Today is Rare Disease Day.

It is held on the last day of February to raise awareness for rare diseases, generate change, and improve access to treatment and medical representation for the 300 million people worldwide living with a rare disease, their families and carers.

Communities in Clare are also aiming to raise awareness on Rare Disease Day.

To find out more, Alan Morrissey was joined in studio by Kilrush resident with Parry Romberg Syndrome, Cindy O’Brien, Board member & head of advocacy, Anne Micks and Kilrush resident who wrote a poem on Rare Disease Day, Loretta O’Dea O’Callaghan.

Photo (C): Clare FM