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Duchenne UK pushes tech to its limits to help those with the condition
This week we see the impact one charity is having on development of assistive technology for the degenerative condition Duchenne muscular dystrophy (DMD), which affects more than 300,000 people around the world. The technology is playing a vital role in keeping teenage dreams alive.
A mother and son tell their story; he has DMD, she’s founded a charity to tackle some of the big challenges in drug development in their search for a cure for DMD. In 13 years, Duchenne UK has raised more than £27 million and used this money to fund pioneering medical research, create a DMD clinical research network of hospital sites across the country, set up a national programme establishing best practice across all the disciplines involved in DMD clinical care, and develop innovative assistive mobility technologies, such as the arm-assist Elevex, to support the independence of people with DMD.
Somewhere on Earth meets Eli Crossley - musician, pupil, teenager, whose rock band was the youngest ever to perform at Glastonbury, Eli’s mum, co-founder and Chief Executive of Duchenne UK, Emily Reuben OBE, and Hayley Philippault, Head of Technology at Duchenne UK.
The programme is presented by Gareth Mitchell and the studio expert is Nick Kwek.
More on this week's stories:
Duchenne UK
Askew
Support the show
Editor: Ania Lichtarowicz
Production Manager: Liz Tuohy
Recording and audio editing : Lansons | Team Farner
For new episodes, subscribe wherever you get your podcasts or via this link:
https://www.buzzsprout.com/2265960/supporters/new
Follow us on all the socials:
If you like Somewhere on Earth, please rate and review it on Apple Podcasts
Contact us by email: [email protected]
Send us a voice note: via WhatsApp: +44 7486 329 484
Find a Story + Make it News = Change the World
Learn more about your ad choices. Visit megaphone.fm/adchoices
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By Somewhere on EarthSend us a text
Duchenne UK pushes tech to its limits to help those with the condition
This week we see the impact one charity is having on development of assistive technology for the degenerative condition Duchenne muscular dystrophy (DMD), which affects more than 300,000 people around the world. The technology is playing a vital role in keeping teenage dreams alive.
A mother and son tell their story; he has DMD, she’s founded a charity to tackle some of the big challenges in drug development in their search for a cure for DMD. In 13 years, Duchenne UK has raised more than £27 million and used this money to fund pioneering medical research, create a DMD clinical research network of hospital sites across the country, set up a national programme establishing best practice across all the disciplines involved in DMD clinical care, and develop innovative assistive mobility technologies, such as the arm-assist Elevex, to support the independence of people with DMD.
Somewhere on Earth meets Eli Crossley - musician, pupil, teenager, whose rock band was the youngest ever to perform at Glastonbury, Eli’s mum, co-founder and Chief Executive of Duchenne UK, Emily Reuben OBE, and Hayley Philippault, Head of Technology at Duchenne UK.
The programme is presented by Gareth Mitchell and the studio expert is Nick Kwek.
More on this week's stories:
Duchenne UK
Askew
Support the show
Editor: Ania Lichtarowicz
Production Manager: Liz Tuohy
Recording and audio editing : Lansons | Team Farner
For new episodes, subscribe wherever you get your podcasts or via this link:
https://www.buzzsprout.com/2265960/supporters/new
Follow us on all the socials:
If you like Somewhere on Earth, please rate and review it on Apple Podcasts
Contact us by email: [email protected]
Send us a voice note: via WhatsApp: +44 7486 329 484
Find a Story + Make it News = Change the World
Learn more about your ad choices. Visit megaphone.fm/adchoices