March 28th is Progressive MS Day. While only about 15% of the people diagnosed with MS are initially given a diagnosis of Primary Progressive MS, about 65% of the people who are diagnosed with relapsing-remitting MS will eventually develop Secondary Progressive MS. And the difference between progressive MS and relapsing-remitting MS is that, usually, people diagnosed with Progressive MS don't experience any remission in their disease progression. Their MS just seems to worsen more steadily over time.   And while we have more than a dozen approved disease-modifying therapies for relapsing-remitting MS, we have just one approved disease-modifying therapy for progressive MS. So using Progressive MS Day to highlight the need for more research, more treatments, and more attention to be paid to this less popular but more devastating MS sub-type is important.     My guest on the podcast is Kevin Reid, who was diagnosed with relapsing-remitting MS in 2002, and is now living with progressive MS. We'll get Kevin's thoughts about Progressive MS Day and hear about his very successful efforts as an MS Warrior.   We're also talking about a stem cell clinical trial aimed at progressive MS (the National MS Society has invested $1 million in this clinical trial), why neurologists don't seem to be following the recommended guidelines for treating older people living with progressive MS, you'll hear about a couple of excellent MS Association of America webinars and podcasts that focus on the impact of MS on families, and a global webcast that's being hosted by the MS International Federation, featuring some of the top progressive MS experts in the world -- it's a webcast that you won't want to miss.   We have a lot to talk about! Are you ready for RealTalk MS?!   ___________

Progressive MS Day  1:45

MSAA Webinars & Podcasts Focus on Impact of MS on Families  4:31

Neurologists Aren't Following One Particular MS Treatment Guideline  6:10

National MS Society Funds New Clinical Trial Using Individuals' Own Stem Cells to Treat Progressive MS  9:31

In Global Webcast, Top Experts Will Discuss Solving Progressive MS: Progress Achieved and Hope for the Future 11:09

My Interview with Kevin Reid  14:06

Join the RealTalk MS Conversation  27:11

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ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes.

Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected]Phone: (310) 526-2283

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LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

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Podcast: Exploring Relationships & MS with Miriam Franco, MSW, PsyD, MSCS

Webinar: Intimacy & Family Planning with MS with Kimberly Castelo, LMFT, CST, CIIP

Webinar: The Partnership of Care: Redefining Caregiver to Care Partner with Megan Weigel, DNP, ARNP-c, MSCN

Podcast: Spotlighting Care Partner Needs with Lara Krawchuk, MSW, LCSW, MPH

Use and Cost of Disease-Modifying Therapy Between 2008 and 2009: Are Neurologists Adhering to Treatment Guidelines?   National MS Society Funds New Clinical Trial of Individuals' Own Stem Cells to Treat Progressive MS   Solving Progressive MS Global Webcast Registration   Crush MS

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RealTalk MS Episode 83 Hosted By: Jon Strum Guest: Kevin Reid

Tags: MS, MultipleSclerosis, MSResearch, mssociety, ProgressiveMS, MSAssociation, MSIF, CrushMS, Stemcells, RealTalkMS