioblastoma

https://www.medicinenet.com/optune_novottf-100a_system/article.htm#what_is_optune_and_what_is_it_used_for