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In this profoundly moving episode of our podcast, I sit down with Lesa Brackbill, a mother who transformed her unimaginable grief into a powerful force for change. Lesa shares the heart-wrenching story of her daughter's battle with Krabbe disease, a rare and terminal genetic disorder that was diagnosed when her daughter was just five months old. Despite the devastating loss of her daughter at only 20 months, Lesa's story is not just one of sorrow, but also of resilience, love, and a determined fight for the future health of newborns everywhere.
Lesa takes us through her family's journey, detailing the early days of her daughter's life, the moment they received the diagnosis, and how they navigated the challenges that came with Krabbe disease. She speaks candidly about the emotional toll, the impact on her family, and the moments of joy and love that shone brightly even in the darkest times.
Beyond sharing her personal story, Lesa discusses her passionate advocacy for newborn screenings, emphasizing the critical importance of early detection in saving lives and improving outcomes for children with genetic disorders. Her work aims to ensure that no other family has to endure the pain of losing a child to a disease that could be detected and potentially treated if caught early through newborn screening.
This episode is not only a tribute to the strength of a mother's love but also a call to action for listeners to support and learn about the importance of newborn screenings. Join us for an emotional, enlightening, and inspirational conversation with Lesa Brackbill, a remarkable advocate who is making a difference in the world, one newborn at a time.
If you would like to read Lesa's book, Even So Joy you can find it on Amazon. You can also connect further with her on Instagram @evensojoy.
As we dive into the final episode of Bryant's story, I'll share with you the remarkable moments that define his young life and how, even at such a tender age, he taught us about faith, hope, and the beauty of finding comfort in believing in something greater than us. It's a story that's as much about the innocence of childhood as it is about the journey to eternity.
Thank you for allowing me to share my precious boy with you.
If you would like to connect further you can find me on Instagram @coachingwithraynea.
Hello, my beautiful friends. Today I share the second part of Bryant's story. I talk about what it was like to wrestle with so many emotions while trying to navigate our new normal the seemed to be ever changing. The difficulty of realizing as a parent all you want to do it fix things for your children and knowing you are unable to save your son from this awful disease or save your children from the heartbreak of watching this disease steal their baby brother from them.
If you would like to connect further you can find me on Instagram @coachingwithraynea.
In this first part, I share about my sweet son, Bryant. I share with you the journey to how we learned of his terminal diagnosis when he was 2 1/2 years old. I also touch on identity in this episode.
If you find value in what I share here please follow and rate the podcast.
If you would like to connect further you can find me on Instagram @coachingwithraynea.
In this podcast episode, we're diving into the world of decision making as well as touching on our inner child once more. Tune in to gain a deeper understanding of deciding and empower yourself to make choices that align with your values and aspirations.
If you'd like to connect further you can find me on Instagram @coachingwithraynea or if you would like to learn more about coaching with me fill out this questionnaire. https://form.jotform.com/232745057476059
The absolute best gift you could give me if you found value in my podcast is to follow, leave a review and share. So much love until next time.
Welcome, my beautiful friends. In this episode, we explore the emotional journey that we go through when facing our deepest fears and the difficult truths that life presents. We discuss the importance of acknowledging and accepting these fears and truths as a crucial step towards personal growth and self-discovery.
The absolute best gift you could give me if you found value in my podcast is to follow, leave a review and share. So much love until next time.
If you'd like to connect further you can find me on Instagram @coachingwithraynea.
Hello my beautiful friends! I'm so happy you are here with me. I thought a good place to start would be the beginning, for you to know me a little better.
If you found value in my podcast be sure to follow, share and leave a review. If you'd like to connect further you can find me on Instagram @coachingwithraynea.
Welcome, my beautiful friends. In this pre-launch episode of the podcast, we will honor a deeply personal journey reflecting on the 5th anniversary of my son going home to be with Jesus. The death of my child wasn't my first experience with grief and loss nor my last. I've actually traveled the path of grief and loss since my early days. It is from a place of vulnerability and strength that the idea for this podcast emerged - a platform to share my story, to lend a voice to the silent struggles, and to empower others on their healing journey towards finding their own voices. Join me as we navigate through the complexities of loss, grief, and ultimately, resilience and healing together. I'm so happy you are here.
You can find me on Instragram @coachingwithraynea.
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