Brain Talk | Being Patient for Alzheimer's Patients and Caregivers

By Being PatientScience

Brain Talk | Being Patient for Alzheimer's Patients and Caregivers episodes

February 27, 2024 Ask Teepa Snow Anything: Your Dementia Caregiving Questions Answered
In this live-streamed Q&A with Positive Approach to Care founder and dementia care expert Teepa Snow, she answered Being Patient readers’ questions in real-time.
Snow, MS, OTR/L, FAOTA, is an Occupational Therapist with over forty years of clinical and academic experience. Her experiences led her to the development of the GEMS® States of Brain Change and the Positive Approach® training strategies. Her company, Positive Approach to Care® (PAC), provides online and in-person education and products to support those living with brain change. She also founded the Snow Approach Foundation, a nonprofit organization based in Hillsborough, North Carolina.
Listen to this live talk to get your questions about dementia caregiving answered!
54 min
February 27, 2024 Rebecca Chopp: Living With Alzheimer’s, Living With Joy | Patient Perspectives
Alzheimer’s educator and activist Rebecca Chopp, Ph.D., joins Being Patient Live talks to discuss her upcoming book “Still Me: Accepting Alzheimer’s Without Losing Yourself.” As she discussed in a previous live talk with us, she’ll also be speaking about how she defies the stigma of Alzheimer’s by living with joy.
Before Chopp’s diagnosis of Mild Cognitive Impairment and Alzheimer’s in 2019, she was a widely published author, editor, and academic in the fields of education, philosophy, religion, and feminism. In particular, she served as the 18th and first female chancellor of the University of Denver. She has also served as president of Swarthmore College and Colgate University, as Provost at Emory University, and as Dean of Divinity at Yale University.
Since her retirement, Chopp has devoted her days to living with joy. She enjoys painting classical portraits and abstracts, hiking in the Colorado mountains with Buhdy, her dog, and spending time with friends and family. She also co-founded the advocacy group Voices of Alzheimer’s and serves as a board member of both the Alzheimer’s Association’s national organization and its Colorado Chapter. In addition to her writing and art, she is a frequent speaker on timely diagnosis, research for a cure, access and affordability of drugs, and lifestyle interventions for those with Alzheimer’s.
Watch this live talk to learn more about her upcoming book — and her guidance for living well with Alzheimer’s.
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If you loved watching this Live Talk, visit our website to find more of our Alzheimer’s coverage and subscribe to our newsletter: https://www.beingpatient.com/
Follow Being Patient:
Twitter: https://twitter.com/Being_Patient_
Instagram: https://www.instagram.com/beingpatientvoices/
Facebook: https://www.facebook.com/beingpatientalzheimers
LinkedIn: https://www.linkedin.com/company/being-patient
Being Patient is an editorially independent journalism outlet for news and reporting about brain health, cognitive science, and neurodegenerative diseases. In our Live Talk series on Facebook, former Wall Street Journal Editor and founder of Being Patient, Deborah Kan, interviews brain health experts and people living with dementia.
Check out our latest Live Talks: https://www.beingpatient.com/category/video/
#Alzheimers #MildCognitiveImpairment #PatientPerspective #Books
36 min
February 21, 2024 Discover The Link Between Seizures And Cognitive Decline
Dr. Ifrah Zawar joins Being Patient Live Talks to discuss seizures, cognitive decline, and dementia. As she discussed in our article on seizures, epilepsy can accelerate cognitive decline, and the condition can also be mistaken for cognitive decline.
Watch the live talk to learn more about the connection between seizures, cognitive decline, and dementia.
1 min
February 21, 2024 Lou Niles: An Inside Account of the Donanemab Drug Trial | Patient Perspective
Lou Niles joins Being Patient Live Talks to discuss his experience taking part in the donanemab clinical trial. The monoclonal antibody drug was revealed to have promising results in late 2023 and is currently awaiting FDA approval.
Now retired, Niles previously served as an army officer, a combat helicopter pilot in Vietnam, and as a firefighter and paramedic in San Diego. Because his mother died from Alzheimer’s, he was aware that he could be susceptible to cognitive decline, which led him to do a 23&Me DNA test a decade ago. The test revealed that he had one mutation associated with a higher risk for Alzheimer’s. That’s why, when he saw that there was an Alzheimer’s study in Orlando, FL, where he currently lives, Niles decided to participate. Over the course of the trial, he discovered that he indeed has cognitive decline and amyloid in his brain.
In the talk, Niles will speak about his experience with cognitive decline and participating in the donanemab trial.
Watch now to learn more about the clinical trial experience with MAB drugs.
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If you loved watching this Live Talk, visit our website to find more of our Alzheimer’s coverage and subscribe to our newsletter: https://www.beingpatient.com/
Follow Being Patient:
Twitter: https://twitter.com/Being_Patient_
Instagram: https://www.instagram.com/beingpatientvoices/
Facebook: https://www.facebook.com/beingpatientalzheimers
LinkedIn: https://www.linkedin.com/company/being-patient
22 min
February 21, 2024 Dr. Ifrah Zawar: Seizures, Cognitive Decline, and Dementia | Brain Talks
Dr. Ifrah Zawar joins Being Patient Live Talks to discuss seizures, cognitive decline, and dementia. As she discussed in our article on seizures, epilepsy can accelerate cognitive decline, and the condition can also be mistaken for cognitive decline.
Zawar is an adult neurologist, epileptologist, and an Assistant Professor at the University of Virginia. Her clinical and research work focuses on seizures and epilepsy in older adults and epilepsy in people with dementia. She serves on editorial boards of prestigious epilepsy and Alzheimer’s disease journals and has won multiple awards and recognition for her research endeavor.
Watch the live talk to learn more about the connection between seizures, cognitive decline, and dementia.
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If you loved watching this Live Talk, visit our website to find more of our Alzheimer’s coverage and subscribe to our newsletter: https://www.beingpatient.com/
Follow Being Patient:
Twitter: https://twitter.com/Being_Patient_
Instagram: https://www.instagram.com/beingpatientvoices/
Facebook: https://www.facebook.com/beingpatientalzheimers
LinkedIn: https://www.linkedin.com/company/being-patient
35 min
February 21, 2024 Dasha Kiper: Shedding Light on the Challenges of Dementia Caregiving Through Storytelling
Clinical psychologist, educator, and author Dasha Kiper joins Being Patient Live Talks to discuss her book "Travelers to Unimaginable Lands." Using her experience as a caregiver and counselor and research on neurological and cognitive research, Kiper shares stories of caregivers and people living with dementia in the book. In particular, using stories and neurological research together, she can shed light on the pressures on caregivers.
Kiper previously was the Clinical Director for Support Groups at a New York Alzheimer’s Organization. She’s led groups for people in the early stages of Alzheimer’s and caregivers of those with dementia disorders. Kiper has also trained and supervised mental health professionals who work with dementia caregivers.
Learn more about this book on dementia, caregiving, and the brain by watching the talk.
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If you loved watching this Live Talk, visit our website to find more of our Alzheimer’s coverage and subscribe to our newsletter: https://www.beingpatient.com/
Follow Being Patient:
Twitter: https://twitter.com/Being_Patient_
Instagram: https://www.instagram.com/beingpatientvoices/
Facebook: https://www.facebook.com/beingpatientalzheimers
LinkedIn: https://www.linkedin.com/company/being-patient
25 min
January 30, 2024 Bill Sasse: An Insider’s Account of the Alzheimer’s Solanezumab Drug Trial | Patient Perspectives
The process of finding new treatments for Alzheimer’s disease is one of trial and error — and every “failed” trial generates invaluable new data to help researchers and drug developers understand what works, what doesn’t, and why. On Wednesday, January 24th, at 10:00 a.m. PT/1:00 p.m. ET, drug trial participant Bill Sasse, who was a participant in Eli Lilly’s clinical trial of experimental monoclonal antibody drug solanezumab, joins Being Patient Live Talks to discuss his experience with the drug trial. In March of 2023, solanezumab ultimately failed to hit its benchmarks in slowing cognitive decline and the trial was discontinued.
Sasse, whose father died of Alzheimer’s, had the unique experience of participating in a clinical trial for a MAB drug without having any symptoms of cognitive decline. An army veteran, retired business owner, grandparent, and a native of Columbus, Indiana, he joined the trial after being inspired by a documentary about Glen Campbell promoting the trial, asking himself, “Why not, me?”
With his wife as his trial partner, he participated in the solanezumab trial for eight years before it was announced that the clinical trial had failed. He has participated in panels with Eli Lilly on his experience with the trial.
Watch the full video to learn more about the clinical trial experience with MAB drugs.
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If you loved watching this Live Talk, visit our website to find more of our Alzheimer’s coverage and subscribe to our newsletter: https://www.beingpatient.com/
Follow Being Patient:
Twitter: https://twitter.com/Being_Patient_
Instagram: https://www.instagram.com/beingpatientvoices/
Facebook: https://www.facebook.com/beingpatientalzheimers
LinkedIn: https://www.linkedin.com/company/being-patient
Being Patient is an editorially independent journalism outlet for news and reporting about brain health, cognitive science, and neurodegenerative diseases. In our Live Talk series on Facebook, former Wall Street Journal Editor and founder of Being Patient, Deborah Kan, interviews brain health experts and people living with dementia.
Check out our latest Live Talks: https://www.beingpatient.com/category/video/
#alzheimersresearch #solanezumab #clinicaltrials #alzheimers #dementia
24 min
January 30, 2024 Dr. Nir Grossman on Non-Invasive Deep Brain Stimulation and Memory | Brain Talk
Award-winning dementia researcher and educator Dr. Nir Grossman joins Being Patient Live Talks to talk about the potential of cutting-edge medical technology like deep brain stimulation as an emerging approach to treating neurodegenerative diseases like Alzheimer’s.
Grossman is an associate professor at the Department of Brain Sciences at Imperial College London and a founding fellow of the UK Dementia Research Institute (UK-DRI). He received a prestigious prize from the Science Journal and American Association for the Advancement of Science (AAAS) for developing a new, non-invasive method of deep brain stimulation, called temporal interference, which is now in early clinical trials. Previously, this procedure required invasive brain surgery. His research has been published in scientific journals like Cell, Science, and Nature Neuroscience.
Read the article here: https://www.beingpatient.com/nir-grossman-deep-brain-stimulation-dementia/
___
If you loved watching this Live Talk, visit our website to find more of our Alzheimer’s coverage and subscribe to our newsletter: https://www.beingpatient.com/
Follow Being Patient:
Twitter: https://twitter.com/Being_Patient_
Instagram: https://www.instagram.com/beingpatientvoices/
Facebook: https://www.facebook.com/beingpatientalzheimers
LinkedIn: https://www.linkedin.com/company/being-patient
Being Patient is an editorially independent journalism outlet for news and reporting about brain health, cognitive science, and neurodegenerative diseases. In our Live Talk series on Facebook, former Wall Street Journal Editor and founder of Being Patient, Deborah Kan, interviews brain health experts and people living with dementia.
Check out our latest Live Talks: https://www.beingpatient.com/category/video/
#DeepBrainStimulation #Neuromodulation #AlzheimersResearch #Dementia #Alzheimers
37 min
January 22, 2024 Brain Food: The 5 BIGGEST breakthroughs of 2023 in Alzheimer’s and dementia
🔥The 5 BIGGEST breakthroughs of 2023 in Alzheimer’s and dementia. 🚀
From the FDA's full approval of Leqembi, a game-changing Alzheimer's drug, to the revolutionary potential of PET scans in diagnosing Alzheimer's, get ready for groundbreaking news in #Alzheimer's and #dementia research💡 But that's not all—get ready to learn about direct-to-consumer blood tests, cutting-edge AI technology, and the latest insights on genetic testing. 🩺🔬
Don't miss this exciting discussion that's shaping the future of Alzheimer's care and prevention. Tune in now and become a part of the movement! Stay tuned by following us here and watching for updates at beingpatient.com
If you loved watching this Live Talk, visit our website to find more of our Alzheimer’s coverage and subscribe to our newsletter: https://www.beingpatient.com/
Follow Being Patient:
Twitter: https://twitter.com/Being_Patient_
Instagram: https://www.instagram.com/beingpatientvoices/
Facebook: https://www.facebook.com/beingpatientalzheimers
LinkedIn: https://www.linkedin.com/company/being-patient
Being Patient is an editorially independent journalism outlet for news and reporting about brain health, cognitive science, and neurodegenerative diseases. In our Live Talk series on Facebook, former Wall Street Journal Editor and founder of Being Patient, Deborah Kan, interviews brain health experts and people living with dementia.
Check out our latest Live Talks: https://www.beingpatient.com/category/video/
#AlzheimersBreakthroughs #DementiaResearch #Leqembi #PETScans #BloodTests #AItechnology #GeneticTesting #BeingPatient
4 min
January 22, 2024 Dr. Nir Grossman on Non-Invasive Deep Brain Stimulation and Memory | Brain Talk
Award-winning dementia researcher and educator Dr. Nir Grossman joins Being Patient Live Talks to talk about the potential of cutting-edge medical technology like deep brain stimulation as an emerging approach to treating neurodegenerative diseases like Alzheimer’s.
Grossman is an associate professor at the Department of Brain Sciences at Imperial College London and a founding fellow of the UK Dementia Research Institute (UK-DRI). He received a prestigious prize from the Science Journal and American Association for the Advancement of Science (AAAS) for developing a new, non-invasive method of deep brain stimulation, called temporal interference, which is now in early clinical trials. Previously, this procedure required invasive brain surgery. His research has been published in scientific journals like Cell, Science, and Nature Neuroscience.
Read the article here: https://www.beingpatient.com/nir-grossman-deep-brain-stimulation-dementia/
___
If you loved watching this Live Talk, visit our website to find more of our Alzheimer’s coverage and subscribe to our newsletter: https://www.beingpatient.com/
Follow Being Patient:
Twitter: https://twitter.com/Being_Patient_
Instagram: https://www.instagram.com/beingpatientvoices/
Facebook: https://www.facebook.com/beingpatientalzheimers
LinkedIn: https://www.linkedin.com/company/being-patient
Being Patient is an editorially independent journalism outlet for news and reporting about brain health, cognitive science, and neurodegenerative diseases. In our Live Talk series on Facebook, former Wall Street Journal Editor and founder of Being Patient, Deborah Kan, interviews brain health experts and people living with dementia.
Check out our latest Live Talks: https://www.beingpatient.com/category/video/
#DeepBrainStimulation #Neuromodulation #AlzheimersResearch #Dementia #Alzheimers
37 min