By MS Trust
Our podcast brings together a range of voices from the MS community to cover all aspects of life with multiple sclerosis. We know that living with MS can be life changing and can feel overwhelming
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4.9
1212 ratings
The podcast currently has 83 episodes available.
Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39
Is public transport derailing your life? We caught up with Meg Barnett (Transport For All), Flora (MS Trust helpline), Richard Sprenger and Antoinette Mohamed on public transport tips, helpful information and all the latest resources.
“It’s just really complicated. I hate having medical appointments because it’s so difficult to get to them.” - Antoinette
Does this sound familiar? If public transport is derailing your life, you’re not alone.
Between all of the planning, symptom management, inaccessible stations and social interactions, public transport can feel like you’ve got a one-way ticket to exhaustion on the fatigue express.
In fact, 77% of people in our study reported feelings of isolation due to barriers in transport and travel.
That’s why we caught up with Meg Barnett from the charity Transport For All, Flora from the MS Trust helpline team, MS Trust Ambassador Richard Sprenger and regular MS Trust blogger Antoinette Mohamed.
Our podcast guests talk us through their public transport wins and the inevitable disaster journeys. Plus, we hear about helpful apps, journey planning tips and where to turn to when our travels go severely off-track.
Whilst we know that we can’t wave a magic wand and fix public transport for the MS community, this episode might just give you a little more confidence the next time you’re setting sail on an adventure.
Listen now for all of the latest trusted information and tips.
Episode Notes
Driving and Transport - info from MS Trust
mstrust.org.uk/information-support/home-and-travel/driving-and-public-transport
Life changing: getting around with MS - information from MS Trust mstrust.org.uk/news/life-changing-getting-around-ms
Transport for All - www.transportforall.org.uk
Passenger Assistance - passengerassistance.com
Citymapper - travel planner app - citymapper.com/?lang=en
MS Trust Facebook Group
Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39
Are you wondering how to stay productive while managing MS? Perhaps you are looking for ways to disclose your diagnosis without derailing your career? Then join us as we delve into the topic of MS at work.
Hosts Nick and Helena explore the impact of Multiple Sclerosis in the workplace and share strategies for Bringing Your MS to Work.
We have a jam-packed show with four fantastic guests:
Tune in to hear these stories and get some ideas in managing MS in your workplace. Let’s bring your MS to work!
Episode Notes
Other work resources that might be useful
Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39
What is a driving assessment? Does your mind conjure up memories of your driving test? Do you see a 17-year-old version of yourself panicking and sweating?
Well, the second part of our podcast series on driving and multiple sclerosis covers everything that you need to know.
Occupational therapist, Wendy Valentine and driving assessor, James Hinkins take us through the roadmap on driving assessments, car adaptions, the DVLA and more!
We find out how the assessors are there to promote your independence and keep you on the road for as long as they can.
Oh, and don’t forget to check out part one where we heard all about the Motability Scheme and MS.
If you’ve ever felt worried about driving and MS, this is the podcast for you. Start your engines and join us as we motor through all the latest tips and information on driving and MS.
Episode Notes
Driving and Transport - info from MS Trust
mstrust.org.uk/information-support/home-and-travel/driving-and-public-transport
Driving with MS -info from MS Trust mstrust.org.uk/news/driving-ms-what-you-need-know
How car adaptations gave me my independence back - blog from MS Trust: mstrust.org.uk/news/stories/how-car-adaptations-gave-me-my-independence-back
www.drivingmobility.org.uk - info from Driving mobility UK
Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39
Driving when you live with MS might make you feel like you’re stuck at a red light.
You might start to ask questions. Who do I need to tell about my diagnosis? Can I still drive to see my family and friends? What adaptions do I need?
Well, our two-part podcast special should give you some answers and dispel a few myths.
In part one, we’re joined by Claire Winchester, MS Trust Head of Info and Engagement. She shares insights from a recent survey exploring how MS affects travel and transportation.
Plus, we hear from Motability's Ross Smith to learn more about their scheme and how it can help people with MS stay independent.
Listen now to learn helpful driving tips, information and more!
Episode Notes
Driving and Transport - info from MS Trust
mstrust.org.uk/information-support/home-and-travel/driving-and-public-transport
Driving with MS - News item from MS Trust what you need to know mstrust.org.uk/news/driving-ms-what-you-need-know
How the Motability Scheme works - motability.co.uk/how-it-works/
Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39
What should you eat when you live with MS? We come across this question a lot from the MS community. It’s not surprising considering how much conflicting information there is out there.
That’s why we’re demystifying MS diets in our two-part podcast special. Episode one saw us catch up with Dr. Terry Wahls and Samantha Josephs (Overcoming MS) about their respective diets and lifestyle approaches.
This time around, we’re chewing the fat with registered dietician Claire Fenlon (Chilterns Neuro Centre), who also lives with MS herself. She helps us to understand the importance of healthy eating with MS and outlines some helpful tips.
Also, MS Trust Head of Information and Engagement, Dr Claire Winchester, gives us food for thought on the research behind nutrition and diet.
Join us for all the latest tips, information and more!
Episode notes
Demystifying MS diets pt 1: the Wahls Protocol and Overcoming MS: mstrust.org.uk/information-support/podcasts/demystifying-ms-diets-pt-1-wahls-protocol-and-overcoming-ms
Diet and MS - info from MS Trust mstrust.org.uk/information-support/diet-ms
Types of MS Diets – info from MS Trust mstrust.org.uk/information-support/diet-ms/types-diet
Diet and symptoms – info from MS Trust mstrust.org.uk/information-support/diet-ms/diet-and-symptoms
Donate to the MS Trust donate.mstrust.org.uk/
Tips to keep your bladder healthy mstrust.org.uk/news/expert/tips-keeping-your-bladder-healthy
Tips to keep your bowel healthy mstrust.org.uk/news/expert/tips-keeping-your-bowel-healthy
Chilterns Neuro centre chilternsneurocentre.org
Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39
Have you thought about making changes to your diet to help manage your MS? Maybe you’ve experimented with a few fad diets, but never quite found what works.
Well, we know the feeling. The world of nutrition can be tricky – you’re not sure if you should be keto, vegan, paleo, carnivore or just straight up confuddled.
Throw MS into the mix and all of a sudden, things can get even more confusing. That’s why we’re sinking our teeth into the world of MS and diet and digesting the facts in a two-part podcast series.
First up, we tuck in to two of the most popular MS diets: The Wahls Protocol and the Overcoming MS diet and lifestyle.
Our guests, Dr. Terry Wahls (The Wahls Protocol) and Samantha Josephs (Overcoming MS), discuss their diets, the research behind them and how healthy eating patterns can support your overall health.
Listen now for all the latest tips, information and more!
Episode notes
Diet and MS - info from MS Trust mstrust.org.uk/information-support/diet-ms
Types of MS Diets – info from MS Trust mstrust.org.uk/information-support/diet-ms/types-diet
Diet and symptoms – info from MS Trust mstrust.org.uk/information-support/diet-ms/diet-and-symptoms
Donate to the MS Trust donate.mstrust.org.uk/
The Wahls protocol terrywahls.com/the-wahls-protocol/
Overcoming MS Diet overcomingms.org/program/guide-overcoming-ms-diet/
Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39
JLS founding member and critically acclaimed solo artist Oritsé Williams has been in the limelight since 2008. But long before the dazzling, bright lights of fame, Oritsé began his journey as a young carer for his mum, who was diagnosed with MS when he was 12 years old.
Find out about the challenges that he and his siblings faced, his mother’s MS journey and why he’s passionate about supporting other young carers out there.
Listen now to hear his take on caring for someone with dignity and love, the family bond they developed and how finding a creative outlet supported him emotionally.
Episode notes
Information for carers - information from the MS Trust - mstrust.org.uk/information-support/care-and-carers/information-for-carers
Caring for someone with MS - Podcast from MS Trust - mstrust.org.uk/information-support/podcasts/caring-someone-ms
Advance care planning - information from the MS Trust - mstrust.org.uk/a-z/advance-care-planning
The MS Trust announce Oritsé Williams as its new celebrity ambassador -mstrust.org.uk/news/ms-trust-announce-oritse-williams-its-new-celebrity-ambassador
Caring organisations for young carers
https://www.mytimeyoungcarers.org/ - MYTIME Young Carers
https://www.childrenssociety.org.uk/what-we-do/our-work/supporting-young-carers/ - Children's society
https://carers.org/about-caring/about-young-adult-carers - Carers UK
Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39
Waiting for a potential multiple sclerosis diagnosis can be daunting. In this episode, we explore the "limbo land" time during your first appointments and a possible MS diagnosis.
Neurologist, Dr Emma Tallantyre, joins us to talk about the importance of reaching out to your healthcare professionals, managing stress and more!
We discuss the roles of neurologists and the tests you might go through. Plus, we cover some top tips for preparing for each appointment and what to do next.
Listeners will gain a deeper understanding of the diagnostic journey, treatments, and the value of support from healthcare professionals, family, and friends.
Listen now for expert advice, personal stories, and community support.
Show notes
- Worried you have MS?: mstrust.org.uk//information-support/ms-symptoms-diagnosis/worried-you-have-ms
- MS Trust what is MS?: mstrust.org.uk/about-ms/what-ms
- MS trust how is MS diagnosed?: mstrust.org.uk/about-ms/what-ms/how-ms-diagnosed
- MS Trust newly diagnosed: mstrust.org.uk/about-ms/newly-diagnosed
- MS Trust A-Z of MS : mstrust.org.uk/a-z
- MS Trust questions to ask a health professionals: mstrust.org.uk/a-z/questions-ask-health-professionals
- MS Trust contact us: mstrust.org.uk/what-we-do/contact-us
- Diagnosing MS - Lumbar puncture video: youtube.com/watch?v=dGmZt6XmZAQ
- Diagnosing MS - Evoked potentials tests video: youtube.com/watch?v=DttdmivruP4
- Diagnosing MS - MRI scan video youtube.com/watch?v=Erz_nGg4iII
Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39
Do you have feel embarrassed about your MS symptoms? Do you find some topics difficult to talk about?
You’re not the only one. 85% of people we surveyed felt embarrassed by at least one of their symptoms and many of the community were hiding their symptoms from their partners.
A third of people living with MS also avoided seeking medical help due to embarrassment. It’s time to shatter the stigma.
MS Trust ambassadors, Trishna Bharadia, Dr Agne Straukiene and Richard Sprenger tackle taboo subjects like sexual dysfunction, bladder and bowel issues, drugs and opening up to your employer.
Listen now for honest experiences, tips and more.
Show Notes
MS Awareness Week 2024
mstrust.org.uk/get-involved/ms-awareness-week
Working life and MS
mstrust.org.uk/information-support/work-money-legal/working-life
Equality act
mstrust.org.uk/a-z/equality-act
Sexual problems for men with MS
mstrust.org.uk/a-z/sexual-problems-men-ms
Sexual problems for women with MS
mstrust.org.uk/a-z/sexual-problems-women-ms
Bladder and Bowel problems
mstrust.org.uk/a-z/bladder-and-bowel-problems
Podcasts
How can I manage my MS bowel problems?
mstrust.org.uk/information-support/podcasts/how-can-i-manage-my-ms-bowel-problems
How can I manage my MS bladder problems?
mstrust.org.uk/information-support/podcasts/how-can-i-manage-my-ms-bladder-problems
Talking toilet troubles in MS
mstrust.org.uk/information-support/podcasts/talking-toilet-troubles-ms
Cognition and thinking problems in MS
mstrust.org.uk/information-support/podcasts/cognition-and-thinking-problems-ms
Sex and MS part 1 (women)
mstrust.org.uk/information-support/podcasts/sex-and-ms-part-1-women
Sex and MS part 2 (men)
mstrust.org.uk/information-support/podcasts/sex-and-ms-part-2-men
Relationships and MS
mstrust.org.uk/information-support/podcasts/relationships-and-ms
Working life and MS
mstrust.org.uk/information-support/podcasts/working-life-and-ms
Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39
Have you ever wondered how your hormones might affect your MS?
We're joined by podcast guests Olivia Mason, a woman diagnosed with multiple sclerosis not long after giving birth, and Professor Ruth Dobson, a consultant neurologist specialising in MS.
Together, we explore how periods, pregnancy, breastfeeding, and menopause can influence MS.
Here's what we cover
• Can periods make MS symptoms worse?
• Is pregnancy protective for women with MS?
• Can you use disease modifying drugs (DMDs) whilst pregnant?
• Can women with MS safely breastfeed?
• How does menopause affect MS symptoms?
• Plus, Olivia shares her personal experience and insights on navigating an MS diagnosis as a new mother.
This episode is a must-listen for anyone who wants to understand more about how periods, pregnancy, breastfeeding and the menopause can affect multiple sclerosis.
Listen now for all of the latest information, tips and more!
Episode notes
- MS Trust A-Z on MS and Hormones: mstrust.org.uk/a-z/hormones
- MS Trust A-Z on MS and pregnancy: mstrust.org.uk/search/pregnancy
- MS Trust A-Z on MS and breastfeeding: mstrust.org.uk/a-z/breastfeeding
- MS Trust A-Z on MS and menopause: mstrust.org.uk/search/menopause
- MS Trust Podcast on MS and menopause: mstrust.org.uk/information-support/podcasts/how-does-menopause-affect-ms
- Can the menopause affect MS - Research update: mstrust.org.uk/research/research-updates/update151013-menopause-MS
-UK guidelines for treating multiple sclerosis symptoms during pregnancy - Research Update: mstrust.org.uk/news/research/230515-uk-guidelines-treating-multiple-sclerosis-symptoms-during-pregnancy
- Why I created The Twelve Day Marathon - Blog by Olivia on MS Trust website: mstrust.org.uk/news/stories/why-i-created-twelve-day-marathon
- UK MS pregnancy Register: ukmsregister.org/pregnancy
The podcast currently has 83 episodes available.
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