Craig Sicilia founder BIR

Unlovable Hosted by Craig Sicilia   But this is the feeling i have had inside since my accident, and there are many reasons I feel this, but the biggest is the unability to connect emotionally, the fear inside and the thoughts that sabatoge any chance of a healthy relationship, many donot know that I did write a book called "Lost Self" but it is dark and don't want to be known for this deep dark side of my injury, un-till my accident I never hated but there are a couple of people, family that that feeling of hate digs deep, making me unworthy of being loved... I promise i will put better detais on in the next week.

HEROES OF BRAIN INJURY - HOSTED BY CRAIG SICILIA In our TBI community in the last few years so many wonderful survivor and family leaders have emerged to to empower survivors and their families creating support and services that are real and meaningful, but most importantly driven by by those who need them.  For years organizations which have lost their original mission of why they became gave us what they wanted to now we the people the survivors and families affected by brain injury are building real support.  In this New Year 90 minute special we will have special guess Rick Franklin co-director of brain injury diologues, DJ Asselin admin of team hi level on facebook, Penny Condoll director of the Brain Energy Support Team, Joe Martin admin from facebooks TBI Survivors Network I, Janet Novenger consultant and trainer for BISGN, David McGuire from run to remember, Patrick Donahue founder of the Sarah Jane Brain Project, Darcy Keith educator and inspirationalist helping those with brain injury, Craig Sears advocate and educator, Tammi Diaz on line support blogs the Cats Meow and much much more this is one show you dont want to miss  Click the below link to see brief bios and websites of our HEROES http://api.ning.com/files/cs6nCjxdsxB-UUG-PSRfiPACY5k*0*FMPKJPRH7OxdjPrg0lRoPpCk3*jc4NiON1pMQo11-51Z8p4Q72Bd*Xs4wJfoAJniwx/bios.JPG

Hyperbaric Oxygen Therapy Craig Sicilia will be interviewing Dr. Schmidt from Tennessee hyperbaric and what it can do for brain injury and what you can expect Dr. Schmidt will discuss hyperbaric oxygen therapy as a treatment for traumatic brain injury on this talk show. During hyperbaric oxygen therapy at THC, patients relax in a six-person chamber and breathe 100% oxygen under pressure. This drives oxygen into cells, reviving them or helping them function. The Tennessee Hyperbaric Center uses 100% medical grade oxygen and is certified by the State of Tennessee. The staff is led by Medical Director Dr. Roy Schmidt. HBOT is the only non-hormonal treatment approved by the FDA for biologically repairing and regenerating human tissue. The Tennessee Hyperbaric Center, under direction of board certified anesthesiologist Dr. Roy Schmidt, offers hyperbaric oxygen therapy (HBOT) for a variety of health issues. Learn more at www.hyperbaricoxygentherapies.com.

BRAIN INJURY DISABILITY RIGHTS "nothing about us with out us" There is lots of focus around disability rights and inclusion but many of us with brain Injuries rights are ignored, many decisions our made for us, and about us with out out us.  Survivors compared to other disability communities have not stood up for our selves  to be included in all aspects of our services and how others would define us.  So we the survivors and families of survivors of the world need to join, to define who we want to be seen as, how we let others define us and the how they will support us,   We must be sure we as survivors and families develop and define are rules and how services and organization benefit the community of survivors rather than organization, as we know organizations will come and go but we the survivors will always be here, and will always have each other.  Together we can change the future for better outcomes of all who will sustain a brain injury.   No one knows what we are going through unless they have lived with the hidden or silent epidemic (brain injury)   Help us support our selfs, We want to be included in our support and have a say in what supports are developed for us.  We the brain injuried eveywhere need to be seen not the agencies who serve us.  How together we can create the community of support we want. Here is an example of what one area is doing to define what they want  and how they want to be seen as the community of brain injured persons, and will start the advocacy in how agencies and organizations give that support. http://www.tbiwa.org/news

Bullying is a national problem, taking away from the quality of peoples lives, bullying takes many forms, persons with disabilities are bullied in so many ways from our peers to the people who serve us.  We must learn to speak up for ourselves and others together we can stop this type of discrimination and improve the lives of everyone.  We will have a special guest Rose Moore who is a national advocate for persons with disabilities with some true stories of those who live with bulling everyday of their live.

It is our one year anniversary show, so I am bring on the folks who have inspired me, director of People First or Representative for Donna Lowary was the first person to accept this new me the person who I couldn't stand the most, Then Penny Condoll who believed in my concept of survivors being the leaders of their future and actually Lived it, and then Lorraine Shank one of the many educators who have allowed me to teach this concept of self empowerment and leadership to hundreds teenagers and young adults.  I get this hey Craig how do you do what you do and inspire so many, and I have to tell you it's the people I have the honor of working with who truly do the inspiring when we are empowered live is amazing.  We can inspire each other and as our brain injury community grows and we continue to establish partnerships with those in our community  amazing things happen for everyone.  You don't want to miss this one it is truly the grass roots of our movement -"Nothing about us with out us"

A BRAIN INJURY THRIVER PERSPECTIVE This show will focus on survivors' experiences with suicide, what they learned from them and how they have been thriving since. Kevin and Craig will share their own personal stories and unique perspectives on how they turned the lights on to thrive.

As our community of survivors has grown at such astronomical rates I find my self stuck sometimes keeping up with things and at times not putting priority on what is important because of things going so fast and intense with a world of obstacles being thrown at me from financial to emotional.  During the last week I have been reminded that i need to keep connected to people and groups and that is and should be a priority.  When it comes down to it, its the people who make the difference and finding that balance to where I can sustain what I am doing and providing that personal service that is my passion.  Sometimes things it going so fast i lose complete control of my life in all aspects, I let people down because I don't have the time to be involved in everything which again is the priority.  I wish I had a switch that I could turn off in my mind though I am real capable I lose it all when my brain goes to fast it, it goes fast to often anymore.  I just can’t process and prioritize when it seems to count most.  Lets talk how we over come this and focus on what is our priority and how can we continue finding purpose and hope

After spending several years after my injury, ashamed of my injury, hiding from those I thought loved me.  Being a punching bag because people did not understand and I could not explain it though I tried.  Hiding in the shadows of my own life, trapped with no where to run.  Only questioning why I am alive, praying that the pain will stop.  No one knows how it destroys ones soul as people look at you seeing nothing wrong but yet cannot accept you.  So after a couple of years I found a purpose again one that makes a difference and so many others are out there as well.  I am just over 5 years into my new me and I have to tell you the pain is still there, I question life, I wonder why, I beg God to stop the pain.  But through all of this I find strength in others, knowing that I am not alone.  Then I become angry because brain injury is the number one cause and death and disability among children and Adults under 40.  I ask myself why then just 5 years ago it was such a mystery, why no one told me, told my family, helped me understand..  So my purpose is to change this, to help survivors and their families take control of a system that has failed us for decades.  Our time is now fellow survivors let us change this, let our voices be heard.  Let us walk in the light with dignity and understanding.

well here we go, you have to love our tbi community I know I do, but the east coast is having a heat wave and here we froze during our camp out but it was how it was supposed to be just like to night someone needs to be able to have a voice let start the topic the types of support that are out there, the reason there are so many type is because that is the need.. OPEN MIC so call in lets keep the show going