We’re in a pivotal moment for health care equity and public health. Systems for tracking data on maternal mortality and chronic disease are being dismantled, with consequences that could last generations.

On this week’s episode of The Dose, Dr. Marcella Nunez-Smith joins host Joel Bervell to talk about who’s represented in the health data we collect, and who isn’t, and why it’s so important for “people to feel safe in sharing” their data and “to have trust that it’s protected.” Dr. Nunez-Smith also explains how her experience as a parent of a child with a rare disease frames how she approaches her work in health equity.