Brain Inflamed

Episode 6- A Story Of Unconventional Healing

In this episode I interview Lara for an inside look into her journey to heal her son Noah from PANS. After their family hit their "bottom" fighting Noah's, disease they made a difficult decision- the result will inspire you and have you thinking about what's possiable. 

Links to mentions in this episode

Therapeutic camp

SUWS

https://www.suwscarolinas.com/

Therapeutic boarding school for boys 

Cherokee Creek School for Boys

http://cherokeecreek.net

Therapeutic boarding school for girls

https://www.lakehouseacademy.com

Ashville Academy

https://ashevilleacademy.com/

** Please note the suggestions above are not official endorsements, nor do these programs focus primarily on treating inflammatory brain disease. 

Welcome to the first Brain Inflamed "head space."

"head space" is a monthly-ish version of the podcast where we get a bit more personal. 

In this episode I let you in a bit to what I think- to what works (and dosen't) for our family as it appiles to getting back to school.

• Avoiding comparison

Mentioned in this eposide:

THe Read Alound Handbook 

https://www.amazon.com/Read-Aloud-Handbook-Sixth-Jim-Trelease/dp/0143037390/ref=sr_1_3?ie=UTF8&qid=1535815919&sr=8-3&keywords=the+read+aloud+handbook

Fun containers to store those after-school "saver" snacks:

(we love the bees wax wraps)

https://www.uncommongoods.com/product/related/items/beeswax-food-saving-wrap?utm_source=bing&utm_medium=cpc&utm_term=%2Bbees%20%2Bwrap&utm_campaign=All%20Products&msclkid=c5737ecef977166f7e9e2544483b93e7

You might have seen on Instagram:

https://www.amazon.com/Mind-Coach-Children-Teenagers-Positive/dp/1886554072/ref=sr_1_2?ie=UTF8&qid=1535815866&sr=8-2&keywords=Mind+Coach

This episode is for parents and for school counselors. We get first had information in our interview with school Counselor Stephanie Zak!

Stephanie shares what parents need to know to partner well with their school counselor AND how counselors can identify and help children with PANDAS, PANS or AE. 

Books mentioned in this episode:

PANDAS and PANS In The School Setting- AMAZON Link

https://www.amazon.com/PANDAS-PANS-School-Settings-Educators/dp/1849057443/ref=sr_1_1?ie=UTF8&qid=1534854764&sr=8-1&keywords=pandas+and+pans+in+school+settings

PANS, CANS and Automobiles

https://www.amazon.com/PANS-CANS-Automobiles-Comprehensive-Reference/dp/1506901875/ref=sr_1_1?ie=UTF8&qid=1534854853&sr=8-1&keywords=pans+cans+and+automobiles

IEP & 504 Comparison 

https://www.understood.org/en/school-learning

 This episode is the first in our three- part series for parents AND those serving and teaching children in school (think school nurses, principals, counselors, teachers...) 

Part ONE-  is for those that work in a school

Part Two- is for parents.

BUT listen to both- you'll learn from both prospectives!!

You'll hear from School Nurse, health educator and PANDAS parent Rhonda McCloskey! Rhonda shares valuable tips on how we and work with our schools to reduce exposure for our children. 

 RESOURCES MENTIONED: 

Sample Strep Surveillance Letter:

http://pandasnetwork.org/wp-content/uploads/2012/02/Notification-Letter.pdf

PANDAS/PANS Essential Facts for Teachers:

http://pandasnetwork.org/wp-content/uploads/2015/04/Handout-for-Teachers1.pdf

*** More excellent resources can be found on the PANDAS Network Website:

www.pandasnetwork.org

Under:

"Research and Resources"

"Tool Kits"

"School" 

 This episode is the first in our three- part series for parents AND those serving and teaching children in school (think school nurses, principals, counselors, teachers...) 

Part ONE-  is for those that work in a school

Part Two- is for parents.

BUT listen to both- you'll learn from both prospectives!!

You'll hear from School Nurse, health educator and PANDAS parent Rhonda McCloskey! Rhonda shares valuable tips on how we and work with our schools to reduce exposure for our children. 

 RESOURCES MENTIONED: 

Sample Strep Surveillance Letter:

http://pandasnetwork.org/wp-content/uploads/2012/02/Notification-Letter.pdf

PANDAS/PANS Essential Facts for Teachers:

http://pandasnetwork.org/wp-content/uploads/2015/04/Handout-for-Teachers1.pdf

*** More excellent resources can be found on the PANDAS Network Website:

www.pandasnetwork.org

Under:

"Research and Resources"

"Tool Kits"

"School" 

Never miss an eposide by following here! 

We'd love to connect with you on Instagram www.instagram.com/brain_inflamed_podcast 

Never miss an eposide by following here! 

We'd love to connect with you on Instagram www.instagram.com/brain_inflamed_podcast