Chronically Fully Sick

EPISODE NINE BABY! Chlo and Joanna have been fatigued to all gaddamned heck lately, so they found a Netflix doco series about the clusterf*ck that is the wellness industry to binge and rant about - classic stuff. They also delve in the undeniably common link between wellness, conspiracy theories and Nazism (hi Pete), explain how the ‘spoon theory’ began, and also commemorate the wonderful late Stella Young. Chloe also found a tin foil hat book in her parents’ bookshelf about how to ‘cure’ arthritis or some nonsense, so of course she had to do QUACK WATCH and read out über-borked bits while Jo scream laughs. Also more SPOONIE HOTLINE, hell yeah! The chix actually got quite a bit done in this episode, considering how utterly rubbish they felt. Good for them!

LINKS

• Stella Young’s TED talk ‘I’m not your inspiration, thank you very much’
• ‘Nazi Hippies: When the New Age and Far Right Overlap’ by Jules Evans (Medium)
• ‘Why are conspiracy theories rampant in the 'wellness' industry? Welcome to conspirituality’ by Derek Beres (Big Think)
• ‘How Covid-19 paranoia united the wellness industry and rightwing conspiracy theorists’ by Brigid Delaney (The Guardian)
• ‘[Un]Well’ documentary series, Netflix (the pod references episodes 1 - ‘Essential Oils’ and 6 - ‘Bee Sting Therapy’)
• ‘How spoons became a powerful symbol for invisible disability’ by Chloe Sargeant, SBS Voices

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Phwoooooar, episode 8! Sorry it's a spot late, but the gals have got an absolute corker for you. Chloe and Jo welcome their second chronically fully sick guest, the wonderful and talented Nadine Chemali!! This ep delves into stuff like having kids when you're a spoonie, how much investigative surgeries suck a heap of shit, cultural differences that can exist in the world of pain and chronic illness, and how disgustingly rife the medical industry is with fatphobia (about which Nadine has an absolute CRACKER of a story). Also WOOOO MORE SPOONIE HOTLINE! thanks love you bye

OUR LOVELY GUEST

Nadine Chemali is a writer, researcher and social worker. She is dedicated to creating and nurturing communities, facilitating discussions on identity, sexuality, displacement and representation, discourse she feels was missing from her own migrant upbringing in Australia. She has written for publications like SBS Voices, The Big Issue, The Guardian and has spoken at events like Melbourne Writers Festival, Brisbane Feminist Festival & most recently Queerstories.

LINKS

• New Voices on Food (which features Chlo's piece 'How becoming chronically ill made me fall in love with food'): https://somekindpress.com/products/new-voices-on-food
• You can find Nadine as on Twitter, Facebook, and Instagram. Do it! Nadine is amazing!

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Them hectic brain foggo gals are back with episode 7! Chloe and Joanna get to yakking about stuff like:

• the long-term effects of COVID-19 and whether we could be looking at a whole new generation of spoonies after this pandemic
• ketamine treatments
• getting needles in their sexy faces
• Chloe having a nice spasm mid-recording
• P*te 'Dogshit' Ev*ns, as always
• that time a farmer fondly referred to Jo as 'an ox of a woman' while she was anaesthetic-ed up to her eyeballs
• OUR BRAND NEW SEGMENT, THE SPOONIE HOTLINE!!
• and much more xoxo

You can follow Chronically Fully Sick on Instagram and Twitter, or get in touch via our website chronicallyfullysick.com.

If you'd like to submit to the Spoonie Hotline for future eps, you can do that by emailing us your voice memos or written messages to [email protected]! We're always happy to help with submitting or adapting/editing in whatever way necessary for all types of accessibility needs too, so don't hesitate to let us know how we can help you be a part of Spoonie Hotline 🥰

LINKS:

• TIME story about long-term effects of COVID-19 including ME/CFS - https://time.com/5897992/long-haul-coronavirus-me-cfs/
• Screenshot of Peter's K post because we refuse to link to his Insta and improve his social analytics lmao

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Episode six, you sexy sick babes!! Chloe and Joanna delve into topics like buttchugging the sun (...sorry), how good pets and animals are at making us feel better when we're having a rubbish time with our bodies and brains, and how the opioid crisis has affected people who live with chronic illness and chronic pain. There's a new QUACK WATCH and a HISTORICALLY FULLY SICK about a spoonie and disability icon whose general badassery is truly stunning and life-giving. Also, Chloe is left speechless after Joanna tags her in a DISGUSTING photo mid-ep, which is excellent for the aural medium of podcasting. Y'know, just your standard CFS ep.

You can follow us on Twitter and Instagram!

~LINKS~

Babs and simba <3 - https://www.instagram.com/p/CGyPFJtDf0t/

Sackler family / Purdue Pharma / US opioid crisis explainer - https://www.bbc.com/news/business-47660040

the QUACK WATCH Very Bad Photo™ - BE WARNED BEFORE YOU CLICK WE'RE SO SORRY

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Episode 5! Chloe and Joanna have been flare bears together, but they still dragged themselves to a microphone to talk about the concept of reclaiming and/or taking control of pain after they watched a doco about the legendary chronically ill performance artist and BDSM legend Bob Flanagan. They also talk about their own ways of using pain to treat pain (with additional input from some angel sickies in the CFS group), Bill and Ted and the creepy new Netflix series Ratched, plus Jo does a burp that you can hear (a miracle it took until episode five for this to happen tbh) and there's talk about sleep farting. They also do another HISTORICALLY FULLY SICK segment about someone we all know of, but most of us have no idea was a sickie.

Follow us on Twitter, Instagram and you can also join the Chronically Fully Sick Facebook group if you're a chronically ill babe like us.

~ LINKS ~

omfg ouch shop – omfgouch.redbubble.com

Sick: The Life and Death of Bob Flanagan, Supermasochist' – https://www.imdb.com/title/tt0120126/

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Yes! It's episode 4! Chloe and Joanna discuss how excellent it is that there's so many books about chronic illness coming out lately, do yet another QUACK WATCH about curing your fibromyalgia with the Bible (¯\_(ツ)_/¯) and also delve into a new segment called HISTORICALLY FULLY SICK where they have a respectful chat about a nice lil' mummy called Ötzi. They've also made some realisations about baby names, and finally acknowledged they probably both need exorcisms. Good for them!

You can follow Chronically Fully Sick here:

@ChronicFullSick on Twitter

@chronicallyfullysick on Insta

Learn more about us or get in touch at chronicallyfullysick.com.

~LINKS~

• Guardian Australia – Book Club: women vs the medical system
• Gabrielle Jackson – Pain & Prejudice: A Call to Arms for Women and Their Bodies
• Kylie Maslen – Show Me Where It Hurts
• Katerina Bryant – Hysteria
• SPOONIE ICON ÖTZI!! LINK 1 / LINK 2 / PIC

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Chloe and Joanna yak it out about the every spoonie's most hated phrase ('but you don't look sick!!'), imposter syndrome and choosing to identify as a disabled person, how unfeasibly hot Kylo Ren is, delve into yet another ~QUACK WATCH~ and they also try to become beauty influencers (lmaoooooo).

They also welcome their first guest: the stunning and illuminating angel Daphne Camf, a Melbourne-based perfumer and musician (NO ZU and SaD), who speaks about her experiences with endometriosis, vulvodynia, IBS, PMDD, fecal microbial transplants and more.

~THE STUNNING DAPHNE CAMF~

• Daphne Camf Perfume – https://www.facebook.com/daphnecamfperfume/
• NO ZU – https://nozu.bandcamp.com/
• SaD – https://sadsimonaanddaphne.bandcamp.com/album/saturn-rules-the-material-world

~OTHER LINKS~

• Disability-friendly beauty brand (that we forgot the name of because of fibro fog) Kohl Kreatives – https://www.kohlkreatives.com/
• Chloe's story about Selma Blair, 'Seeing Selma Blair at the Vanity Fair Oscars party brought me to tears', SBS Voices, – https://www.sbs.com.au/topics/voices/health/article/2019/02/26/seeing-selma-blair-vanity-fair-oscars-party-brought-me-tears

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Hosted on Acast. See acast.com/privacy for more information.

Your tumultuous introduction to the Chronically Fully Sick podcast. Mi casa es su casa.

In this inaugural episode, Chloe and Joanna discuss chronic pain, pills, Fibromyalgia, Yvie Oddly, Kathleen Hanna, y*ga and rude advice.

We swear a lot and Jo’s gone absolutely bloody nuts with a soundboard. We’re underwater aurally and metaphorically - please send help.

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