By Jon Strum
4.7
135135 ratings
The podcast currently has 449 episodes available.
Clinical assistant professor and rehabilitation psychologist at the University of Michigan, Dr. Evan Smith, joins me to discuss how to identify and reconnect with your core values and live a more purposeful and satisfying life.
We'll also tell you about Creating Order, an art exhibit featuring 12 artists living with MS. (Don't miss our conversation with the co-curators and lead artist in this unique exhibit!)
And we're sharing the details of MS Stand Up, a night of comedy and cocktails at the Gotham Comedy Club.
We have a lot to talk about! Are you ready for RealTalk MS??!
This Week: Greetings from ECTRIMS! :22
Our 7th anniversary is one week away! 2:00
Coming Up: The importance of staying connected to your core values 2:30
Creating Order art exhibit features 12 artists living with MS 3:35
My conversation with Creating Order co-curators Pam Schoenberg and Ted Meyer, and lead artist, Susan Trachman 4:27
MS Stand Up is happening September 30 at the Gotham Comedy Club 15:24
Dr. Evan Smith discusses how to lead a purposeful life while living with MS 16:54
Share this episode 33:17
Have you downloaded the free RealTalk MS app? 33:38
SHARE THIS EPISODE OF REALTALK MS
Just copy this link & paste it into your text or email: https://realtalkms.com/368
ADD YOUR VOICE TO THE CONVERSATION
I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!
Email: [email protected] Phone: (310) 526-2283
And don't forget to join us in the RealTalk MS Facebook group!
LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com
Creating Order exhibit at the DNJ Gallery https://dnjgallery.net
MS Stand Up https://msstandup.org
Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms
Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200
Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk
Give RealTalk MS a rating and review http://www.realtalkms.com/review
Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.
RealTalk MS Episode 368 Guests: Pam Schoenberg, Ted Meyer, Susan Trachman, Dr. Evan Smith
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Living with MS is expensive. A recent study funded by the National MS Society found the average cost of living with MS in the United States is $88,487 a year. Even with insurance, that can turn out to be a heavy lift.
One thing you don't need is to be worrying about money while you're already worrying about MS. So, when I think about discussing budgeting and managing your personal finances when you're living with MS, I think we're really talking about preserving your quality of life.
Joining me with strategies for budgeting and managing debt when you're living with MS is the Senior Vice President of Membership and Media Relations at the National Foundation for Credit Counseling, Bruce McClary.
We'll also tell you about the updated Pathways to Cures Research Roadmap and the first ever global landscape analysis of MS research funding.
We're sharing very encouraging results from the Phase 2 open-label extension study of Fenebrutinib, an experimental BTK inhibitor.
We'll give you the details of a pilot study that demonstrated what may be a successful treatment for sexual dysfunction among men and women living with MS.
We'll tell you why middle-aged people with MS may want to consider resistance training.
And we'll tell you how to register for the National MS Society's Voting Without Barriers webinar.
We have a lot to talk about! Are you ready for RealTalk MS??!
This Week: Budgeting for Living with MS :22
The Pathways to Cures Research Roadmap has been updated and refined 1:25
There's very encouraging news from the Phase 2 open-lable extension study of Fenebrutinib 5;31
Results from a pilot study point to successful treatment for sexual dysfunction among men and women living with MS 6:35
Study results show that resistance training is beneficial for middle-aged people with MS 9:52
We're 8 weeks away from election day in the U.S. and the National MS Society is hosting a webinar about access to polling places 11:36
Senior Vice President of Membership and Media Relations at the National Foundation for Credit Counseling, Bruce McClary, shares tips and strategies for taming your household budget and budgeting for living with MS 15:49
Share this episode 33:16
Have you downloaded the free RealTalk MS app? 33:36
SHARE THIS EPISODE OF REALTALK MS
Just copy this link & paste it into your text or email: https://realtalkms.com/367
ADD YOUR VOICE TO THE CONVERSATION
I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!
Email: [email protected] Phone: (310) 526-2283
And don't forget to join us in the RealTalk MS Facebook group!
LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com
RealTalk MS Episode 297: From the Pathways To Cures Global Summit (Part 1) https://realtalkms.com/297
RealTalk MS Episode 298: From the Pathways to Cures Global Summit (Part 2) https://realtalkms.com/298
The Refined Pathways To Cures Research Roadmap https://journals.sagepub.com/doi/10.1177/13524585241266483
The First Global Landscape Analysis of Multiple Sclerosis Research Funding https://journals.sagepub.com/doi/full/10.1177/13524585241265961
STUDY: Tibial Nerve Stimulation in the Management of Primary Sexual Dysfunction in Patients with Multiple Sclerosis: A Pilot Randomized Control Trial https://link.springer.com/article/10.1007/s10072-024-07687-2
STUDY: Is Resistance Training an Option to Improve Functionality and Muscle Strength In Middle-Aged People with Multiple Sclerosis? A Systematic Review and Meta-Analysis https://www.mdpi.com/2077-0383/13/5/1378
REGISTER for the Voting Without Barriers Webinar https://p2a.co/Dqy1Xpk
Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms
Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200
Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk
Give RealTalk MS a rating and review http://www.realtalkms.com/review
Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.
RealTalk MS Episode 367 Guest: Bruce McClary
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Most of us know Medicare as health insurance for Americans who are 65 or older, but when they qualify for Social Security disability benefits, people younger than 65 automatically qualify for Medicare. Today, between 25 and 30% of the people living with MS are Medicare beneficiaries.
Whether you already have Medicare or you'll be signing up for Medicare in the future, getting the right coverage requires making some important choices.
Licensed Medicare Advisor Laquel Thomas joins me with tips, strategies, and explanations for successfully navigating Medicare and getting the coverage you need.
We’re explaining the good news in the results from a Phase 3 clinical trial for Tolebrutinib, Sanofi’s experimental oral BTK inhibitor. The trial showed that, compared to placebo, Tolebrutinib met the primary endpoint, delaying the onset of confirmed disability progression in people with non-relapsing secondary progressive MS.
Take My Hand is an Australian film based on the true story of Claire Jensz, a mother of three living in London who is diagnosed with MS at the peak of her high-powered career. Be sure to catch my conversation with Claire, Radha Mitchell, the film's star, and John Raftopoulos, the film's director.
We're sharing the details of a study that may have uncovered an underlying cause of MS and, perhaps, all autoimmune diseases.
We'll tell you about the results of a stem cell study that show MS may involve more than just immune cells.
And we'll give you what may be surprising details of a study that focused on how MS impacts the quality of life of fully ambulatory people living with mild MS symptoms.
We have a lot to talk about! Are you ready for RealTalk MS??!
This Week: Making the right Medicare choices :22
There's good news about the results of the Phase 3 clinical trial for Tolebrutinib 1:41
My conversation with the director, star, and woman whose story about living with MS is the real-life basis for the new film, Take My Hand 4:28
Have researchers at Yale discovered an underlying cause of MS? 14:11
Newly published results of a stem cell study show that MS may also be driven by brain cells 17:19
Study results show how MS impacts the quality of life among fully ambulatory people with mild MS symptoms 19:15
Licensed Medicare Advisor, Laquel Thomas, explains all the variables you want to consider in making choices about your Medicare coverage 22:12
Share this episode 33:40
Have you downloaded the free RealTalk MS app? 34:01
SHARE THIS EPISODE OF REALTALK MS
Just copy this link & paste it into your text or email: https://realtalkms.com/366
ADD YOUR VOICE TO THE CONVERSATION
I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!
Email: [email protected] Phone: (310) 526-2283
And don't forget to join us in the RealTalk MS Facebook group!
LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com
TRAILER: Take My Hand https://youtu.be/PdNMb7-AeEs
STUDY: An Autoimmune Transcriptional Circuit Drives FOXP3+ Regulatory T-Cell Dysfunction https://www.science.org/doi/10.1126/scitranslmed.adp1720
STUDY: Patient iPSC Models Reveal Glia-Intrinsic Phenotypes in Multiple Sclerosis https://www.sciencedirect.com/science/article/abs/pii/S1934590924002881
STUDY: Determinants of Self-Perceived Quality of Life in Mildly Disabled Multiple Sclerosis Patients: A Cross-Sectional Study https://pubmed.ncbi.nlm.nih.gov/38526763
Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms
Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200
Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk
Give RealTalk MS a rating and review http://www.realtalkms.com/review
Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.
RealTalk MS Episode 366 Guest: Claire Jensz, John Raftopolous, Radha Mitchell, Laquel Thomas
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If you're a regular listener, you know that I rely on the RealTalk MS listener community to let me know which topics you'd like to hear about on this podcast. A few years ago, in episode 264, listener Dawnia Baynes did a podcast takeover, and interviewed me. Since then, I've heard from a bunch of you who, for some reason, want to hear more about me. So, when listener Kyra Millich asked if she could interview me, it felt like it was time.
In today's episode, you'll find out what I like to do when I'm not doing this podcast, I'll share some of the most memorable moments in my life, you'll hear how and why I started RealTalk MS, and I hope you'll get to know me a little better.
You'll also hear about results from a study that show people with MS are far less likely to be diagnosed with Alzheimer's disease compared to people who don't have MS.
We'll tell you about a Phase 1 clinical trial for a CAR-T cell therapy for MS.
And you'll learn the details of a different Phase 1 clinical trial for a different CAR-T cell therapy for MS.
We have a lot to talk about! Are you ready for RealTalk MS??!
This Week: Jon gets interviewed :22
Study results show people with MS are less likely to get Alzheimer's disease than people who don't have MS 1:23
TG Therapeutics announces Phase 1 clinical trial of CAR-T cell therapy for MS 3:44
FDA clears Immpact Bio for Phase 1 clinical trial of CAR-T cell therapy for hard-to-treat MS 7:13
Listener Kyra Millich interviews Jon 8:48
Share this episode 40:03
Have you downloaded the free RealTalk MS app? 40:23
SHARE THIS EPISODE OF REALTALK MS
Just copy this link & paste it into your text or email: https://realtalkms.com/365
ADD YOUR VOICE TO THE CONVERSATION
I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!
Email: [email protected] Phone: (310) 526-2283
And don't forget to join us in the RealTalk MS Facebook group!
LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com
STUDY: Unexpected Low Rate of Amyloid-β Pathology in Multiple Sclerosis Patients https://onlinelibrary.wiley.com/doi/10.1002/ana.27027
Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms
Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200
Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk
Give RealTalk MS a rating and review http://www.realtalkms.com/review
Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.
RealTalk MS Episode 365
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Getting an MS diagnosis is not always the quick, straightforward process we'd like it to be. For some people, the process can drag on for years. But getting that diagnosis only happens when you and your primary care physician recognize that something's going on.
It might be a sudden vision issue. Maybe it's unexplained tingling in an arm or leg. Or maybe it's something more acute that gets your attention. A wide variety of signs could point to MS, but they could also point to other health conditions.
Dr. Leorah Freeman, Director of the Multiple Sclerosis and Neuroimmunology Center at Dell Medical School at the University of Texas at Austin, joins me this week to help us better understand the signs and symptoms of multiple sclerosis.
Just as COVID-19 viral activity is increasing across the United States, we're sharing the results of a study that should put your mind at ease and motivate you to get that COVID-19 booster vaccination when it becomes available next month.
We'll tell you about a Phase 1 clinical trial that's getting underway for a novel cell therapy that may be effective in stopping MS.
You'll hear about a grant from the National Institutes of Health that will fund a study on the fear of falling among people with MS.
The 16th annual Burgers to Beat MS fundraising event is taking place on August 22nd at A&W locations across Canada. We'll give you the details on how you can participate -- whether you happen to be in Canada or not!
We have a lot to talk about! Are you ready for RealTalk MS??!
This Week: Understanding the signs and symptoms of MS :22
Study results show no increase in the risk of an MS relapse after COVID-19 vaccination booster 1:43
Phase 1 clinical trial of a novel cell-based therapy for MS is underway 4:12
NIH grant to investigate the fear of falling among people with MS 7:13
Burgers to Beat MS is happening at A&W locations across Canada on August 22nd! 9:28
Dr. Leorah Freeman discusses the sometimes confusing signs and symptoms of MS 11:09
Share this episode 28:36
Have you downloaded the free RealTalk MS app? 28:56
SHARE THIS EPISODE OF REALTALK MS
Just copy this link & paste it into your text or email: https://realtalkms.com/364
ADD YOUR VOICE TO THE CONVERSATION
I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!
Email: [email protected] Phone: (310) 526-2283
And don't forget to join us in the RealTalk MS Facebook group!
LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com
STUDY: Risk of Relapse After COVID-19 Vaccination Among Patients with Multiple Sclerosis in France https://www.neurology.org/doi/10.1212/WNL.0000000000209662
Burgers to Beat MS https://burgerstobeatms.ca
Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms
Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200
Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk
Give RealTalk MS a rating and review http://www.realtalkms.com/review
Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.
RealTalk MS Episode 364 Guest: Dr. Leorah Freeman
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For some people, getting in their car and heading for, well, anywhere represents freedom and independence. For others, it's a way to get to their jobs, get to their medical appointments, get the kids to school, and run necessary errands. MS can change all of that.
Occupational Therapist and Certified Driver Rehabilitation Specialist Jenny Nordine joins me to discuss how to preserve your independence while protecting yourself and the people around you when you're driving with MS.
You'll also meet Dr. Susan Seizer, a true difference-maker and one of the founders of the Mobility Aids Lending Library.
We have a lot to talk about! Are you ready for RealTalk MS??!
This Week: Maintaining your independence and keeping yourself and others around you safe when you're driving with MS :22
Dr. Susan Seizer discusses the Mobility Aids Lending Library and the stigma of disability 1:26
Occupational Therapist and Certified Driver Rehabilitation Specialist, Jenny Nordine, discusses how to preserve your independence while protecting yourself and the people around you when you're driving with MS 20:35
Share this episode 31:25
Have you downloaded the free RealTalk MS app? 31:45
SHARE THIS EPISODE OF REALTALK MS
Just copy this link & paste it into your text or email: https://realtalkms.com/363
ADD YOUR VOICE TO THE CONVERSATION
I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!
Email: [email protected] Phone: (310) 526-2283
And don't forget to join us in the RealTalk MS Facebook group!
LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com
Mobility Aids Lending Library https://mcpl.info/commorg/mobility-aids-lending-library-mall
Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms
Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200
Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk
Give RealTalk MS a rating and review http://www.realtalkms.com/review
Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.
RealTalk MS Episode 363 Guest: Dr. Susan Seizer, Jenny Nordine OT/L, CDRS
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Integrative medicine brings conventional and complementary treatments together in a coordinated way. This approach to health and wellness represents a growing trend across the United States, especially among people who live with a chronic disease like MS.
Dr. Lynne Shinto joins me to explain what integrative medicine is and how to safely incorporate complementary treatments into your MS care plan.
We'll also tell you about study results that show how the common cold, flu, or a urinary tract infection can all contribute to MS worsening.
We'll tell you about the research team that has successfully used an artificial intelligence algorithm to predict future MS disability progression.
We'll share the details behind the work of another research team that successfully used an artificial intelligence algorithm to reliably diagnose MS.
The European Union's AI Act went into effect last week. We're explaining all the ways this new law will impact healthcare.
We have a lot to talk about! Are you ready for RealTalk MS??!
Remembering June Halper :22
This Week: Decoding Integrative Medicine 1:58
STUDY: Infections outside the central nervous system contribute to MS worsening 2:42
STUDY: Artificial intelligence model reliably predicts future MS disability progression 5:33
STUDY: Artificial intelligence model uses retinal imaging to reliably diagnose MS 7:51
How the European AI Act will impact healthcare 10:33
Dr. Lynne Shinto discusses the role of Integrative Medicine in treating MS 14:55
Share this episode 28:49
Have you downloaded the free RealTalk MS app? 29:09
SHARE THIS EPISODE OF REALTALK MS
Just copy this link & paste it into your text or email: https://realtalkms.com/362
ADD YOUR VOICE TO THE CONVERSATION
I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!
Email: [email protected] Phone: (310) 526-2283
And don't forget to join us in the RealTalk MS Facebook group!
LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com
STUDY: Systematic Inflammation Associates With and Precedes Cord Atrophy in Progressive Multiple Sclerosis https://academic.oup.com/braincomms/article/6/3/fcae143/7655554
STUDY: Longitudinal Machine Learning Modeling of MS Patient Trajectories Improves Predictions of Disability Progression https://pubmed.ncbi.nlm.nih.gov/34146771
STUDY: SLO-NET: Enhancing Multiple Sclerosis Diagnosis Beyond Optical Coherence Tomography Using Infrared Laser Reflectance Scanning Ophthalmoscopy Images https://tvst.arvojournals.org/article.aspx?articleid=2800432
Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms
Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200
Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk
Give RealTalk MS a rating and review http://www.realtalkms.com/review
Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.
RealTalk MS Episode 362 Guests: Dr. Lynne Shinto
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Less than two weeks ago, the National MS Society announced the appointment of Dr. Tim Coetzee as its new President and CEO. The MS Society's board chair, Peter Porrino, commented, "Tim is a trusted voice of the global MS community, a highly respected scientist, and we are excited for him to bring his transformative leadership to drive us into our next era to achieve a world free of MS."
I thought it was important for everyone in the RealTalk MS listener community to hear from Tim and learn firsthand what his vision and priorities are for the MS Society. So, I'm dedicating this entire episode to my conversation with the new President and CEO of the National MS Society, Dr. Tim Coetzee.
We have a lot to talk about! Are you ready for RealTalk MS??!
This Week: A conversation with the new President and CEO of the National MS Society, Dr. Tim Coetzee :22
Share this episode 28:32
Have you downloaded the free RealTalk MS app? 28:52
SHARE THIS EPISODE OF REALTALK MS
Just copy this link & paste it into your text or email: https://realtalkms.com/361
ADD YOUR VOICE TO THE CONVERSATION
I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!
Email: [email protected] Phone: (310) 526-2283
And don't forget to join us in the RealTalk MS Facebook group!
LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com
Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms
Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200
Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk
Give RealTalk MS a rating and review http://www.realtalkms.com/review
Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.
RealTalk MS Episode 361 Guest: Dr. Tim Coetzee
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It's hard to imagine any area of our lives that hasn't been transformed by digital technology. That's certainly true for healthcare in general and MS diagnosis and treatment in particular.
Dr. Riley Bove joins me to discuss the role that digital technology already plays in the diagnosis and treatment of MS and to share a preview of what's coming next.
The National MS Society has named its new President and CEO. We're sharing the details!
We'll tell you about some of the benefits that are being observed in the Phase 2 clinical trial and extension study of Frexalimab, an experimental antibody that may be on the path to becoming a highly effective disease-modifying therapy.
We'll share the details behind the FTC's planned lawsuit against the three largest Pharmacy Benefit Managers (and we'll tell you why that matters to anyone taking a prescription medication).
Stressing out about an upcoming MRI exam? We're sharing info about Happy MRI, a website that's been designed to relieve MRI-related anxiety.
And we're reminding you that Crush MS, the Napa Valley wine-tasting fundraising event, is happening this Saturday, July 27th. We'll let you know where to get your ticket!
We have a lot to talk about! Are you ready for RealTalk MS??!
This Week: The impact of digital technology :22
Dr. Tim Coetzee named the President and CEO of the National MS Society 1:50
Frexalimab shows significant benefits in Phase 2 clinical trial 4:08
FTC to file suit against three largest Pharmacy Benefit Managers 6:08
Happy MRI is designed to relieve MRI-related anxiety 8:03
We're just days away from Crush MS 9:47
Dr. Riley Bove discusses how digital technology is changing MS diagnosis and treatment 11:21
Share this episode 28:54
Next week: Newly named President and CEO of the National MS Society, Dr. Tim Coetzee, talks about his vision for the MS Society and shares his immediate priorities 29:14
Have you downloaded the free RealTalk MS app? 29:32
SHARE THIS EPISODE OF REALTALK MS
Just copy this link & paste it into your text or email: https://realtalkms.com/360
ADD YOUR VOICE TO THE CONVERSATION
I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!
Email: [email protected] Phone: (310) 526-2283
And don't forget to join us in the RealTalk MS Facebook group!
LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com
RealTalk MS Episode 359: The Unraveling with Dr. Nara Michaelson https://realtalkms.com/359
Happy MRI https://happymri.com
CRUSH MS https://crushms.org
Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms
Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200
Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk
Give RealTalk MS a rating and review http://www.realtalkms.com/review
Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.
RealTalk MS Episode 360 Guests: Dr. Riley Bove
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As Harvard Fellow Dr. Nara Michaelson treated women who had been recently diagnosed with MS, she recognized they shared characteristics that she had observed in victims of violent domestic abuse. Dr. Michaelson's observation led her to write The Unraveling, an essay that highlights the fear that can accompany the uncertainty of living with MS.
Dr. Michaelson joins me to discuss the experiences that led to her award-winning essay and to share resources that can help maintain your emotional health and well-being in a good place when you're living with MS.
We're also sharing the details about BEAT-MS, a clinical trial that will compare autologous hematopoietic stem cell transplantation (AHSCT) with high-efficacy disease-modifying therapies when it comes to reducing or eliminating MS relapse activity. And we'll let you know how to find out if you could be a potential participant in this important clinical trial.
We'll tell you about the FDA approval granted to Abata Therapeutics to conduct a Phase 1 clinical trial of ABA-101, their experimental therapy for progressive MS.
We're sharing news about the Federal Trade Commission's newly released report on Pharmacy Benefit Managers. (And we'll tell you why this matters to every person in the United States who takes a prescription medication)
And we'll tell you about Take Charge, a new virtual program from Can Do MS that you can participate in at no cost!
We have a lot to talk about! Are you ready for RealTalk MS??!
This Week: The Unraveling :22
BEAT-MS clinical trial compares AHSCT with high-efficacy DMTs 1:58
FDA clears ABA-101 for Phase 1 clinical trial 5:17
FTC is turning its focus to Pharmacy Benefit Managers 6:55
Can Do MS offers new Take Charge virtual program 11:47
Dr. Nara Michaelson discusses her award-winning essay, The Unraveling 13:23
Share this episode 29:15
Next week: Dr. Riley Bove discusses how digital technology has become a game-changer in diagnosing, treating, and managing MS 29:35
Have you downloaded the free RealTalk MS app? 29:55
SHARE THIS EPISODE OF REALTALK MS
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LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com
The Unraveling https://neurology.org/doi/10.1212/WNL.0000000000209492
BEAT-MS Clinical Trial https://beat-ms.org
RealTalk MS Episode 205: A Potentially Transformational Therapy for Progressive MS with Samantha Singer and Dr. Richard Ransohoff https://realtalkms.com/205
FTC Report -- Pharmacy Benefit Managers: The Powerful Middlemen Inflating Drug Costs and Squeezing Main Street Pharmacies https://ftc.gov/system/files/ftc_gov/pdf/pharmacy-benefit-managers-staff-report.pdf
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RealTalk MS Episode 359 Guests: Dr. Nara Michaelson
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