NETWise

Episode 1: What You Need to Know About NETs & NECs – Updated Episode


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If you’re new to this show, welcome. You’re in the right place. 

Maybe you’ve been recently diagnosed, or maybe you’re a longtime patient. Maybe someone you care about has neuroendocrine cancer. In any case, you probably have questions. What exactly is this disease? What is it doing in your body right now? And what should you be doing about it? This series will help you find answers to those questions. We’ll speak with some of the best experts on neuroendocrine tumors from all around the world, and you’ll hear NET patients share their experiences. We’ll explain what neuroendocrine cancer is, how it spreads, and explore current best practices in diagnosis and treatment.

This is a revised version of our very first episode. We’ve made some updates to reflect new terminology used to describe different kinds of neuroendocrine cancer. A special thank you to Thor Halfdanarson, MD for his help with this episode update.  

Thank you to the specialists that contributed to this episode: 

  • George Fisher, MD, is an oncologist at Stanford University Medical Center.
  • Pamela Kunz, MD, is an oncologist at the Yale Cancer Center.
  • Eric Nakakura, MD, is a surgeon at the University of California, San Francisco. 
  • Thor Halfdanarson, MD, is an oncologist at the Mayo Clinic in Minnesota.
  • Dan Halperin, MD, is a medical oncologist and researcher at the MD Anderson Cancer Center at the University of Texas in Houston. 
  • Xavier Keutgen, MD, is a surgical oncologist from UChicago Medicine.
  • Ed Wolin, MD, is an oncologist and director of the Center for Carcinoid and Neuroendocrine Tumors at Mt. Sinai in New York.
  • David Metz, MD, was the co-director of the Neuroendocrine Tumor Program at the University of Pennsylvania until his retirement in 2021. 

Thank you to Wendy Knoll and Marilyn Kline for sharing their story. 

This episode is dedicated to the memory of Marilyn, who passed away after the production of the original episode.

Special thanks to our sponsors for their support of this podcast:

Learn about the nervous system, the endocrine system, and the role neuroendocrine cells serve as translators.

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Learn about symptoms and misdiagnosis. Were you given a wrong diagnosis? What were your symptoms? See how misdiagnosis happens and how symptoms can align with the wrong condition.

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Visualize stage, differentiation, and grade. What do these mean and what do these say about neuroendocrine tumors?

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Download a transcript of this episode
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Helpful links:

NET Knowledge Center

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NETRF YouTube Channel

The post Episode 1: What You Need to Know About NETs & NECs – Updated Episode appeared first on NETRF.

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