The TEAAMS study examines the effects of a remotely delivered, racially-tailored exercise training program among African-Americans with MS, who are living in low-income areas of the Southeastern United States, which is a part of the country that doesn't have many primary care or MS clinics that provide full exercise and rehabilitation services for patients with MS.

Ashli, who lives with MS and has completed the TEAAMS program, and Victoria, a behavioral coach who has worked with several study participants, join me this week to share their experiences in the study.

We're also talking about a new Phase1/2 clinical trial for another investigative CAR-T therapy. (And we'll explain what a Phase 1/2 trial is)

We'll tell you about TG Therapeutics' plans for Briumvi, as well as their investigative CAR-T therapy.

We'll tell you about the Phase 2 clinical trial for Contineum Therapeutics' oral remyelination therapy.

We'll share the details of a study that shows ballroom dancing delivers both physical and psychological benefits to people with MS. 

We'll share some potentially good news about managing MS-related fatigue.

And we'll give you a new opportunity to participate in MS research.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: Inside the TEAAMS study  :22

Cabaletta Bio announces Phase 1/2 trial for CAR-T therapy  1:45

TG Therapeutics will develop an injectable formulation for Briumvi  5:45

Contineum Therapeutics completes recruitment for Phase 2 trial for an oral remyelination therapy  7:52

Study shows that ballroom dancing delivers physical and psychological benefits for people with MS  9:05

Study shows that Elevida, an online German fatigue intervention, significantly reduces MS-related fatigue   11:32

Ashli and Victoria share their experience in the TEAAMS study    15:37

Share this episode  32:57

Have you downloaded the free RealTalk MS app?  33:17

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/387

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

RealTalk MS on YouTube https://www.youtube.com/@RealTalkMS

STUDY: Ballroom Dancing for People with Multiple Sclerosis: Perceptions of the Experience https://meridian.allenpress.com/ijmsc/article/26/Q4/355/504470/Ballroom-Dancing-for-People-With-Multiple

PARTICIPATE IN MS RESEARCH: Targeted Exercise for African-Americans with Multiple Sclerosis (TEAAMS) https://projectteaams.ahs.uic.edu/

PARTICIPATE IN MS RESEARCH: Confirmatory Trial for Alleviating Fatigue in MS (CAFE-MS)https://cafems.iconquerms.org/

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 387 Guests: Ashli and Victoria

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MS symptoms can worsen, and relapses can occur. And when that happens, how do you know whether you require immediate medical care? When is it time to go to the hospital? Dr. Kalina Sanders joins me to talk about when it's time to seek immediate medical care for MS.

Dr. Sanders is a board-certified neurologist who specializes in multiple sclerosis and spasticity management at Baptist Health in Jacksonville Beach, Florida.

We're also talking about MS care in the United Arab Emirates with Professor Bassem Yamout, the President of the Middle East North Africa Committee for Treatment and Research in Multiple Sclerosis.

We'll explain why Bayer's new MRI contrast agent is good news for people with MS.

We'll tell you about a new Federal Trade Commission report that calls out Pharmacy Benefit Managers for inflating the price of generic specialty drugs by thousands of percent.

We'll share the details of a study that shows the profound impact of menopause on MS.

And we're sharing two different opportunities for you to participate in MS research.

We have a lot to talk about! Are you ready for RealTalk MS??!

A word about Facebook posts  :22

This Week: Worsening symptoms? Relapse? When is it time to go to the Emergency Room?  1:46

FTC reports Pharmacy Benefit Managers have marked up generic specialty drugs 1000s of percent  2:20

Bayer's new MRI contrast agent contains 60% less gadolinium  4:57

Professor Bassem Yamout discusses MS in the United Arab Emirates  6:48

Study reveals menopause significantly increases the speed of disability worsening and brain cell damage in women with MS  15:08

Two opportunities for you to participate in MS research  17:38

Dr. Kalina Sanders explains when it's time to seek immediate medical care for MS     19:54

Share this episode  31:42

Have you downloaded the free RealTalk MS app?  32:02

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/386

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

RealTalk MS on YouTube https://www.youtube.com/@RealTalkMS

Federal Trade Commission Interim Report on Pharmacy Benefit Managers and Specialty Generic Drugs https://www.ftc.gov/reports/specialty-generic-drugs-growing-profit-center-vertically-integrated-pharmacy-benefit-managers

Bayer Announces MRI Contrast Agent Gadoquatrane Meets Primary and Main Secondary Endpoints in Pivotal Phase III Studies https://www.businesswire.com/news/home/20250109869429/en/Bayers-investigational-MRI-contrast-agent-gadoquatrane-meets-primary-and-main-secondary-endpoints-in-pivotal-Phase-III-studies

STUDY: Association of Menopause with Functional Outcomes and Disease Biomarkers in Women with Multiple Sclerosis https://www.neurology.org/doi/10.1212/WNL.0000000000210228

PARTICIPATE IN MS RESEARCH: Psychometric Properties of Sexual Difficulties Scales in People Living with Multiple Sclerosis https://qualtrics.kcl.ac.uk/jfe/form/SV_br1fVoYGqXnLooK

PARTICIPATE IN MS RESEARCH: Efficacy and Safety Study of Frexalimab in Adults with Nonrelapsing Secondary Progressive Multiple Sclerosishttps://www.sanofistudies.com/SR0A/

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 386 Guests: Professor Bassem Yamout, Dr. Kalina Sanders

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This special episode of RealTalk MS is sponsored by EMD Serono and is only intended for a U.S. audience. EMD Serono is the healthcare business of Merck, KGaA, Darmstadt, Germany, in the United States and Canada.

In this special episode of RealTalk MS, Dr. Mary Rensel and Amanda Montague join me to explore HCP (Healthcare Provider) burnout and patient empowerment; and we'll be taking a close look at how patients and their healthcare providers can work together to support one another.

Dr. Mary Rensel is an Assistant Professor of Medicine at the Cleveland Clinic Lerner College of Medicine and Director of Pediatric Multiple Sclerosis and Wellness at the Mellen Center for Multiple Sclerosis at the Cleveland Clinic.

Amanda Montague is a global thought leader and Chief Mission Officer at the Multiple Sclerosis Association of America. Amanda is also an active member of the MS in the 21st Century initiative, more commonly known as MS21. MS21 is a Merck KGaA, Darmstadt, Germany, initiative involving healthcare professionals, or HCPs, and patient advocates.

To learn more about MS in the 21st Century, please visit www.msinthe21stcentury.com.

The new year brings with it several significant benefits for many people affected by MS. We're reviewing how the nearly 400,000 people with MS who rely on Medicare for their health insurance will save thousands of dollars, how people with MS who currently have medical debt will see a big improvement on their credit report, and how people who fly with their mobility device will see major improvements in how the airlines treat them.

We're also talking with Craig Bianco about his experience as a member of the Care Partner Advisory Board creating the MS Care Partner Connection web portal.

And we'll tell you about the Phase 1 clinical trial for the Epstein-Barr Virus vaccine that's getting underway.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: Where to get support if you have MS and you're a victim of the Southern California fires   :22

Here's where and how 2025 is delivering new and improved benefits for many people with MS  2:06

Department of Transportation adopts new rules to improve flying for people with disabilities  10:26

Modex Therapeutics, in collaboration with Merck, announces Phase 1 clinical trial for Epstein-Barr Virus vaccine  14:03

Craig Bianco talks about his experience as a member of the Care Partner Advisory Board creating the MS Care Partner Connection web portal     17:26

Share this episode  29:12

Have you downloaded the free RealTalk MS app?  29:32

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/385

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

RealTalk MS on YouTube https://www.youtube.com/@RealTalkMS

MS Care Partner Connection https://mscarepartnerconnection.com

Find Out How You Can Become an MS Activist https://nationalmssociety.org/advocacy

RealTalk MS Episode 302: De-Stressing Air Travel if You're Living with MS with Dr. Scott Crawford https://realtalkms.com/302

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 385 Guest: Craig Bianco

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There are genetic risks associated with MS, there are demographic risks of experiencing a more severe disease course, and there are also behavioral and lifestyle risks that will increase the chance that someone will be diagnosed with MS. Joining me today to discuss behavioral and lifestyle MS risk factors and how they can be mitigated are Doctor Jared Bruce and Dr. Amanda Bruce.

Dr. Jared Bruce is a neuropsychologist and the director of psychiatric research at the University of Missouri-Kansas City School of Medicine. Dr. Amanda Bruce is a clinical psychologist and an assistant professor in the Department of Behavioral Pediatrics at the University of Kansas Medical Center.

We're also reviewing the details of the Inflation Reduction Act, which means, beginning in 2025, significantly lower out-of-pocket costs for prescription medications for the quarter-million people with MS who are on Medicare. 

We'll tell you about study results for a novel drug that was effective in remyelination and restoring lost function to mice with the mouse model of MS.

We'll share the details of a study that shows how specific comorbidities affect specific MS outcomes.

We'll review results of a study that shows men with MS who start a high-efficacy disease-modifying therapy experience fewer relapses.

And we'll tell you how an artificial intelligence chatbot soundly beat human experts in predicting the results of neuroscience studies.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: Behavioral and Lifestyle risk factors for MS (and how to mitigate them)   :22

It's 2025, and that means significant out-of-pocket savings on prescription medications for people with MS on Medicare  1:20

Novel drug shows effectiveness in remyelination and restoring function in mouse model of MS  3:26

Study shows how specific comorbidities affect specific MS outcomes  5:17

Study shows men on high-efficacy disease-modifying therapies experience fewer MS relapses  8:46

Study shows AI beats human experts in predicting results of neuroscience studies  12:22

Dr. Jared Bruce and Dr. Amanda Bruce discuss behavioral and lifestyle MS risk factors   16:43

Share this episode  32:13

Have you downloaded the free RealTalk MS app?  32:33

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/384

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

RealTalk MS on YouTube https://www.youtube.com/@RealTalkMS

STUDY: Selective Retinoid X Receptor Agonism Promotes Functional Recovery and Myelin Repair in Experimental Autoimmune Encephalomyelitis https://actaneurocomms.biomedcentral.com/articles/10.1186/s40478-024-01904-x

STUDY: Comorbidities and Their Association with Outcomes In the Multiple Sclerosis Population: A Rapid Review https://msard-journal.com/article/S2211-0348(24)00519-4/fulltext

STUDY EXPLAINED (Plain English): Comorbidities and Their Association with Outcomes In the Multiple Sclerosis Population: A Rapid Review https://tremlettsmsresearchexplained.wordpress.com/2024/10/29/comorbidities-and-their-association-with-outcomes-in-the-multiple-sclerosis-population-a-rapid-review-explained

STUDY: Comparative Effectiveness of High-Efficacy and Moderate-Efficacy Disease-Modifying Agents in Reducing the Annualized Relapse Rates Among Multiple Sclerosis Patients in the United States https://sciencedirect.com/science/article/abs/pii/S0091743524003359

STUDY: Large Language Models Surpass Human Experts in Predicting Neuroscience Results https://nature.com/articles/s41562-024-02046-9

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 384 Guests: Dr. Jared Bruce and Dr. Amanda Bruce

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One of the most important MS research events every year is the annual European Committee for Treatment and Research in MS Scientific Congress, usually referred to by its acronym, ECTRIMS.    You've made our podcast episode that followed ECTRIMS the most downloaded episode of the year. So, this week, I'm revisiting the two conversations that I had immediately after the ECTRIMS conference ended.

In what has become an annual tradition, it's my privilege to sit down with the National MS Society's Executive Vice-President of Research, Dr. Bruce Bebo, just minutes after the conclusion of ECTRIMS to get his first impressions of the news and presentations that caught his eye.   This year, I also wanted to bring you the perspective of someone who's living with MS, who attended ECTRIMS for the very first time.  So, less than an hour after the conference concluded, I had a conversation with Kristine Werner Ozug. (Full disclosure, Kristine is a member of the RealTalk MS team.)

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: Revisiting ECTRIMS 2024   :22

Dr. Bruce Bebo shares the announcements and presentations that caught his eye at ECTRIMS  1:59

Kristine Werner Ozug shares a patient's perspective on attending the largest MS research conference in the world  14:07

Share this episode  26:54

Have you downloaded the free RealTalk MS app?  27:14

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/383

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

RealTalk MS at ECTRIMS on YouTube https://www.youtube.com/playlist?list=PLATxgj1uHpxPOTklQKDkASWTEBoHXVGH1

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 383 Guests: Dr. Bruce Bebo and Kristine Werner Ozug

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The holiday season provides me with an opportunity to indulge in what's become a RealTalk MS tradition. I reserve the last two episodes of the year to revisit the most compelling and important conversations that I've had over the past year. This week, I'm revisiting two conversations I had with two experts on MS and women's health issues.

MS affects women almost 3 times more frequently than it affects men, which should make understanding how MS might impact other women's health issues a priority. Unfortunately, that hasn't really been the case. The good news is we're seeing that situation change and you can expect to hear much more about MS and women's health in the coming year.    This brings me to two conversations that I had this past year when I talked with Dr. Rhonda Voskuhl and Dr. Anna Shah.    Dr. Shah is an Associate Professor of Neurology and Associate Clinic Director of Outpatient Neurology at the University of Colorado School of Medicine.   Dr. Voskuhl is the Director of the UCLA Multiple Sclerosis Program, she holds the Jack H. Skirball Chair in MS, and Dr. Voskuhl also serves as Faculty Neurologist of the UCLA Comprehensive Menopause Care Program.

We have a lot to talk about! Are you ready for RealTalk MS??!

Happy Holidays!  :22

This Week: Revisiting our deep dive into women's health and MS   :44

Dr. Rhonda Voskuhl discusses her research looking at why MS affects men and women differently  2:34

Dr. Anna Shah discusses how MS can affect women's health issues and how those health issues can affect MS  13:30

Share this episode  32:18

Have you downloaded the free RealTalk MS app?  32:38

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/382

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

RealTalk MS at ECTRIMS on YouTube https://www.youtube.com/playlist?list=PLATxgj1uHpxPOTklQKDkASWTEBoHXVGH1

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 382 Guests: Dr. Anna Shah, Dr. Rhonda Voskuhl

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There's an alarming shortage of neurologists in the United States. That shortage makes it hard to be seen by a neurologist and, in some regions of the U.S., you may not even find an MS specialist without having to travel hundreds of miles. The good news is now there's an app for that!

Joining me to talk about how an app called BeCare is already changing the game when it comes to MS care is the Chief Medical Officer of BeCareLink, Dr. Charisse Litchman.

The FDA has designated Tolebrutinib as a Breakthrough Therapy for the treatment of adults with non-relapsing secondary progressive MS. We're sharing the details.

We'll tell you where you can participate in a phase 2 clinical trial that's designed to test the efficacy of Foralumab, an investigational disease-modifying therapy formulated as a nasal spray, among adults with non-relapsing secondary progressive MS.

We'll share the details of a report that provides some frustrating data about out-of-pocket costs for MS prescription medications.

Dr. Alicyn Magruder reviews the risks and benefits of using off-label medications to manage MS.

And we'll share the results of a study that focused on how socioeconomic status impacts disease severity among kids and teens living with MS.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: An app that can tell you if your MS is worsening   :22

FDA awards Tolebrutinib Breakthrough Therapy designation  1:04

Phase 2 clinical trial for Foralumab adds 6 additional sites  3:13

Study compares out-of-pocket costs of MS DMTs with meds for other neurologic conditions  5:55

Dr. Alicyn Magruder discusses using off-label medications to manage MS  9:51

Study analyzes the impact of socioeconomic status on disease severity in pediatric-onset MS  15:27

Dr. Charisse Lichtman explains how the BeCare MS app is changing the game and providing an important bridge to better MS care   19:52

Share this episode  30:53

Have you downloaded the free RealTalk MS app?  31:13

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/381

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

RealTalk MS on YouTube https://www.msif.org/webcast-clinical-trials

CLINICAL TRIAL: A Study of Nasal Foralumab in Non-Active Secondary Progressive Multiple Sclerosis Patients https://clinicaltrials.gov/study/NCT06292923

STUDY: Costs Are Still On the Rise for Commonly Prescribed Branded Neurologic Medications https://neurology.org/doi/10.1212/WNL.0000000000210029

STUDY: Association of Social Determinants of Health with Brain MRI Outcomes in Individuals with Pediatric Onset Multiple Sclerosis https://neurology.org/doi/10.1212/WNL.0000000000210140

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 381 Guests: Dr. Alicyn Magruder, Dr. Charisse Litchman

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If you're living with MS, you've probably already learned that hot weather, hot baths, or anything that causes your body temperature to increase can quickly cause your symptoms to worsen. But winter can also be a challenging time. Less daylight, frigid temperatures, ice, and snow can all have an impact on MS.

Dr. Lisa Doggett returns to the podcast with tips and strategies for enjoying winter while staying healthy, safe, and warm. 

We'll also remind you that the International Progressive MS Alliance global webcast is happening tomorrow -- Dec. 11th! And we'll share the details you'll need to sign up.

We'll tell you about study results from Sweden that show that experiencing serious COVID-19 makes it twice as likely that someone will develop MS. (And we'll tell you why those study results aren't as scary as they may sound!)

We're sharing research that has uncovered evidence of nerve damage in the central nervous system up to 9 years before someone experiences MS symptoms.

We'll tell you about a team of biomedical engineers who are creating a tiny implantable device that will warn you if your MS is worsening or if you're heading for a relapse.

And if you're over 55, you're living with MS, and you have 15 minutes to spare, we'll tell you about an online survey that we hope you'll decide to participate in.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: Winning against winter when you're living with MS   :22

Don't miss the International Progressive MS Alliance global webcast on Dec. 11  1:46

A study shows that serious COVID-19 doubles the likelihood that someone will develop MS  2:42

Research reveals that nerve damage can occur in the central nervous system up to 9 years before you can experience any symptoms of MS  6:13

Imagine a tiny device implanted in your arm that can alert you if your MS is worsening or you're headed for a relapse   8:48

If you're 55 years old or older and you've been diagnosed with MS, there's a survey just for you  10:56

Dr. Lisa Doggett shares tips and strategies for thriving in cold weather when you're living with MS  12:29

Share this episode  26:14

Have you downloaded the free RealTalk MS app?  26:33

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/380

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

REGISTER FOR THE WEBCAST: What We're Learning from Clinical Trials https://www.msif.org/webcast-clinical-trials

STUDY: SARS-CoV-2 Infection and Risk of Subsequent Demyelinating Diseases: National Register-Based Cohort Study https://academic.oup.com/braincomms/article/6/6/fcae406/7909395

STUDY: Temporal Dynamics of Plasma Neurofilament Light In Blood Donors with Preclinical Multiple Sclerosis https://neurology.org/doi/10.1212/NXI.0000000000200335

SURVEY: If you are 55 years old or older and living with MS, please complete https://illinois.qualtrics.com/jfe/form/SV_5oM7xmdpdSphTiC

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 380 Guests: Dr. Lisa Doggett

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Disease-modifying therapies work, and, as a result, people with MS are living longer. With half the MS population over the age of 55, it's never been more urgent to understand how the process of aging impacts MS and how MS impacts the process of aging. In this special episode of RealTalk MS, Dr. Leorah Freeman discusses the many factors associated with aging with MS.

This special episode of RealTalk MS is sponsored by Viatris.

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RealTalk MS Episode V202 Guests: Dr. Leorah Freeman

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